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Does anyone know what Adrenal Mass (Adenoma) is??? Does anyone know what Adrenal Mass (Adenoma) is???

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  #11  
Unread 10-23-2003, 10:00 AM
Does anyone know what Adrenal Mass (Adenoma) is???

I have also posted about how I was denied Medicaid on another post.

Darlene - email me privately about this situation and I might be able to offer you some excellent advice. Been there myself so I know the ropes to this.

As far as having one kidney, it really isn't a problem. It took about one year for my system to adjust to that operation 17 years ago. It seemed with having only one adrenal gland, my energy levels weren't up to par, etc. After about a year, I was back to normal. Though I do have the occasional bouts with kidney infections which are tough on the back (flank pain); never seems to be just a UTI, it goes right to the kidney with me. The tumors on my remaining kidney seem to multiply whenever they feel like it, resulting in more each time I go for an ultrasound. So now they say the kidney is polycystic and this I will just have to live with. Someday a transplant maybe necessary, but that hopefully is far, far down the road. I don't worry about it in the mean time, or I would go crazy. Took awhile to get my head into the mode where it doesn't bother me anymore. I know I'm in good hands and they constantly monitor this situation with me.

As far as the 24 hr. urine collection, I just did that prior to my LAVH/BSO surgery, as I had that problem with the high Potassium level. So they were checking my output with the 24 hr. collection. Didn't take long to fill up that jug , but I can tell you taking it from a cold fridge and holding it up to one's pee-pee doesn't make it easy to pee . We all know how cold makes ya not wanna go . It was the one time oh I wished I had a penis .

I hope all works out for you!
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  #12  
Unread 11-29-2003, 12:24 PM
More dismal news...

Ladies,

I went again to Social Services to speak with a Supervisor, and let me tell you she is a rude <admin. snip>. Well, honey there's nothing we can do for you. You will have to acquire the receipts that the money from the settlement was spent on. Mind you, this was 2 years ago. Granted there are some places that may have them on record, but how do I go to the Mall where a lot of $$$ was spent on clothes (because of the braindead man I am married to but am working on the divorce == FINALLY). It was at least $3000.00 or more spent on clothes. Other stuff that was bought was home furnishing (i.e., new living room furniture, bedroom set and stuff like that.) He also purchased a $3000.00 stereo for his semi truck that broke down only within a month of this purchase so he pulled it out and sold it I guess. He also bought a laptop computer (over $2000.00) but since has given it to his uncle as collateral on some tools his uncle traded him. Then he decided when I was just barely 4 weeks post hyster, he wanted to take me to Disney World and that was at least $5000-6000. A camcorder, home stereo and other stuff. Now tell me, where the heck am I supposed to get these receipts? THESE SOCIAL SERVICES things are the pits. All the people out there taking advantage of the system and here I am the one suffering with a litgitimate reason to get in. You wouldn't believe the people that live off welfare that are riding around in Cadillacs, having there hair done, nails done, etc. This just really irks me.

I guess my next step is to write to my Congressperson/Senator for any help, as (((BJOzzie))) had suggested.

Well, enough of my gripe for now...you will be hearing from me again I'm sure. Just tired of the red tape and BS.

Thanks for listening ladies and many 's and to all.

Darlene
  #13  
Unread 11-29-2003, 12:45 PM
Does anyone know what Adrenal Mass (Adenoma) is???

Darlene......the key to SS is documentation and your doctors helping you out here. The first time you apply you are ALWAYS denied. That is when you appeal the decision and get a lawyer who is well versed with SS. They will tell you everything you need to document, how to go about getting the documentation, etc. It takes approximately one-year to get through the appeal process.

If your doctor's can document due to medical conditions that you are unable to work a 40 hour per week job, SS will agree with that and you will be awarded SS and, it will be retroactive back to the original date you applied for it. Therefore, you would receive a lump sum check for the retro amounts. The lawyer gets a certain amount based on the LAW for this and not one penny more. If you have children under the age of 18 living at home, you will also receive monies for them.

In order to qualify for SS you must have worked a minimum set of "quarters", in order to qualify. A friend of mine with MS does not qualify as she did not work long enough to do so.

If you have ever received a notice from SS indicating what you have made through the years and what payment you will receive in the future when you retire, this is the paperwork that will also indicate whether or not you worked enough "quarters" in your lifetime to receive SSI.

Hope this helps some. Document, document, document is all I can say. Record everything and anything that has to to with your doctor's and ask for copies of reports. I have one main doctor who coordinates everything for me and he is the one who wrote the letter for me for SSI. Without him, it would not have been possible. I needed one doctor whom got copies of everything done with other doctor's. That way he had all the information available when the letter needed to be written on my conditions.

I hope you have a good Nephrologist, as I know they are hard to find. Very few in the area in which I live. It seems to be a real "speciality" area and not many doctors for it. Thank goodness I have now found one near me and they have a dialysis center there as well, if God forbid that is needed in the future for me.

Hope it all works out for you
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  #14  
Unread 11-29-2003, 01:03 PM
Me again

's to you BJOZZIE for taking the time to reply.

I am not able to see a Nephrologist yet. Last time I went in, they sent me to the Endocrinologist and they didn't do me any favors. The lady doctor said, Let's just keep an eye on it for 6 months and we'll go from there. I can't wait six months as this Blood Pressure, hair loss, fatigue, sleepless nights, up all nite urinating (and some of the time not making to the toilet in time.) and also this extreme depression. BTW, I have taken myself off my HRT as I was feeling miserable with it. I haven't really had any hot flashes so to speak, just warm spells. I need help now...not 6 months from now. I can't even work due to the pain. Yes, I see a pain management doc, but it costs me $150.00 out of my pocket once a month (and my only income is my little unemployment check, but I also have a truck payment/insurance.)

Yes, I am at the end of my rope. It's just not long enough to hang myself with it. *SARCASM* there.

But I will take your advice as I already have an attorney's office helping me (thank goodness she's doing this a friend. She's getting my divorce papers ready for me to file at no charge.)

Enough of talking your ear off for now.

and 's you.

Darlene
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