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Severe Dysplasia Woes Severe Dysplasia Woes

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Unread 10-26-2003, 06:10 PM
Severe Dysplasia Woes

Had an abnormal pap which was followed by a colposcopy..OUCH then 3 days later I was informed that I have severe dysplasia and am to have a LEEP procedure 10/28/03. I am 38 and still want to have kids, but I am freaked out over this. If they are too zealous witht he procedure I could miscarry after 16 weeks due to cervical problems that can occur, but my main comcern is what if it is cancer? Is a hyster my only option? If it is not cancer am I facing a life of annual cutting & pasting of my cervix? Any info would help, and has anyone had a Leep recently? Is it a horror show?
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Unread 10-26-2003, 08:55 PM
Severe Dysplasia Woes

's Neesey! Welcome to Cancer Concerns!

I'm sorry that you are finding yourself in this situation. It's very stressful, isn't it?

No, the LEEP is not usually a horror story. Most women have it done without incident and feel essentially normal within a couple of days. I had mine under general anesthesia, but some women have it done under local. Ask your doctor about pain medication. I used Tylenol 3 for the 1st day and then switched to extra-strength tylenol. Everyone is different, though.

There is a small chance that you could develop an incompetent cervix. If you are monitored closely, they can catch it in time and stitch your cervix closed (circlage) to prevent a loss of the pregnancy. I had a cone biopsy in 1987. I was told not to get pregnant for at least 6 months. I was pregnant 6 weeks later (not planned). I was monitored every week starting at 12 weeks, and the pregnancy was maintained without difficulty. So, you might have problems, and then again, you might not.

We all worry that it's going to be cancer. Most chances are that if it says severe dysplasia now, it will probably be severe dysplasia. Once in a while, someone's is found to be cancerous, but it's usually very early stages in those cases. If it's dysplasia, then the LEEP takes care of the problem approximately 90% of the time. It's possible that they might do the LEEP, determine it's a little more extensive than they thought, and then follow up with a cold knife cone biopsy. A cone is sometimes used for very early stage cancers as well. If it's found to be cancer, and it's very early stage, you might be a candidate for the extensive cone, or for the trachelectomy (the cervix is removed, but the uterus is left so that future fertility possibilities are still there. The end of the uterus is stitched closed to form an artificial cervix.

Good luck to you! I hope your LEEP is successful and that they find it is only dysplasia that's completely treated with the LEEP. Remember to keep your follow-up appointments (early detection is important). Keep us posted on your progress!

Unread 10-26-2003, 10:00 PM
Severe Dysplasia Woes

Hi there, I had my LEEP done the first week of May, and had a local. It was not bad at all. I was not pain to where I needed any kind of medication, infact I don't think I had any pain. I just was so worried because I knew I was going on a cruise on the 18th of May, and didn't want to still be having bleeding or discharge. I wanted to be able to go snorkling and horseback riding, and I did without any problems at all.

Unfortunatly when I did my very first pap, 4 months after that, which was just in Sept, mine came back cervical carcinoma grade III. So I have decided its time. My surgery is in 2 weeks.

I hope your's will come out clear after you have your LEEP. And remember even if it don't, it does not mean you have to have a hysterectomy. This is just what my Dr. recommeded for me. I also did get a second opionion from a specialist too. So I feel confident about doing this, just very very nervous. But its normal.
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Unread 10-26-2003, 10:13 PM
Severe Dysplasia Woes

Most LEEPs and cone biopsies do remove all of the bad cells. I think the statistics is something like a 90% "cure" rate. I had 16 years between bad paps. Don't be discouraged, and, yes, it is normal to be fearful. But most LEEPS are done very quickly with minimal discomfort. I had a cone biopsy on 9/10 (hospital outpatient) and had only mild cramping for a couple of days. Keep us updated on your progress.

And remember, if your doctor knows you are interested in preserving your fertility, they will do everything in their power to work with you on that. (In my case, it was not a concern.)

Good luck to you!

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