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So scared! Endo cancer diagnosed. So scared! Endo cancer diagnosed.

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Unread 10-07-2003, 08:02 AM
So scared! Endo cancer diagnosed.

Dear ladies, any encouragement would be greatly appreciated. Yesterday I was diagnosed with endo cancer and I can't stop crying. I am only 38 and have been in fertility treatments for the last five years. Last month dr did d&c to remove a fibroid. Lab report came back hyperplasia complex with atypia. And I thought that was scary. 2 months of meds then biopsy last week and yesterday he tells me it doesn't look good! He said now it looks like stage 1 cancer! But I thought they couldn't tell staging until surgery. Please help...I am so scared. I have two young children and all I can think of is them not having a mom! The other thing that worries me is that I haven't been feeling well for the past year! I kept going to my primary dr with feelings of fatigue and bowel problems. So now all I can think of is this cancer has spread and no one caught it early enough! I am more afraid of the cancer diagnosis than the surgery itself. Please help!
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Unread 10-07-2003, 08:17 AM
So scared! Endo cancer diagnosed.

Oh, Theatergal

I am so sorry about the news you got. I am so sorry for you and your fears. Yes, of course the unknown is far more fearful than the devil you know; surgery. Did they tell you when you would go to surgery?

I hope you do not have to wait long for the answers that you really need.

My prayers go with you and your family at this time. Prayers for good news, for your strength and your peace of mind.

Please let us know how things turn out. Stay in touch.

's 's

Unread 10-07-2003, 08:22 AM
So scared! Endo cancer diagnosed.

OH sweetie, I can only imagine how you feel when you look at your children! I'm sending big hugs your way and lots of love! You will be in my prayers!NEVER underestimate the power of prayer!!! please TRY to relax somewhat until your next appointment for the sake of the kids. with all they can do today chances are it will all turn out fine! much love,Jon'a
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Unread 10-07-2003, 08:48 AM
So scared! Endo cancer diagnosed.

Dear theatergal,

I am so sorry that you are going through this, but am glad you found this site. It really is a great resource. You may want to post on the Cancer Concerns forum. They are a great bunch of ladies over there. I have posted there because in the past few months I have been faced with the possibility of several types of gynological cancer and have gotten great support.

Good luck to you in your treatment and it sounds as if it is still in an early stage. I will keep you in my prayers!
Unread 10-07-2003, 09:27 AM
endo cancer


I had a TAH-BSO on 9/23 due to severe hyperplasia with transition to carcinoma in situ. My gyn told me that in effect, it was Stage 0 cancer. It was staged based on what the pathology from the D and C showed. I, too, had fears that when they opened me up they would find cancer everywhere.
My gyn/onc surgeon allayed alot of my fears. He said that if it was more widespread, the D and C would have shown more atypia than it did. He felt that worst case, I may need some radiation treatment but he doubted that it would be the case.
I got my pathology from the hysterectomy on 10/1 and it showed a malignancy, but very isolated and had not penetrated the uterine wall, so in effect, I had a surgical cure. I just have to be monitored for the next couple of years. As he put it, the bad news is you had cancer...the good news is you HAD cancer but you no longer have it.
I hope this helps. Cancer is not always a death sentence these days.

Unread 10-07-2003, 12:45 PM
Hi Theatregirl

I also just went through a similar experience. I was diagnosed with AIS- adenocarcinoma in situ. adenocarcinoma is a glandular cancer which spreads easily through the lymphatic system and is difficult to detect. My upcoming surgery is to eliminate the cancer and also to help them to better visualize the area in case of future problems. You will be watched very carefully for the next few years, so chances are that they will detect anything in case it comes back. General health is so important to pump up your immune system too. There is a specifically cancer related support group in addition to this wonderful site. It is specific to cancers and is a wealth of information as well. It is called "Eyes on the Prize." I have gained valuable insight there as well. If you need the address to get there, just write me.

Sounds like they caught yours early .. Like mine. But it is very scarey and so emotional to look at the children. I cried while listening to music and looking at the sky, etc. I think that you have reasons to believe that what you have is quite cureable because of the early staging and the fact that your doctor will even attempt to stage you at all. You'll be fine. Stay healthy and keep talking and reading. Knowledge is power indeed.

Love and best wishes,

Unread 10-07-2003, 12:52 PM
So scared! Endo cancer diagnosed.

Hi Theatergal,

I'm so sorry for what you're going through. I know the fear you're feeling, I was told a few weeks ago that they found cancer in a fibroid they removed from me. I'm going in this Friday for a hysterectomy. My biggest fear is that it's spread, that I've had it forever and that it's already throughout my body. I'm trying my best to remain calm and honestly, I try very hard not to dwell on the cancer. The fear will be there until after the surgery when they can tell me what they saw when they were in there. You'll have the same fears until you know for sure. The women here are very supportive, they'll back you up and help you to feel more secure with what's going on. You can also post over at the Cancer Concerns message board, those women have/are going through similar situations.

Best of luck to you.

Mary Ellen
Unread 10-07-2003, 01:11 PM
So scared! Endo cancer diagnosed.

I remember well the grief and shock when I received the news that I "probably" had ovarian CA. I am an older mother (48) of young children, and felt much the same way.

Have you consulted with a GYN-oncologist? They really are the experts when it comes to surgery for ANY sort of GYN cancer, and the outcomes are definitely improved if one of them performs your surgery. You're definitely being caught early, which is excellent news and carries an excellent prognosis.

It's not a joke that the "waiting is the most difficult part". I know it was for me; however, with children, I didn't have much time to stew about things. I did, however, use that time to research options and get my second (and third) opinions from the GYN-oncologists. Be sure to discuss what they'll choose to do surgically; not everyone will automatically remove the ovaries, for example, if your stage is early and you're young. If that choice is made, research with the oncologist what your HRT options may be.

I know there is a LOT to think about. You've come to the right place, though, for support and information both. And the more you and your partner know about your condition, the better you will be able to handle whatever comes your way.

You've gotten some great advice already here. When you have questions about the surgery itself, then the Pre-Op forum is the place to visit. And when cancer questions arise, or "cancerhead" comes to visit, this is the place to go for s and .


Unread 10-07-2003, 01:27 PM

I am sending you big hugs and prayers. Waiting is the hardest part. Are you seeing an Oncologist/gyn? I had no idea there was such a person until I was diagnosed. They are the experts in this field. I know the feeling of being in shock. It will pass. This is an excellent place to post your fears, concerns and questions. A lot of us have been through what you are now experiencing. When is your surgery scheduled? Please post back and let us know how you are doing.
Unread 10-08-2003, 06:35 AM
Thank you so much!

Dear Friends,
Thank you so much for your support! It helps to know there are others who understand what you are going through. I am seeing my dr today to talk about my options. Thank to your suggestions I will ask to a referral to a specialist right away. I have to admit, the cancer is all I think about. The nights are the worst at the end of the busy day. That's when I have time to sit and think. This site has been a huge help. Thank you! Donna

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