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Unread 10-28-2003, 10:16 PM
main concern

a little history first time posting please bare with =).... this all started with urinary problems for three years. When just recently after seeing my urologist for a follow up from one of my numerous er visits. The CT i had done reviled a severley retroverted uterus w/ possiable fibroids( but were unable to verify because of the uterus postition) And was reffered to see my GYN as soon as possiable. Which i did that day and he recommended a hysterectomy. Now my main concern is cancer! I have not felt like myself for at least a year now always tired, severe back pain and before this i never missed a day of work for the previous six years, weight gain, deppression ( i am sure) and just scared... iI was scheduled right away... but due to my employer i was forced to wait a month.(i work for a hosp.go figure) wow i didn't know i had so much to say, but feels good to get it off my chest...My question is has anyone been diagnosed after hysterectomy with cancer or did you all know before hand thank you so much for letting me ramble....
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Unread 10-28-2003, 11:55 PM
main concern

Hi, Kmaz32.

Sorry that you're having so much anxiety, and also that you had to wait for your surgery date. Many of us here had to wait for our surgery date.

In most cases, the doctors won't know what's going on inside of you until they can get in there, look around and take some biopsies. Even if a tumor is found on a CT scan prior to surgery, it is not always cancer. In my own case, I had ascites (a fluid buildup), which made a cancer diagnosis fairly certain before I had the surgery.

Uterine fibroids are very common and are most often benign. If the doctors had seen something of great concern, they probably would have scheduled your surgery sooner.

You should definitely talk to your doctor about your concerns. But until your surgery, it's likely that there won't be any definitive answers. Until then, keep your faith strong, and educate yourself as much as possible. This site is a great place to learn. When is your surgery date?

Unread 10-29-2003, 08:18 AM
Good advice

You will find a ton of information here. Did your gyn do any tests?Pap smears? biopsy? Sounds like maybe not.. most fibroids are benign. I knew before I went to surgery that I had a grade 1 adenocarcinoma from an endometrial biopsy. So, the waiting was terrible and I had to wait 5 weeks for surgery after dx. That really is the worst part!!! Then, in the recovery room my sweet gyn told me she was really sure it was a stage 1a but wouldn't have confirmation until the pathology report came back in 5-7 days. I really didn't worry about it too much.. she gave me lots of confidence. I'm convinced that they are pretty sure of what they are looking at when they get in there. They don't open the uterus during surgery, particularly if they suspect cancer, but it is sent down right away and opened there and evaluated. Your surgeon will be informed while you are still "opened". Ask your gyn what he/she has planned if the path lab calls up with a cancer dx. It is far better to be "staged" if that is the case then and there and a gyn/onc is the best. Will one be available on standby? Ask about that too.. You are probably not even going to have to worry about it. Odds are, you're fine. Try hard to "worry" later if necessary.. I know that's hard to do, but the worry doesn't alter the course... I think you'll be just fine.
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Unread 11-03-2003, 10:59 AM
main concern


Thank you for your post. I am scheduled for a tvh on 11/6/03 after having 1 out of 4 biopsies taken during a coposcopy return as severe dysplasia. I also have recently had cysts on both ovaries. Not sure if they are staying or going at this point.
The waiting has been awful and I truly hope that the worrying will be for nothing.
Good luck and keep reading. This site has been wonderful information and is more comforting than most.

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