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New here, lots to ask New here, lots to ask

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  #1  
Unread 10-21-2003, 09:25 PM
New here, lots to ask

Ok, I have to make this short cause I have to get up at 5am for work. Hi to all of you!!! I have heard wonderful things about this site. I am 26, have had female trouble since age 13, diagnosed with endo at 16, have had seven laps to remove it plus adhesions, had a hernia, and on and on, been on all hormone therapies, nothing has worked, endo always comes back. I researched a lot about this subject, for three years now I have been fighting to get a hyst and FINALLY they have listened and said "well, you're right, we can't say no because you really are right, you've tried it all, this is our only step left" I got this news at the doc today and I still can't believe it. They actually listened and now I may have a chance of having a LIFE!!! They have to refer me out cause my doc doesn't do surgeries himself anymore so they will call and talk to the other doc, set me up with a consult and we'll go from there. I am so full of emotions right now, so relieved, so happy, and still feel like it's not real. I would greatly appreciate any advice anyone can give on what to ask, what to expect in the couple months before my surgery. I'm sure I'll go through many emotions and that I need to physically prepare for this. Plus I just want to say hello to everyone and that I'm glad to have found this board and look forward to talking with you all.
-Maggie
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  #2  
Unread 10-21-2003, 09:48 PM
New here, lots to ask

Hi Maggie

I'm sorry you need surgery, but glad you've found Hyster Sisters. There is so much information, support and hugs...as well as some giggles, although we post op sisters giggle carefully. You need to read read read....posts and links...and ask questions. NO question is too silly or gross. We'll answer you honestly, about everything from the roller coaster emotions that seem to strike without warning to sex.

Welcome, Sister. We're here for you.
s
Cat
  #3  
Unread 10-21-2003, 09:51 PM
Hi,

Welcome maggiemay, it is good to have you here with us. I know you must be relieved to finally come to a decision about your health after all the problems you have had.

You will find a wealth of information here. If you go to the "home" page you can click on Pre-Op Articles and there is a list of helpful articles to read there.

Ask a lot of questions when you see your doctor and have a list when you go, so you don't forget what to ask. It is good to read and research all you can before your surgery so you will be comfortable knowing what to expect before, during, and after your surgery. I think it is the not knowing that made me anxious. The more I learned I felt better.

If we can help answer any questions just ask, everyone is here to help.

s
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  #4  
Unread 10-21-2003, 10:46 PM
New here, lots to ask

Hi Maggie,

you are the first person i have seen my age post so far.. the piece of advice i would share is in connectin to our age, i just turned 26 last week, but when you go to the surgeon and you sign all the papers, make sure they submit it to your insurance right away so that you can deal with any issues that may come up. My TAH was denied i had to have 3 appeal hearings with doctors in tow. even with cancer twice they denied me SOLEY on my age. They said they couldnt justify it for a 25 year old due to hormone issues. I had cervical cancer 2 years ago and uterine cancer this time, plus fallen bladder, endo, adeno and large recurring cysts on my ovaries.

If this is what you and your doctor feels you truly need to do, dont back down, dont be afraid to fight for your health. stand up and dotn take no for an answer.

but make sure everything is submitted early because they didnt deny mine until 2 days before surgery, that made for alot of stress and running around right before i went in. I had to take extra blood pressure meds because it was so high. (i have been on those since 16) i was a mess by the time my day came, i was so afraid something was gonna go wrong again.
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