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Do ANY of these symptoms sound familiar to ANYONE?? Do ANY of these symptoms sound familiar to ANYONE??

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  #1  
Unread 10-21-2003, 10:57 PM
Do ANY of these symptoms sound familiar to ANYONE??

I wanted to post this seperatly than my other post so I sont mix them together.

I have been having some very painful symptoms and I am not sure if it is due to my hypothyroid or something else so I thought I would throw them out here and see if anyone can help steer me in the right direction.

First, I should tell you all I have a PCP that I love dearly. She is the first out of about 10 different Drs that actually listened to my symptoms that I have had for years, and sent me to the right specialists.

For many weeks I have been having horrible pains in parts of my body that I have NEVER had before! With all of the surgeries and repairs and back problems I have I have not been able to get in to see her yet.

I have 2 places (one on my inside of my left calf and one on the outside of my left upper arm) that hurt to touch and feel bruised but have done nothing to cause any bruises or hurt these areas. I also have joint pain in my knees and hands REALY bad sometimes. Almost to where I cant walk for a while after I get up and it finally eases a bit. My left foot also hurts pretty bad as well and i Feel alot of body aches almost daily. especially if I do any tyoe of physicaly activity. By activity, I mean just going to the store or doing ANY tyoe of housework. I also am having alot of pain in my neck, shoulder and hip area that is sore to touch.

I have been using Absorbine JR. and it helps some but only lasts for about 30 minutes.

Does ANYONE have any idea what this sounds like?

Thanks for ANY info. I am trying to get in to see my PCP but until I can get an appt I thought I would run it all by my sisters!!

HUGS all around!!
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  #2  
Unread 10-22-2003, 08:11 AM
Pain

Hi,
I'm sorry for this new kind of pain you are having. In my case, my knee was really swollen and hurting, and it seems everything else was hurting too. When I was in the hospital last week, for my weird ovary thing (read your other post) I also asked my family doctor about my knee and they took and x-ray and I have arthritis on top of everything else. I think I have it in other areas too. What a drag. I hope you don't have it, it seems a lot of us suffer from joint pains post-hyst, I swear the surgeries bring it on or something.
Love, Light, Blessings
Druid
  #3  
Unread 10-22-2003, 04:12 PM
Do ANY of these symptoms sound familiar to ANYONE??

I have fibromyalgia and that sounds just like what started happening to me when I got it. You might want to check that out with your primary doc.

Sometimes surgeries or other bodily trauma can trigger it.
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  #4  
Unread 10-23-2003, 07:17 AM
Do ANY of these symptoms sound familiar to ANYONE??

Sounds like FM to me, too. Reading your post brought back memories of how I felt when I first came down with CFS and FM (together). Since those diseases are diagnosed mainly by a process of elimination and observation, it's important not to jump to conclusions but to keep it in mind.

Sorry you're having such problems. It's also quite possible that these things will get better when the rest of your body is in order.
  #5  
Unread 10-23-2003, 07:42 AM
Do ANY of these symptoms sound familiar to ANYONE??

Thank you all so much for your help!!

I was also thinking fibromyalgia but was not sure and still am not going to self diagnose myself. I am going to let them do what they need to do to get to the source of the problem.

Is there anything they can do for Fibromyalgia? I am on Naprosyn as well for my back and it does seem to ease the pain (except the areas that feel bruised) a bit but I am also on morphine and you would think that would keep ALL of the pains away but it doesn't!!! In fact my Pain management Dr added an extra dose of the morphine in the middle of the day and all it does is wipe me out. He says he does not believe in the instant release drugs such as what I was on before the morphine (tylox...oxycodone) and darvocet, percocet, demerol,hydrocodone or any other fast acting meds due to the addiction rate. WELL, isn;t morphine just as, if not more addictive??? I just left a message with him because I cant handle my back pain in the afternoon since it is suppose to be a 12 hour med and it only works for 8 hrs and I have to wait for 4 more hours in pain to take my next dose or take the mid-day morphine and sleep the day away!! I am taking a class this term and cant do it sleeping!

Anyway, Thanks again and I will let you all know what I find out about all of this weird pain I am having!

HUGS!
  #6  
Unread 10-23-2003, 03:48 PM
Do ANY of these symptoms sound familiar to ANYONE??

I take a mixture of different medications as do most people with fibromyalgia. Different medications work for different people. I wish there was just one thing that worked.

The best relief for pain, and what I take, is percocets as needed.
Very gentle stretching will also help day to day. Alot of people, including myself, find that anti-seizure drugs also do a remarkable job with neuropathic pain.

K
  #7  
Unread 10-27-2003, 03:16 PM
body aches and pains

hi, sorry you are struggling. I can sympathize and am curious as to what your DR concluded. All my life I have been actice and healthy..this last surgery (which took my last ovary) wipe dme out, I have not been the same. Within a weeks, every joint in my body hurt, i would wake up with my knuckles curled in pain , i have pain shooting in my outer, upper arms, legs, hips....i dont get it. I have insomnia also and am just plain exhausted 9 out of ten days. At first i thought it was just me and stress, you know, doing it to myself. Now i see that SOMETHING did change, permanently and that i will have to adjust-i cant have my old life back. That surgery ruined my life. I feel old, in pain, drained and depressed. Its been 9 months. I am only 43 but feel 80. Angry? yeah. Hope things work out for you adn if you have any helful in sight into the pains, please share!

thanks
  #8  
Unread 10-28-2003, 10:15 AM
Do ANY of these symptoms sound familiar to ANYONE??

