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adenocarcinoma in situ adenocarcinoma in situ

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  #1  
Unread 10-09-2003, 04:29 PM
adenocarcinoma in situ

Hi everyone. I am new to this group as of today. I am 31 years old, am not married and have never had children, though I am with a very supportive and great man right now.

A few days ago I got a call from my family doctor that my pap smear showed abmormal results and he said I needed to go to a gyno right away for a biopsy. This scared the heck out of me!

Well, it got even worse when I went to my gyno and he told me my pap smear indicated the rare "adenocarcinoma in situ" and it needs to be looked after asap. Not only did I have a biopsy of my cervix, but also of my uterus (ouch!). Now I have to wait a long 2 weeks before my test results.

I have done much research on this issue, and it seems like if this diagnosis is accurate, I could be looking at a hysterectomy because of the fast and agressive nature of this type of precancer. Cone biopsys might not get it all. The thought of this truly rips me apart, as I would like to start a family someday.

What should I expect? Is there any other treatment available that would still allow me to have children?

I am so glad I found this site today while researching. I have ready many of the comments from all of you and it is great to know we are there to support eachother.
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  #2  
Unread 10-09-2003, 04:51 PM
adenocarcinoma in situ

I faced the same situation, but they could not find anything to biopsy cervically in the doctor's office and couldn't get inside to do uterine biopsy (stenotic cervix). So I had a cone biopsy last month. I can't remember the statistics, but I think that in 90% of the cases, a cone biopsy removes all of the bad cells and no further treatment is necessary. (Other than close monitoring)

I'd take it one step at a time and hope for the best. Is your doctor recommending the cone as your next step?
  #3  
Unread 10-09-2003, 05:41 PM
adenocarcinoma in situ

Actually my doctor hasn't recommended anything yet. That will be done in two weeks when I go for my test results. Maybe I am jumping the gun, but I am trying to prepare for the worst right now I guess, though I know I should be thinking positively.

I guess in two weeks I will better know what I am facing. He did tell me a cone biopsy was an option, but that all depends on how bad (or good) the results are.
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  #4  
Unread 10-09-2003, 06:27 PM
adenocarcinoma in situ

It might be worth you doing a search on this forum as I'm sure I remember someone going through something incredibly similar very recently and I think in the end she managed to go for a cone biopsy to enable her to have the chance to start a family. There was quite a lot of correspondence on her thread. I think it was adeno-in-situ as well. I'm sure that a good gyn/onc can help you make the right decision when the time comes and the results are in. I really know the shock and worry you're going through - it always seems to come as a bolt from the blue. As everyone will tell you a gyn/onc is your best doc in such situations. am keeping my fingers crossed for you. wish best wishes Debs
  #5  
Unread 10-10-2003, 05:56 AM
adenocarcinoma in situ

sandeelion,

I'm sorry this is happening to you. I am 33yrs old and found out in June that I too, had adenocarcinoma in situ. I had a cone bx, but that didn't remove all of it and I had a total abdominal hysterectomy on 8/18. They do the cone bx to give the cancer a stage and to see if it can all be removed and decide what the next step may be. Hysterectomies are do not always have to be done. Sometimes the cone bx gets it all or sometimes they can just remove the cervix and leave the uterus, that way maintaining your fertility. I know there are some woman on this site who have had exactly that and I am sure they will be along soon to offer you more support and information. I know what a scary and incertain time this is for you. Are you seeing a gyn oncologist? They are the best when it comes to cancer. Get a few opinions and do what is best for you and your health. I wish you the best and hope everything turns out okay. If you need someone to talk to feel free to email me. I'll help you anyway I can. Take care
  #6  
Unread 10-10-2003, 06:47 AM
adenocarcinoma in situ

Thank so much for all your support and advice sisters. I guess now all I can really do is wait for my results in two weeks. My gyn already told me that if the results aren't good, he will make sure to send me for at least two more opions if I wish and send me to a cancer specialist so I can make the best decision for me.

