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Unread 10-11-2003, 08:43 AM
All Gyn Cancer Sisters!

Hi Mariann

Click on the link I included above. The screen will be headed with the words Action Alert. Then click on the patients letter link. Then when you fill in your address on the right hand side, the email will automatically be sent to your representative in the House. This will be shown to you when you hit send.
Hope this helps. There are various ways to play with this site.

oxox karenann
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Unread 10-11-2003, 06:04 PM
All Gyn Cancer Sisters!

I tried to get my mother in law to send it in too. She won't do it. What does the bill actuall do?
Unread 10-11-2003, 07:52 PM
All Gyn Cancer Sisters!

Copied from the SGO site:

This bill would authorize a national gynecologic cancer early detection and awareness program campaign focused at women and their physicians, as most women are unaware of their risk factors and the early symptoms of gynecologic cancers. These symptoms can easily be confused with common gastrointestinal illness, menopause, or perimenopause. The grants awarded through this program would help educate women at risk for these cancers and their physicians such that the cancers can be diagnosed at the earliest stage and survival rates increase.
ge your support in the introduction of Johanna’s Law: The Gynecologic Cancers Education & Awareness Act of 2003. Too many women continue to die from these cancers and are unfamiliar with their symptoms. Johanna’s Law will make a dramatic difference in educating women of these symptoms, permit them to seek proper care sooner and raise the overall visibility of gynecologic cancers.
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Unread 10-12-2003, 03:47 AM
For Valeri--Gyn CA Bill Summary

Hi, Valeri--

I just so happened to have contacted the office of Congresswoman Kay Granger, one of the sponsors of the Federal Gynecologic Cancer Bill on Friday. Her staff emailed me the summary of the bill which will be introduced into the House of Representatives soon. Here's a copy of the Bill Summary:

Johanna¡¦s Law: The Gynecologic Cancer Education & Awareness Act of 2003
to be introduced by Congressman Sander M. Levin and Congresswoman Kay Granger

The bill would authorize a national gynecological cancer early detection and awareness campaign directed at women and their physicians.

Bill Summary:

1. National Public Service Announcement. The Secretary of the Department of Health and Human Services, working with the National Cancer Institute and the Centers for Disease Control, will develop and place a Public Service Announcement describing risk factors and symptoms and encouraging women to talk to their doctors about their risk of gynecological cancers. As part of the national campaign, HHS will develop a standard brochure with information about gynecologic cancer and make it easily available to the public.

2. Grants to Local and National Organizations. HHS will award demonstration grants to local and national non-profits to test different outreach and education strategies, including strategies directed at physicians, families, and women themselves. Priority would be given to groups with demonstrated expertise in gynecologic cancer education or treatment or in working with groups of women who are at especially high risk and those proposals which would establish linkage with physicians, hospitals, payers, and state health departments. The Centers for Disease Control, in consultation with the National Cancer Institute, would review proposals and educational messages for medical accuracy.

Cost: Authorizes $70 million over three years, subject to annual appropriations. ($15 million for the PSA and $55 million for the grants)

Why the bill is needed:

Ċ Early detection is the key to successful treatment of gynecologic cancers. The five-year survival rates for the most common gynecologic cancers are 90 percent when diagnosed in stage one or stage two, but the survival rates drop to 50 percent or lower for cancers diagnosed later.

Ċ Most gynecologic cancers do not yet have a reliable screening test that can be used for the general population. However, if women and physicians recognize symptoms and risk factors, gynecologic cancers can be diagnosed by a gynecologic oncologist even at very early stages.

Ċ Most women are still unaware of their risk factors and the early symptoms of gynecologic cancers, which can easily be confused with common gastrointestinal illnesses, menopause, or periomenopause.

I hope this information answers some of your mother-in-law's questions.

Best regards,

Unread 10-16-2003, 12:46 AM
All Gyn Cancer Sisters!

Hello everyone!

Havn't been to the site for awhile, got LOTS of reading to catch up on. Hope everyone is doing well.

This post caught my eye and I have just finished e-mailing my Rep.

's to all

Debbie [withope]
Unread 10-16-2003, 08:13 PM
thanks for the support

i sent in my support for this bill. Thanks so much for so much information ya'll . What a bif help . I wll tell my mother in law right away so she will supportthis bill too. More women need awareness. And I think it is great that we have a new law ready to make more women aware of the risks and can save a life of a mother, daughter, wife ora friend.

We don't have breast cancer and I have felt left out for so long. I think it is great to spread our cancer awareness too.It is more serious as it takes our very core of womanhood, hormones, as well as lylmph nodes and nerves. I feel finallly advocated and proud to be a little part of helping someone else.

Margret puts it jsut perfect for all of us and i thank her for letting me use it too. Women who wear teal (that's all of ushysterectomy uterine ovarian, cervical, vagainal cancer sisters) are women of steal.

Once again thank you

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