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HRT and Endo - How much Estrogen? HRT and Endo - How much Estrogen?

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  #1  
Unread 10-23-2003, 12:35 PM
HRT and Endo - How much Estrogen?

Hello Ladies,

I am 7 weeks post-op from LAVH-BSO for fibroids and endo.

My hormones have been out-of-whack for years due to Fertility treatments (which I knew would make the endo and fibroids worse, but was worth it to try and have a baby) ... followed by Lupron to try and quiet everything down.

The Lupron helped the ab pain post-fertility, but triggered arthritis in all my paired joints! After Lupron, I was on cont-BCPs and later Depo-Provera to stop periods, with low dose add-back Estrogen to try and help the joints.

So ... now ... I am cleared out -- NO MORE PERIODS

... and I am taking:

Vivelle Dot .1 mg - changed Wed/Sun
OTC Progesterone Cream - on patch change days
2% Testosterone Pharmacy Compounded Cream - on patch change days

Anyone else take Estrogen to ease joint pain/arthritis?

I am wondering if this is enough Estrogen? Up until now we did not want to risk aggravating the endo and fibroids. All visible Endo has been removed, so I am wondering if I should increase it to help the joint pain?

I am also feeling sweaty all the time -- night and day. Not really "hot flashes" but just sweaty all the time. I hardly EVERY sweat so this is unusal for me. I wonder if now that my ovaries are gone I need a little more estrogen.

My Dr. also said because of the Endo I should use OTC Progesterone Cream to oppose the estrogen patch. If there are any left-over patches of endo this help keep it quiet.

For Libido (what Libido?!) I am using the Testosterone cream and slowly going off Prozac (presribed for pain).

I am really interested to hear your experiences ... I HAVE talked to my Doctor about this and he is really clueless. To him it's all trial and error. So I am anxious to hear what you have experienced!

Thanks.

Robyn
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  #2  
Unread 10-23-2003, 03:31 PM
HRT and Endo - How much Estrogen?

Robyn,
I didn't have endo so can't give a firsthand experience regarding that issue. From what I have read here it is best to be on the lowest dose possible and have read the same thing your doc said about using progesterone to help offset the estrogen stirring up the endo.

You are still fairly early in your recovery. My experience during that first year post op was that I was much warmer than normal. Our a/c bill took quite a hit for awhile. I also noticed that certain things would make me warm; like my morning cup of java. Any warm liquid would literally warm me up from head to toe. The good news is that things eventually settled down and my body temp is pretty much back to normal.

Another thing I noticed is that in the beginning my body did seem to need more estrogen. I am 4 years post op and am now using about 1/2 of what I was initially. If your only symptom right now is a feeling of being warm I would hesitate to up your dose just yet. Give yourself a little more time. Keeping a journal for the next few months can be very helpful. Make a note of doseages and amounts and just jot down any symptoms you may be having. The journal was very useful for me in the beginning. For example: for me the hot flashes were the last thing to go, there was a time where they were coming every 20 minutes. By keeping track of them I was able to see that although they were still coming, they were coming less frequently so I knew I was on the right track.



P.S. Don't forget to read the articles at www.hormonejungle.com There's lots of great info about hormones, symptoms of imbalance, necessary supplements to take and much more.
  #3  
Unread 10-30-2003, 02:43 PM
HRT and Endo - How much Estrogen?

I am almost 3 months post TAH/BSO for severe endo. I can't believe how much pain it was causing-it is so nice now without that constant pain, pressure and terrible periods. My Dr. wanted me to wait 6 weeks to begin any hrt, but I only made it 3. I was very dizzy-couldn't sit up. He started me on vivelle dot 0.05. It helped the dizziness, but I have continued to have terrible migraine type headaches 3-4 times a week. Nothing would help, even tylenol pm and a good nights sleep. He just upped my dose to vivelle .075, so I will see how that goes. I too feel warm all the time, especially after coffee in the morning! This is a big change for me as I have always been very cold natured. My husband and friends get a kick out of it. It's not just hot flashes but a more constant, throughout the day feeling of being too warm. I do know it takes many weeks for your body to notice a change in hormone levels, so I will give my new patch a while. As for testosterone cream, I haven't used any yet. Libido is just not there, but then the headaches haven't helped with that either. Good luck!
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  #4  
Unread 11-01-2003, 07:02 PM
HRT and Endo - How much Estrogen?

Hi Robyn,

You and I have the same surgical date. I had a TAH/BSO for endo and waited 6 weeks before starting any hormones. I thought I wasn't going to take any but the doctor said I'm too young (38) to not have any.

I am taking premarin .625 once daily and evening primrose oil capsules.

My main complaint was warm flashes, heartburn, and insomnia.

My main concern was vaginal atrophy and dryness.

My warm flashes are gone and my libido is functioning again. I haven't had to use KY, natural lubrication has been enough. the heartburn and insomnia are still there but my docotr is hesitant to try anything else. I need to lose weight which may help with the heartburn and I've had a lot of stress at work once I returned whihc may be contributing to my insomnia.

I'm going to stick it out with my premarin because overall I'm feeling quite good.

Take care,

Rena
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