Everyone tries to tell you your life is so much more important that a uterus, but when I think of the children I can never have, it just doesn't make me feel so lucky after all.

When I get the results on October 21 (3:45 pm to be exact) I will make sure to let everyone know and we can deal with what I am up against. I guess there is always some chance that it may be good news - I can always hope for the best.

Oh yeah, how long should I expect to bleed after my biopsies? I am still bleeding (a bit) and it has been three days. Just wondering.
  #7  
Unread 10-10-2003, 08:38 AM
adenocarcinoma in situ

Hi Sandeelion,

Sorry you have to go through all of this right now! Just wanted you to know that I was diagnosed with early-stage invasive cervical adenocarcinoma (also when I was 31), and I had a radical trachelectomy as a treatment. This is where the cervix is removed, but not the uterus. Also, the surgeon takes lymph nodes to make sure that the cancer hasn't spread. Some of the pioneers of this surgery are in Canada (Toronto, I believe). Also, as some others have posted, a cone biopsy can sometimes completely get rid of all of the cancer cells. So you may have a couple of options other than a hysterectomy.

This trachelectomy is fairly new and not without its own problems, but it does maintain the possibility of fertility. Post or send me a PM if you'd like more information, and good luck to you. Waiting for results is the worst!

Beth
  #8  
Unread 10-10-2003, 08:55 AM
adenocarcinoma in situ

Sandeelion-

They weren't able to get to the area of concern on me with the type of biopsies you had (so I had no bleeding), but your doctor should have given you a timeframe for bleeding/spotting.

If you have a cone biopsy, which I suspect you will (and have great chances for fertility), I didn't really bleed much at all until about 5 days after when a medicinal "plug" was passed and then I had spotting for about 2 weeks, followed by my period that was a little heavier than usual.

To reassure you a bit, if your doctors know that you want to have babies, they will do everything in their power to balance your treatment with your desire to maintain your fertility. Remember that you are on a site that focuses on the issues surrounding choices for hysterectomy more than on that than successful treatment of CIN/CIS without hysterectomy.

But we'll all be here for you either way you end up going.
  #9  
Unread 10-10-2003, 10:03 AM
adenocarcinoma in situ

(((Sandeelion)))

Welcome to Hystersisters! I'm sorry to hear of all you are going through right now. Abnormal PAP's are really a stressful thing in a woman's life.

First, I would like to recommend that you go to see a gynecologic oncologist. They are the experts when it comes to female cancers and precancers, and they know all the most current treatments and surgical procedures. Clearly you want to consider every possibility for treatment since you are still interested in maintaining your fertility. You owe it to yourself to look at all of the options. You might like to do a search on trachelectomy by using our search button at the top of the page. You'll find some good threads that discuss this procedure.

Hystersisters. com is neither pro-hyst nor anti-hyst in nature. We believe that a hysterectomy is a major surgery and that all treatment options should be explored before deciding on a course of action. Your physician is the best person to help you decide on the best course of action for YOU. Several members have come in long enough to discuss hysterectomy concerns, but ended up successfully treated with less invasive means than a hysterectomy. If you should decide that a hysterectomy is your best choice, then we will be here to support you through your surgery. If you decide that you do not need the hysterectomy, then we'll be here to celebrate that with you and support you during your other treatments. Either way, we want to wish you a happy, healthy future. Please keep us posted on how things are going!



Oh--I typically bled for about one week or so after a cervical biopsy (light spotting). Please call your doctor if you have any concerns about that or if your bleeding becomes heavy or has a bad odor.
  #10  
Unread 10-10-2003, 10:30 PM
adenocarcinoma in situ

I just want to say thank you so much for all of your advice and support. I am so thankful for finding this great site!

Right now I have a (long) week and a half to wait for my results, but I feel like when I go in there to face the music, I have alot more information, questions and alternatives for treatment.

I will let you all know what happens in a little over a week!

Thanks again.

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