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My heart is aching: MS? My heart is aching: MS?

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  #1  
Unread 09-29-2003, 03:49 PM
My heart is aching: MS?

Hello ladies,

This is off topic but my sister (aged 34) was diagnosed with Multiple Sclerosis this morning. She's got two kids under the age of two. I am begging for suggestions for how I can help her in the immediate future. She just moved into a new house on Friday, if anyone knows of any "unpacking help" that is available (there are maids, but are there official unpackers and house setter-uppers??).

I am in Arizona and she lives in Pittsburgh, I am planning on flying to Pittsburgh for a week or so as soon as I can complete some time-sensitive obligations at work.

Does anyone have any experience with dealing with MS? And please, your thoughts and prayers for my sister, who is truly one of the most loving, vivacious, and generous people on this planet. Thank you,

Beth
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  #2  
Unread 09-29-2003, 04:36 PM
My heart is aching: MS?

Hy Beth
Yes, my best friend hs MS. She hs had it for 0 years or more. It sends her off balance al ot. She gets real dizzy and sometimes needs physical support from adults around her. It makes her eyes shurt. She chose not to try to use the wheelchair because she fights it. However, she needs the chair for long walking like trips to the fair or all day at the mall. She has to wear special thim comfortalble shoes. Thes do't have to be orthopedic. She bus them at JCPennys. Other stores also sell good comfortable shoes.

Wom3 people have it a lot worse. Good luck to your sister
  #3  
Unread 09-29-2003, 07:46 PM
My heart is aching: MS?

(((Beth)))

I'm so sorry to hear about your sister. My 36-year old sister was diagnosed with MS about 5 years ago. She has occasional double vision and numbness/tingling in her hands. She also fatigues easily. While it has changed slightly over the past 5 years, it hasn't progressed significantly. She has 4 children and is recently divorced, but overall is handling things quite well. We are pleased that hers is not progressing very quickly.

MS varies from one person to the next. I think lots of people remember the cases where individuals with MS have declined to the point of needing wheelchairs and 24-hour care. But that's only about 1/3 of the cases. Others have one acute episode and that's all. Most will have a series of acute episodes and will typically decline a little bit (sometimes a very little bit) with each episode. Sometimes the worst part is not knowing where you will end up.

I will keep your sister in my prayers. I hope her move goes well. Remind her to get plenty of rest!

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  #4  
Unread 09-29-2003, 07:48 PM
My heart is aching: MS?

I have a cousin who has had MS for many years...and she is doing great....Has been apart of some experimantal treatment programs I believe and they have really worked for her...She lives in Minneapolis....I know there are some Ms boards like ours that she has made some wonderful friends on...if you would like, I could get some info for you....Ande
  #5  
Unread 09-29-2003, 08:47 PM
My heart is aching: MS?

Beth, I'm so sorry to hear of your sister's diagnosis. MS, like all neuromuscular diseases, can be devastating but as Jeanine pointed out, the effects differ from person to person. I understand that stress is a big factor in the disease. I'll keep your sister in my prayers and hope that her symptoms are manageable.
  #6  
Unread 09-29-2003, 10:37 PM
My heart is aching: MS?

I have two girlfriends with MS. One was diagnosed in her early 40's but realized she had probably had minor symptoms since her teens. She is doing well and really doesn't have many symptoms at all! My other friend (also early 40's) was attending my birthday party two years ago and was feeling weird because her feet were numb and her hands were tingly - the first symptoms of any kind that she had ever had. Within a few months a positive diagnosis of MS was made. She is on some kind of drug therapy injections (I think it is interferon or something like that) and has been doing very well - just tires easily (she has a very busy husband and three boys between the ages of 8 & 13). This drug therapy is apparently supposed to slow down the progression of the disease - perhaps your sister (or you) should investigate this avenue. All the best to you - she is so fortunate to have a wonderful supportive sister!

Maude
  #7  
Unread 09-30-2003, 11:47 AM
Thanks

You guys are the best. Thanks so much for your supportive replies, it really means a lot to me. Thanks for sharing your stories of all the wonderful and courageous women you know who are doing great! I will pass this information along to my sister. You all have made me feel so much better. Thanks again,

Beth
  #8  
Unread 09-30-2003, 07:41 PM
My heart is aching: MS?

s Beth

I am so sorry to read about your sister being diagnosed with MS.
Hopefully she will get a remission of the symptoms and be problem free for many years to come.
In the meantime, she sure is lucky to have you for a sis.
Sisters are the best!!

karenann
  #9  
Unread 10-01-2003, 05:04 AM
My heart is aching: MS?

Hi Beth,
my mom was diagnosed with ms when she was about 45. We think she probably had it well before that, but ..... let's just say she changed doctors and leave it at that.

She is now 64, and there has been very little deterioration over the last 20 years.
She does have some problems with balance, and yes, has taken a couple of tumbles, and sometimes she uses a cane.
she has a bit of numbness in her finger tips,... but she still does counted cross stitch...(really exquisite stuff!!!)

When she came to visit me in Italy a couple of years ago we WALKED everywhere - and she didn't bring her cane here.

So, while it surely is not a good thing that your sister has this disease, at least she can start her treatment right away, and maybe her symptoms will not get much worse.

best wishes to both of you.
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