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  #1  
Unread 11-01-2003, 10:26 AM
Home from TAH and Confused

I'm home, sore, stil recovering and confused.
TAH was Monday. I see gyn/onc Tuesday to get staples out.

Long story short......cancer was contained within the uterus. Had not gotten into the muscle wall. I remember waking up from sugery and told how everything was fine, and I remember thanking the Lord, then passing back out.

We all were so happy and surgery nurse said everything was 99.9% okay.
I should have known better. The odds on eveerything for me so far have been bad.

They removed eight lymph nodes. Cancer in one of them. So I will begin radiation treatments in the next few weeks.
he said the cancer was a 3.....was an aggressive cancer?

Hopefully I'll feel better in a few days and can visit more.
Until then I'll be reading as I can.

later,
nancy
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  #2  
Unread 11-01-2003, 11:44 AM
Home from TAH and Confused

Hi, Nancy.

Did you doctor mean "grade 3?" If so, that is a more aggressive cancer than "grade 1," but it is very different than "stage 3," which is much more advanced. It sounds as though your cancer was contained in one area, which means it hadn't spread. This is wonderful news! I'm sorry that you have to do radiation, but it sounds like this might be the best course of action. If you can escape chemo, that is just a bonus.

Try to focus on healing from your surgery. The treatment part will begin soon enough, and I just know that you'll have the strength to get through it.

s!
  #3  
Unread 11-01-2003, 01:18 PM
Radiation, Grade and Stage

Hi, Nancy--

Sorry to hear that you will be needing radiation after your hysterectomy for endometrial cancer. I had to have both internal and external radiation four years ago for endometrial cancer that had invaded deeply into the myometrium. I also have a number of other risk factors for recurrence so I had to have both types to deal with the various risk factors.

In my experience, the radiation was not that bad at all. I had the low dose internal in the hospital, and 5 weeks of treatments Monday through Friday. I had very few short term side effects--diarrhea, tiredness, and I found out I had hemorrhoids because they acted up during radiation. I didn't start experiencing the diarrheal until at least halfway through the daily treatments. All of the above symptoms cleared up very quickly and long term I have some bowel urgency, but nothing that's not very manageable! Otherwise, I'm healthier than I was before cancer (which was very healthy).

Just to clear up something SirenSong said: If tumor cells were found in a lymph node you would be a stage 3. If the cells are aggressive, you would be a grade 3 as well. You should confirm your grade and stage with your gyn-onc, and this information should all be spelled out on your pathology report. I highly recommend that you obtain a copy of both your pathology and surgical reports.

In the meantime, I hope you are resting and letting everyone pamper you so that you'll be able to sail right through radiation treatments!!

Take care.

MoeKay
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  #4  
Unread 11-01-2003, 01:42 PM
Home from TAH and Confused

Re: Stage and Grade, and I can only speak of ovarian cancer here, as it is straight out of such a booklet:

Stage 'refers to how far the disease has spread' while 'Grade refers to the degree of differentiation , or maturity, of the cells forming the malignant...tumour'.

big to you
  #5  
Unread 11-03-2003, 08:50 AM
Home from TAH and Confused

Nancy,

Here is a link from the American Cancer Society that discusses endometrial cancer, staging and treatment.

http://www.cancer.org/docroot/CRI/CRI_2_3x.asp?dt=11

I did not have endo cancer, but I do know that the confusion in these early days can be tremendous. Your body is still trying to recover.

I would print out some of this stuff and make the doc talk me through it. Some good questions --

--What stage is my cancer (higher number means spread more)?

--What grade is my cancer (how aggressive or not-like normal cells)?

--What are my options for post-surgical treatment? Which of these do you recomend and why?


Try to a bit



Dorrie
  #6  
Unread 11-08-2003, 03:15 PM
Grade and Stage

Finally cleared it up......the Grade AND the Stage are "3".
Monday I meet with the radialogist to set up five weeks of treatment, and that will be followed with six cycles of chemo

nancy j.
*trying to work up a fighting spirit*
  #7  
Unread 11-08-2003, 09:56 PM
Nancy,

I also had endo. cancer and am a Stage III due to lymph nodes - 4 out of 30- just finished chemo. It is all doable. I will write more - it is very late and I just got back from vacation - you can PM me if you like. good, good luck and my prayers are with you.
  #8  
Unread 11-10-2003, 05:35 PM
Home from TAH and Confused

Hi again.

Many of us here are Stage 3 and Grade 3. Which does mean chemo. And you know what? The very best support I found during my chemo was here on this board. So visit often. Most of us have been there, and we can all share experiences and helpful tips with you.

My immediate helpful tips (for when you go through chemo):

1. Make sure you take Colace or another stool softener (not a laxative) several times a day for the first few days after chemo. This will help keep things moving, as chemo is tremendously constipating (in a way you've never experienced before).

2. Be sure to brush your teeth after any eating or non-water drinking. Be sure to also floss, but carefully. You will be amazed at how much more plaque collects in your mouth during chemo. Also, Biotene mouthwash (non-alcohol) works great as a post-brush rinse. Using it helped get rid of the mouth sores that I was suffering from. I also tried baking soda in warm water, but the Biotene worked better, and it has a handy squirt top.

3. You will probably have to take steroids when you're taking the chemo. This, coupled with the chemo itself, will likely prompt insomnia. Be sure to ask your doctor up front for something like Ativan or another sleep aid (e.g., whatever that one sleeping pill is that they advertise on TV -- can't remember the name right now). Sleep is important.

4. Your doctors will recommend that you eat a lot of protein and drink a ton of water. For protein, look for lean, no-hormone meats or cold water fish (salmon, etc.). This is healthier. The key with chemo is to eat anything! But if you are able to eat something, healthier choices are better. (For my first few cycles, I could only manage potato chips and onion dip, and chocolate ice cream. But by the end of chemo, I was eating poached salmon, broccoli, plain baked potatoes, etc.)

5. Your doctors may or may not tell you to avoid raw foods. All chemo patients who attend Kaiser are told to aovid raw foods for the duration of chemo. Ask your doctor.

6. A good B complex vitamin will help with neuropathy, which is a common side effect from chemo. Neuropathy is numbness and tingling (often accompanied by a "cold" feeling) in your hands and feet. My father is a doctor, and while I was suffering from neuropathy, he told me to take B complex vitamins, and the neuropathy went away. Be sure to ask your doctor, but it is not an antioxidant and I'm sure they will tell you it's fine. It really does help.

I'm so sorry you're having to deal with all of this. None of us wanted to deal with any of this, but I think most people here would agree that they have undergone many positive changes due to this unexpected experience with cancer. There are blessings to be found. Be sure to look for them.

s!
  #9  
Unread 11-12-2003, 08:53 PM
Home from TAH and Confused

Check out the book, What to Eat if You have Cancer
for ideas for getting through cancer. I found it on Amazon.com



Good Luck with your treatments.

Alana
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