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Now I really need help! Now I really need help!

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Unread 10-21-2003, 01:00 AM
Now I really need help!

I posted awhile back about dr following some cysts. Went back for a 3 mo ckup and saw nurseprac and cyst had grown from 19mm to 30plus. Went back 2 weeks later, saw dr.and cyst looked like it was resolving although it was still 10x17 or so. I wanted him to know I was a bit anxious because I had a friend who had a fluid- filled cyst that was cancerous. He suggested that to give us both peace of mind he would run ca125 which he expected to be normal. We did discuss the fact that ca125's are not always indicative.
Had a call from him this a.m. and he told me my ca125 came back high(37.1), just over the top of "normal" (35). He said I needed to have my ovaries removed tomorrow morning! Had to wait for my husband to get out of a mtg to go for pre-surg consult. Went in the afternoon and seemed dr had almost totally changed his mind, yet had not changed it. He said he is obligated by law to tell me I have a high ca125 reading and has to offer me a treatment option. He says surgery to rule out cancer (BSO for complete path workup) is only surefire way to check this out. If he opens me up and doesn't find anything he is obligated to take out the ovaries since I have an elevated ca125. Only exception would be if he finds endometriosis. He told me to expect ovary removal if I go to surgery.
Now for the twist: - he said he could not tell me whether or not to do this! He would like to think I am healthy and that I can keep my ovaries (I'm 45) 'til menopause. But, there is always that minute chance that I would be the 1 in 10,000 that would have cancer. So, he said he could not tell me what to do because I am the only one who can take that responsibility; and, it has to be a decision I am comfortable with. He talked with a gyn-oncologist this morning and I think he basically told him I was "phobic" about ovarian cancer so they both tho't surgery would be best. I am not phobic, I just like to be well-informed about my health.
I am SO confused! Is ca125 of 37.1 enough reason to have my ovaries out? What will it be like hormonally without ovaries? Can I wait another 3 to 6 months safely? Should a Gyn oncologist do the surgery? Most importantly, how do I quickly get answers to all these questions?
I had to cancel my surgery for tomorrow a.m. due to a family emergency. I think it was best as I need time to think this through. Right now my brain is fried. I need some help in knowing when/if I should reschedule. Thanks so much for your help - I value the input of others who have gone before me!

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Unread 10-21-2003, 08:03 AM
Now I really need help!

If you can, I would go see a gyn oncologist for another opinion. My mother was just in a similar situation and the gyn oncologist was really able to sit her down and give her really good guidance. She was very confused and scared and he immediately was able to guide her and help her make the right decision. Good Luck.

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