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Anyone with restless leg syndrome? Anyone with restless leg syndrome?

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Unread 10-11-2003, 09:05 AM
Anyone with restless leg syndrome?

Oh yeah, I forgot to say that I have been noticing a major problem with antihistamines lately. I've been taking them because of an itchy rash and I've been up most nights with awful muscle spasms. Not only in my legs, but in my arms and abdomen too.
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Unread 10-11-2003, 11:01 PM
Anyone with restless leg syndrome?

(((Gidge)))) .
Another symptom so many of us share I was dx'd w/ RLS Syndrome a few yrs ago & take Klonopin (Clonazapam ) to help which it does . Give it sometime 2 start working & pls keep us posted on your progress!!

Good Luck my friend & pls keep us posted..(((hugs)))
Unread 10-11-2003, 11:11 PM
Anyone with restless leg syndrome?

My hyster was a very long time ago (18 years) but I too have restless leg syndrome. I was diagnosed with fibromyalgia about 6 months after I had my surgery and always thought the RLS was part of that but it might be both.

I can't take any type of PM pain reliever, benadryl or a lot of cold meds or they drive my legs nuts. The only things that seem to help are a hot bath or hot towels wrapped around my legs or walking. I did read an Amish remedy that says put a penny under your pillow. I have tried it and have never had symptoms when I do it but it could be it was just a good night!!

It helps to know others deal with the same things, some days I feel like I am losing my mind.

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Unread 10-12-2003, 12:34 AM
Anyone with restless leg syndrome?

but I too have restless leg syndrome. I was diagnosed with fibromyalgia about 6 months after I had my surgery and always thought the RLS was part of that but it might be both.
((Debbie)) ,
WOW...18 yrs! I was also DX'd w/ FMS aBout 6 months Post-op. The RLS DX came shortly after I have tried several treatment options..sought out Specialists & even attempted several alternative treatments out there on the web, to no avail

I'm soo glad you found us & hope you will continue to share & post...I'm sure there is a lot we can learn from a Veteran of your tenure No really...we understand the pain, toll & frustrations of dealing w/ day to day life, undergoing this surgery for pain only to be left w/ truly helps havibng others to listen & *understand*!!
Good Luck..hope to C-ya around...((((hugs))))
Unread 10-12-2003, 05:58 AM
Anyone with restless leg syndrome?

Hi Gidge!

I have been out of the loop for some time and I am so sorry your having RLS and the bladder probs STILL!!

I had RLS for years and mine was also worse with OTC meds. For some reason it just one day went away hopefully never to return! It is very bothersome and used to make me soooo mad at night!

I am glad you went to see a sleep Dr about it and will pray that your meds keep working like a charm. I also hope you get your results back soon and you get ALL of the answers so you can finally get a break from this mess!!

Please take care my friend and know I still think about you and pray for all of my sisters!!

HUGS sweetie
Unread 10-14-2003, 09:36 AM
Anyone with restless leg syndrome?

thanks so much for all your replies, once again it's so nice to know I'm not alone

The mirapex is working very well for stopping my legs hurting in the morning, as the day wears on the ache comes back though so Fri night I took a whole instead of a half and had the WEIRDEST dreams and i"m still waking up at I"m back to 1/2 I guess I"ll ask the sleep doc when I see him, I"ve also developed a weird low grade headache on the right side of my head since I started it that wasn't there before....almost worth the trade off though to get rid of those aching legs!

I plan to ask him about this Klonapin when I see him again as well I do believe I'm feeing abit more rested since the mirapex but if I could sleep past 4:00am I would be very grateful!!! And who knows as I keep taking the mirapex maybe the leg aching during the day will go away as well?

thanks for sharing with me girls, I'll keep ya posted.....we really should do a survey to see how many hyst patients end up with this!
Unread 10-14-2003, 10:31 AM
Anyone with restless leg syndrome?

Thanks for the update Hopefully your Sleep Dr will have somemore answers for you I experience very wild, vivid dreams :-( I often find myself trying to wake-up just to escape some of them ...if I do wake-up, I have this surreal feeling as if certain parts of the dream came out w/ me
<goofy I know..LOL..>Sounds silly I know...kinda like Freddy Kruegar stuff
I was also DX'd w/ Narcoloepsy about a 1.5 yrs ago by my current sleep Dr:-( He informed me that this condition is known for causing very vivid dreams & that the dream part of sleep starts w/i minutes after a Narcolepsy patient goes to sleep. Others w/o this usually dont start to dream until 18-20 mins into their sleep. Your statement about the weird dreams made me think of my own experiences & DX.
Good Luck (((Gidge)))

Unread 10-14-2003, 10:34 AM
Anyone with restless leg syndrome?

Wow Sheri that sounds just like me!!!

I have always had extremely complex wild dreams but since starting the Mirapex they've taken on what I can only call a "movie quality" where I seem to just be watching, not participating and while they're very entertaining I don't always feel like I"m getting sleep while it's happening!!!

When I took the whole pill it was even worse I just kept waking up and going "Wow!!".......once again, a worthwhile trade off for the legs not hurting when I wake up, I guess when/if he adds something else in to make me sleep better I'll know better how this will go, he said he can't do that until after the sleep study on Nov 8th because if I do have apnea I can't take it?

I also have this thing where I wake up and everything (including me) feels like it's moving.....does anyone else get this? It never happened before the hyst?
Unread 10-14-2003, 10:44 AM
Anyone with restless leg syndrome?

I also have this thing where I wake up and everything (including me) feels like it's moving.....does anyone else get this? It never happened before the hyst?
I've awoken or tried to awake & unable to do so b/c I cant breathe Feels like I'm paralyzed & unable to move anything, cant scares the heck out of me b/c I'm trying TO scream out for help & I cant Fortunately, this only occurs every 5-6 months I remember a bunch of us discussing this before...I thot it was you, myself, Lily, Ang, Lisa (momof1), Kim M & a few others...sound familiar I'll try to search back for it. I know it's been awhile...maybe a couple years or so???
I'll also see if I have any info on Narcolepsy & I'll post it for you

Unread 10-14-2003, 10:57 AM
Anyone with restless leg syndrome?

thanks Sheri!! I think we did discuss it before but it's happening more now, that's one thing the sleep doc asked was did I get this paralyzed thing and I said no, just the everything is moving like we're having a slight earthquake, I have no idea if I can move when it's happening or not though!!!

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