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End of my thread! End of my thread!

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  #1  
Unread 10-17-2003, 10:03 PM
End of my thread!

It has been 6 years since my AH I still have both ovaries, no cervix, no sex drive no energy, I am in constant pain in my pelvic region, I have constant watery stools, low grade fevers all the time, and I am getting no where with the docs. My Primary care Physian sent me to a lady ob/gyn who basicly blew me off saying I need to relax. I am too stressed out. When I asked her if there was a possibility that I could have scare tissue causing my problems she told me that she nor any other doc is going to explore that with me or open me up because they would find nothing and suggest I go see a shrink! Right after my hyst. I was jumping on a trampoline, I landed wrong dislocated my right knee I have had my acl repaired and another surgery to remove scar tissue that was hindering the movement of that knee. I have very little movement in the knee again and have been putting off surgery to remove scar tissue build up because I feel like crap else where! I feel bloated, if I eat I am in and out of the bathroom with diarraih & sometimes throwing up for hours. I have lost 20lbs in the last three weeks because I don't eat breakfast or lunch or snacks because the guys at my office are complaining at how much time I spend in the bathroom. The pain gets so bad at times I am doubled over and on the floor this can't be imangined can it?! I feel like I am going crazy, and if I hear one more time that it is all in my head I am going to scream in the docs face. ANYONE else out there that exprencing anything like this ?
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  #2  
Unread 10-17-2003, 10:51 PM
End of my thread!

Dear RedHairAngel,

You are really having a tough time both physically and with the doctors. I can imagine why you are at the end of your rope!

I don't have problems like you describe... just pain. But I did want to suggest that maybe you should see a Gastroenterologist because your symptoms seem to be very much related to your Gastro-Intestinal track from what you describe... Has your PCP suggested that... if not you may want to ask him/her (however your insurance works).

Another thing I have found helpful, especially when going to see new doctors is to actually sit done beforehand and write down briefly what I want to tell the doctor. I will actually type it up in very short paragraphs... I will have one chronological list of events (ie. surgery on this date, this symptom started on this date etc.) and then end with a summary of how I am feeling now and what things help and what things make it worse. Then when I see the doctor I can give him/her the list and review it with them. This way I make sure to get everything across and they actually can refer back to it when they make their own notes/dictation.

I do hope you find some answers. It does sound like your symptoms are being ignored. Keep us posted.



Sarah
  #3  
Unread 10-18-2003, 02:06 PM
End of my thread!

((((Kiddo))))) I'm so sorry you've been have such a rough time since your hyst

You're in the right place to find others who fully understand that the pain and symptoms you're experiencing are not all in your head

As Sarah suggested, a gastroenterologyst might be the best resource for you, at this point. Several of the symptoms you describe could be caused by a disease of the digestive symptoms. Sometimes, these conditions are triggered by a trauma to the body, such as a hyst. If there are other causes to your problems, the gastro could then refer you to a specialist who would be able to help you.

Furthermore, I'm providing a link to valuable resources on Adhesions Adhesions Hopefully you'll find some insight on this terrible condition.

Sending lots of s your way. Hope you find answers real soon. Please be sure to keep us posted.
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  #4  
Unread 10-19-2003, 04:24 PM
End of my thread!

Dear KiddoB33,

Have you been to an endocrinologist? The ovaries are part of our endocrine system and although you kept yours, that doesn't mean they are working right. Often a hysterectomy severes the blood supply to the ovaries and they die; NOT to be confused with natural menopause in which the ovaries continue to produce important hormones throughout our entire lives. The endocrine system is made up of the pituitary, thyroid, adrenal, kidney and ovary/testes glands. They all work together. Among the many functions that these glands control are sex drive (first clue yours may not be working), bowel and colon function, urinary, heart, vascular, weight, bone mass, sleep, hair, skin, vision and on and on.

I would seek out an endocrinologist who specializes in menopause or infertility. If you can find one who is also a GYN that would be best. Ask to have your hormone levels tested ORALLY (not by blood).

An endocrinologist/gyn is the doctor who has helped me the most in this journey through post-op you-know-where! I too went through the family practicioners, internist, therapist and blah, blah, blah. Another woman told me to see an endocrinologist but when I asked my other doctors I was told, "no, they deal with diabetes and thyroid diseases," so I didn't go. Once, I even called an endocrinologist who did just deal mainly with diabetes and was told the same thing. FINALLY I looked up one who is also a GYN and was told, "Of COURSE you should be seeing an endocinologist!" This wonderful man has since helped me very much. So many of us have heard the "all in your head" baloney. It's NOT all in your head. Find a doctor who is current in the lastest research and who knows that the ovaries are more than egg sacks.

I know this is awful but you have to educate yourself now and get the treatment you need. When you feel just awful, this is a very difficult task, I know. But if you wait for your old doctors to change their evaluation of you, you may have more problems to deal with than you do now.

GBest wishes,
  #5  
Unread 10-24-2003, 11:21 AM
UpDate to End of my Thread

Thank YOU, THANK YOU for the wonderful advice and support! I have been feeling very much alone, here in central oregon. God bless you all and those of you who have posted your struggles know that I am praying for your healing. Those who have posted my thanks and gratitude for your willingness to support others in their struggles, GOD Bless you ALL!!
I went to my Primary Care Phys. (PCP) who sent me to a gyno who told me it is nothing all in my head see a shrink. I went back to my PCP who thinks that there is an underlining problem and has sent me back to the surgeon who did my colonoscopya while back( he specializes in gasatro/encronology) . I see him on Monday, in the mean time I am trying a low dosage estrogeon cream, and a powder to help with my bowel problems.
So not only do I hurt but I now have hot flashes too LOL. I haven't lost my sense of humor yet so I know I am not gone mad, crazy maybe but not mad. I now have some hope that there are/is a doc out there that will listen to me! MY search continues! MY hope lives on!

Thanks again for your support.
God Bless you All!
Debbi
  #6  
Unread 10-24-2003, 12:47 PM
End of my thread!

Dear Debbi,

I am so glad you posted an update. I do hope you find some answers. Living in central Oregon must be like living in NM from a doctor standpoint.

Have you visited the Hormone Jungle or Desert Oasis forums? You may find those helpful with your hormone problems and questions. I need to visit there too so maybe I will see you there!

I am sorry your GYN dismissed your symptoms but at least your PCP is following through.

Please let us know what/if you find out anything.

S

Sarah
  #7  
Unread 10-26-2003, 01:35 AM
cure?

Hi, your symptoms are exactly the same as those
of Dr. Alvin J. Stjernholm....so this may not be hyst. related.
Dr. Stjernholm suffered abdominal pain and vomiting for years
after a childhood accident (hit his back swinging on a rope
from a tree)...Met up with a chiropractor who corrected
a misaligned pelves....End of pain and vomiting.
Just a thought hope it helps. Hope you mend soon.
Leigh
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