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pathology results today - endometrial adenocarcinoma pathology results today - endometrial adenocarcinoma

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Unread 10-02-2003, 09:53 PM
pathology results today - endometrial adenocarcinoma

Hi. Its 15 days post op and I had my follow up at General Hospital. I was told the result of the pathology made during the operation showed endometrial adenocarcinoma, grade 1. They said no chemotherapy or radiation was necessary.
I have an appointment with a gyn-oncologist on December 12. I was told I should avoid "prepared phyto-estrogens." that means those wonderful (?) over the counter preparations I was using to alleviate hot flashes (a mix of black cohosh and vitex and kudzu). i am confused. there is estrogen in soy products. and edamame beans. and soymilk..and I to avoid eating these things? I am fairly organic and love vegetables, eggs, and fish and chicken...don't do much dairy...or carbs...

what makes estrogen and how do I avoid it? can I still take my Juice Plus Vitamins (its 17 fruits and vegetables in a capsule - supposed to have all the vitamins fiber and enzymes of the foods).

Thanks for your input.
tah.bso Sept.17 2003
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Unread 10-02-2003, 10:30 PM
pathology results today - endometrial adenocarcinoma

Howdy - we had the same surgery on the 17th Sept!
I am also struggling with the instant menopause thing - but I also am an organic food/no dairy/little meat or carbs eater.

I have heard conflicting reports about soy products and for now and not eating any. Trying to get into research mode - but problems with my bladder post-op has set me back a bit.

Just really wanted to let you know you are now alone in this!

Jan (Jads)
Unread 10-02-2003, 10:31 PM

OOPS - I meant I wanted to let you know you are NOT alone in this - should have proofread before hitting send!
Jan (Jads)
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Unread 10-02-2003, 10:41 PM
pathology results today - endometrial adenocarcinoma

I have the same thing and had my operation 7-1-03. My hot flashes are frequent and hot! I have started taking 370 mg of black cohosh a day ---It has not kicked in yet--what is the problem taking these phyto-estrogens??

Good luck with recovery--remember, you can only do it right once, don;t twist or lift things for a while.

Unread 10-03-2003, 12:03 AM

My docs today said since the Cancer was from unopposed estrogen they did not want me to take any "phyto estrogens". when i reearch it, its in all the healthy foods....I am confused as to what todo. Thanks for your supportive replies...i never noticed the "now alone"..we re NOT ALONE....
Unread 10-03-2003, 03:58 AM

Welcome to the group.

I was also diagnosed with endo. can. last February (stage III)

I am now following a special diet given to me by a doctor-nutritionist. I am not to have dairy, regular eggs or beef because of the estrogen content. Obviously no supplements or HRT. However, he says there are two schools of thoughts regarding tofu etc. He explained that the type of estrogen from plant sources (not supplements) is sort of "low-key" and blocks the estrogen receptors preventing uptake of other estrogen, which is more damaging. I have about 100 gm of tofu a day and one glass of soy milk. This has really helped with the flashes, and I can tell the difference when I haven't had for a few days.

I am 40 years old, so menopause hit hard and suddenly after surgery.

Best wishes.

Unread 10-03-2003, 08:36 AM
pathology results today - endometrial adenocarcinoma

What symptoms did y'all have for the endometrial cancer? I am going to a gyno/onc on Tuesday - and needless to say am scared to death since that is where my gyno has sent me . . he says it is not necessarily because he suspects cancer, but because my ovaries are so entertwined with all the endo that they are stuck to my ureter, sigmoid and bowel, etc. -- and that gyno/oncs are more adept at removing that kinda stuff without damaging surrounding organs. I had my uterus removed four months ago -- she didn't take my ovaries because she couldn't get them out. Have been in horrendous pain for past two months -- my pcp finally ordered a pelvic ct and ultrasound, which revealed a large cyst on my left ovary, and four small ones on my right . . . . My new gyno says my ovaries definitely have to come out - and is sending me to the gyno/onc to do it. Anyway - aside from the pelvic pain, I have lower back pain which since it has been going on for two months, has now gone into my hip and top of my left thigh . . . nausea is horrendous . . . phenergen didn't help, so am now taking zofran which is expensive but does help . . . I don't seem to get hungry so much (but I am overweight and love to eat -- so not being hungry doesn't really keep me from eating! ha!) . . but what is weird - is I don't seem to get full either . . . Should I be worried about cancer -- or just assume it is the nasty ol' cysts hurting me? I am on percocet right now . . . which takes the edge off . . . . Thanks for listening . .,
Unread 10-03-2003, 06:34 PM
pathology results today - endometrial adenocarcinoma

Welcome bonnob,
I see you are in SF - I lived there for many years up until 18 months ago. How are things in the City?

There are many of us here interested in post cancer nutrition and supplements. I am familiar with Juice Plus having taken it in the past. As I recall there isn't any soy in them so they should be okay. Enzymes are very important to include, in fact I am taking an enzyme supplement myself. Is your doctor allowing you to take any herbs or supplements?

The soy is tricky - I read conflicting reports constantly. One article will say it has cancer preventing properties, another that it elevates estrogen. I am still researching and will pass any information on. In the meantime, I do include a little bit of soy in my diet, mostly in the form of soy yogurt since I'm not supposed to have dairy products. I was also advised to avoid peanuts, wheat, corn, barley, sugar, food additives, food coloring, artificial flavors and colors.

I'm not sure of the status of the database here (it crashed badly a couple of weeks ago), but try doing a search on SirenSong and jochan. Siren especially has posted lots of information about diet and supplements. If the information is gone, I'll be happy to re-post all that I am doing, and I'm sure the others will too. In the meantime, take care and get plenty of rest.
Unread 10-06-2003, 05:14 PM
pathology results today - endometrial adenocarcinoma

Hi. Now I am totally confused. I had endometrial carcinoma. My Pap test was negative but it was positive in the pathology.
I am using a Climara patch. My cervix was removed. What is the
effect of taking estrogen? Does it make the cancer grow back?
TAH 8/26
Unread 10-07-2003, 10:39 AM
pathology results today - endometrial adenocarcinoma

Hi Jackie,

I had surgery on the 17th for grade I stage I endometrial cancer. They put a hormone patch on me in the hospital and I am currently using the Vivelle patch. I asked my GYN at my post-op about the estrogen and she said with grade I, I have nothing to worry about - she actually got snippy with me. She said I would be miserable without it.
Tomorrow I am meeting my ONC/GYN for the first time and am going to ask him about it. Everything I have read says you shuoldn't take HRT if you have had endometrial/uterine cancer.

It's a controversial issue.


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