I have had CFIDS and Fibromyalgia for 24 years. For the first three years I was bedridden from pain and fatigue. Gradually I learned various ways to deal with pain. I didn't use pain killers but fouund other ways of dealing with pain. As I got more adept at managing my life I was more active and could manage pretty well, although I have remained totally disabled. Pacing myself is probably the most important thing I do and sometimes of course I don't do that very well. I have recently had a severe flare and am accepting treatment with narcotic drugs. But I still prefer the other ways of managing - deep relaxation, acupuncture, meditation, gentle gentle yoga, etc. Check out the Fascia section at www.extensionyoga.com. I've learned that for me anyway, prescribed 'normal' exercises make things worse.
  #9  
Unread 10-28-2003, 01:17 PM
Do ANY of these symptoms sound familiar to ANYONE??

((Pam)),
I also have FMS/CFS...the symptoms sound very much like the onset of mine as well I was dx'd w/mine in late 2000 several months after my TAH...as someone else stated this surgery, from trauma to your body along w/ Hormonal changes can trigger this often disabling syndrome. Unfortunately, there is no one known *Treatment Protocol*:-( For many it takes a lot of trial & error to get the right mix of meds, diet & lifestyle changes. There is no cure & it is something you have to learn to manage. For me, stress & lack if rest is a huge trigger for bringing on what Fibro sufferers often refer to is a *Fibro Flare* I have sought out many opinions from Rheumatologist's & other Specialist claiming to specialize in this area, all to no avail. I have underwent multiple treatment options from various meds, massage therapy (Deep Myofacial Release), TENs unit, Physical Therapy, Trigger Point Injections, exercises & other options in an attempt to relieve some of the pain & symptoms. What has helped, me the most is to realize my physical limits & not over do, get plenty of rest, keep down the stress levels. I am on Narcotic therapy as well but they don't do much in helping my FMS pain. I do take Muscle relaxers (they help the most) & Celexa, an antidepressant. There is a wealth of info available on the web..just watch out for the *Cure-all sites* they've been advertising many OTC remedies that they claim are a *cure* for this I'm gonna list a few sites that have been of the most help to me in better understanding this DX, the symptoms & available treatment options:

Identifying Fibromyalgia:
http://health.discovery.com/centers...erve_fibro.html

Treatment of Fibromyalgia in Detail:
http://www.fibromyalgiasupport.com/...cle.cfm/ID/3594

Symptoms & Conditions related to FMS:

  Quote:
Pain:
The pain of Fibromyalgia can be wide and varying. One patient may experience a deep muscular aching or burning, while another may complain of throbbing, shooting or stabbing pain, either mild and intermittent or deep and constant. Quite often the pain and stiffness are at their worst in the morning and in the muscles used most commonly, like the neck and shoulders. Unlike the pain commonly associated with arthritis, the pain can move from one body part to another, affecting the back one day or hour and the feet the next.

Fatigue:
Again, this symptom varies widely from patient to patient. Some experience mild fatigue (often associated simply with the poor sleep that accompanies Fibromyalgia) and others are so exhausted they have trouble getting through the day, as if they had the flu. The fatigue of Fibromyalgia is sometimes called "brain fatigue," leaving its sufferers completely drained of energy. This exhaustion may make some people feel lethargic and as if their limbs are too heavy to move. Similarly, they may have trouble concentrating as of they are sleep-deprived, even if they have had plenty of sleep.

Sleep disorders:
Research has suggested that Fibromyalgia sufferers usually have an accompanying sleep disorder called the alpha-EEG anomaly (the same anomaly associated with chronic fatigue syndrome). The research found that Fibromyalgia patients typically fell asleep without much trouble, but their deep sleep was regularly interrupted by atypical rapid brain activity. Patients appeared to spend much the night in "half sleep," as if they were somehow fully asleep and yet wide awake at the same time. This causes Fibromyalgia patients to wake up unrefreshed in spite of having slept the whole night through.

Gastrointestinal Problems: Irritable bowel syndrome, nausea, abdominal pain, cramping, bloating, constipation and/or diarrhea are common complaints associated with Fibromyalgia.

Chronic headaches: Roughly half of Fibromyalgia patients also report migraine or tension headaches. While the association is not clearly understood, it clearly adds to the suffering of the patient.

Chest Pain, Problems with Equilibrium, Genito-Urinary Problems,
Depression And Anxiety, swollen feeling in extremities
dry mouth & the list goes on..


http://www.fibromyalgia-symptoms.or...a_symptoms.html
There are several links & articles in our Resources Forum which is located here:

https://www.hystersisters.com/vb2/sho...threadid=76750

I hope these are of some help:-)
Good Luck (((Pam))) Pls keep us posted on how your doing...((((((((((hugs)))))))))))
  #10  
Unread 10-29-2003, 08:26 AM
Do ANY of these symptoms sound familiar to ANYONE??

Thank you all so much for all of the input and especially Sheri for the abundance of information!!!

I have an appt tomorrow with my PCP to go over all of this and she is probably the only Dr I have EVER had that actually listens to me and my symptoms!! I could sit and talk to her for hours!!

I will post when I get home tomorrow (I have to go to work till 6pm) and let you all know what the next step is!!

Thanks again! I love you all!

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