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Unread 10-20-2003, 07:33 AM
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I am so glad that I decided to get on today after a long time away from this forum. I thought that I was going insane because I too was left with "one good ovary" and now having as much pain as before my hyst. Dr.scheduled a 11/13 date for me to go back in and have it taken out and check for adhesions and more endo. Thanks for letting me see that I am not alone or insane in this reaccuring battle. Hope all your outcomes are fantastic and that we all have a pain free Christmas!
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Unread 10-20-2003, 01:38 PM
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I'm right in here with you ladies. Had a tubal (abdominal incision) in '93, one lap about 3 years prior to that for a suspected tubal pregnancy, gallbladder removal via lap in '97, then a TAH/LSO a year ago. In the back of my mind I KNEW I would continue to have problems with that ovary. In fact, I'm angry that it was left as endo was burned off of it. Anyway, I'm dealing with pain 24/7 too and cyclic symptoms that are getting worse each time. I'm miserable and will be going back to the GYN as soon as I can get in!

Wishing all of us healthier days ahead!
Unread 10-22-2003, 01:48 AM

Sorry I haven't been on in a few days. I developed a terrible fever last week. (103) with swelling. I'm on antibiotics for an infection in my abdomen, from the pressure and swelling from all of this mess. My fever is better and work is pressuring to continue to work until next Sunday. It's just so painful! My superiors are female....get this....we've never heard of endo that bad. Can you document it? My doctor was like "What?!?!? Bring it on!!" LOL We're all going to get through this. Right? Today is a not a grand day for me. Tomorrow will be better. I'm taking off so that I can get some rest and pain meds....because I have to work Thurs-Sat out of town.

I'm just tired of the hurt.

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Unread 10-22-2003, 03:45 PM
I hear you

Well, I am hear to tell you that you are NOT alone. I had Hyst in Jan, 2003 and in July had to have left ovary removed because of a cyst that caused to whole ovary to rupture and the Endo was back. Wanted to keep my right ovary (against Dr recommendation) and now I have an appt with Dr tomorrow to discuss the options. I feel trapped, either HRT if ovary is removed and pain if it is not. I find this site extremly helpful but somewhat depressing as there still is no one answer. We can only find out what works for us as individuals. I can tell you that from the research I have done on Endo. the problems we are having seem to be common. It is a very tough desease to fight. Hang in there and I will try to do the same.

Unread 10-22-2003, 05:49 PM
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Dear Brakr,

You hit the nail on the head with your comment about feeling trapped! I have been feeling that way about my upcoming surgery. There don't seem to be any "good" choices...either no HRT, or HRT with risk of endo, or ovaries with definate chance of endo (and pain)....

I have had pelvic pain for the better part of 13 years now (from endo, adeno et al). I recently saw a Gyn-Onc specialist at Mayo for my continuing pain problem. I think the following comment he made in the letter he wrote to my doctor is important for all endo/pain sufferers... he wrote,

"It has been my experience that patients with chronic pelvic pain may improve their pain condition but never remain pain free. Whether it is because there is a brain imprint left, or for other reasons, the patients never become totally pain free."

I was also told this by the two pelvic pain specialists I saw.

Many hugs!

Unread 10-22-2003, 09:31 PM

I totally agree with both of you. Sarah, thanks for sharing that interesting tid-bit about the brain print. Brakr, I too wish there was a clear cut solution. It would seem to take at least some of the stress out of this. I'm interested in hearing how Sarah does. I think it's fabulous that the Mayo is now in on her treatment. Here's to hoping that my daughter will be able to have more informed doctors due to all of the nastiness that we go thru. I hope she never needs it, but I want it to be there if she does!

Talk to you ladies later....I have to pack for my last business trip before the castle.

Unread 10-24-2003, 01:30 PM

I have made the decision to go ahead and have the remaining ovary removed on Mon Oct. 27th. Not sure if I made the right decision but I have great faith in my Dr and that was her advise. Will try to keep you posted on if it was the right decision.

Unread 10-24-2003, 01:58 PM
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Oh, many big (((hugs))) and prayers for your surgery on Monday.

My doctor also told me I should rely on the judgement of the Mayo doctor... but it is hard to give that decision to a surgeon to make or not make when you are asleep. I think it would be easier for me to be able to decide ahead of time... if I just knew what he would find it would make that easier

Have a good weekend and enter your surgery with great optimism. Hopefully you will be pain free... if not right away within a few weeks.

Please post with an update when you feel up to it.

Unread 10-24-2003, 08:35 PM

Hi Brakr,
I wish you all the best with your surgery. May this bring you the helaing you deserve. Let us know how you are doing. And Dixz, I hope you are doing ok and will be able to be pain free soon. It;s so hard to work and go through this. I am off now again for 4-6 weeks and it is not what I wanted or planned. Hang in there everyone.
Love, Light, Blessings

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