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ovarian cyst concern/question ovarian cyst concern/question

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Unread 10-29-2003, 07:24 PM
ovarian cyst concern/question

Has anyone out there been diagnosed with early stage ovarian cancer by a gyn who took out a small cyst (3 cm or so), and was it caught before it spread to other areas? Also, did anyone who was surgically diagnosed with adenomyosis have bowel problems, acid reflux and uncomfortable abdominal bloating problems in addition to that horrible pain?

I recently had a D&C and it didn't do anything for my period problems or intermittent spotting. In fact, now the blood just runs out like I'm urinating or something. I was on "continual" dosing for over twelve weeks, which didn't work to relieve the pelvic pain. I refuse to take vicodin unless I absolutely need it, but I've tried every antiinflammatory in the book.

My new gyn (this is my third) is scheduling me for a LAVH with right ovary removal and possible appendectomy in the next two weeks. He also ordered six viles of blood (goodness!) for testing, including CA125. I've never met anyone so thorough.

Anyway, I was just curious if adenomyosis can cause the kind of bowel pressure and bloat that ovarian cancer does. I've never talked to anyone who has had either. I've read some of the patient stories on this website though...
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Unread 10-30-2003, 05:05 AM
ovarian cyst concern/question

s Mel

I read your reply under Katie's post as well.
It sounds as though you have been through alot, with little results, and still remain very proactive with your problems. Good for you!!
One thing is unclear to me. Was it you that had a cancerous ovarian cyst?
If it was you, I would highly recommend that you see a gyn oncologist before you proceed with further surgery.
Stay in touch.

Unread 10-30-2003, 05:35 AM
ovarian cyst concern/question

Hi Mel,
Just wanted to let you know that Adenomyosis can definitely cause PAINFUL bowel, urinary, pressure, bloating and acid reflux problems. Adenomyosis causes swelling and bulging of the uterine walls causing pressure in your abdominal cavity that would not normally be there. This is what my pathology report showed that I had after my TVH on 07/03/03. I can say after several weeks of recovery, other than a little tummy swelling (once in a while) from the surgery, I no longer have any of the problems mentioned above. Boy, what a relief to no longer have the extreme abdominal pain! I do agree that you should be seen by a gyn/onc. They are much better trained to handle your care and concerns. I will pray for your speedy recovery. Not knowing what you're dealing with is the WORST!!!!


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Unread 10-30-2003, 12:13 PM
ovarian cyst concern/question

My cyst has not been diagnosed yet, and it is unknown at this time whether it is cancerous. The radiology reports "argue" - one says "cyst" (real descriptive), one says "complex" cyst, the latest says "simple." The next one said further evaluation needed.

The female gyn I had in Longview performed a laproscopy and didn't even look at my right ovary, just said it was within normal limits. Because she suspected adenomyosis (which she never told me, by the way), and because of my horrible pain and the unresolved cyst, my new gyn (the guy) recommended a hysterectomy. He ordered a CA125 because the cyst is suspicious. He will look at my appendix and take it out if necessary, but the right ovary is coming out for sure. He called me last night to make sure I wanted the hyst, and I ASSURED him I certainly did!
Unread 11-04-2003, 06:19 AM
ovarian cyst concern/question

I totally understand your switching drs and sticking to it I had been sick for 4 months throwing up losing weight but np pain.. my gyno referred me to my primary bcause i was "not" preganant I kept telling him something was definitly wrong with my hormones he said nope then my primary sent me to several specialists to see whay i was throwing up etc.. they could find no reason they actually had me believing it was inmy head .. when a ct scan shoed i had an ovarian cyst I thought sure my ob would remove it as i was sure that was the problem. he said he wanted to wait 6 week and see if it resoklved on its own well i got worse and worse until finally i swiched primary drs he listened to me when i said i thought it was hormonla had my cyst looked at agin and found that in 4 weeks it had totally took over my ovary it was now solid... turns out I had a rare tumor that DOES effect the hormones called a granulosa. All is fine now but for every one out there definitly stick to your guns and get them to listen and go to a specialist i went to the cancer center in our area for immediate surgery they were the best!
Unread 11-04-2003, 07:27 AM

Yes i was diagnosed with early stage ovarian cancer (although at the time it was diagnosed as endo cancer but thats another story!) and it hadnt spread to other areas. It was graded as a stage 1a grade 1 and the 'bad bits' were in the cyst. I have no further treatments just follow ups. As far as i have been told there is a 10% reoccurence over the next 3 years. I didnt have any symptoms other than wanting to urinate a lot which happened very quickly. My periods were totally normal with no intermittent bleeding. Hope this helps. Please private message or email if you so wish.

take care


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