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Update on Dr appt! need ALOT of support from my sisters right now! Update on Dr appt! need ALOT of support from my sisters right now!

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  #11  
Unread 11-02-2003, 08:36 PM
Update on Dr appt! need ALOT of support from my sisters right now!

Pam,
Does your college offer classes on the internet? That is what I am doing now as I really never know how I am going to feel and having to lug those books to class and having that time committment was just too much for me, so I am finishing up my degree online! It still takes a committment to study and do the homework and check in with the class, but it is a relief to not have to lug those books around and have to be in class at a certain time. I know my college now offers FULL course degrees totally online. I do miss the one on one of class time, but in the long run this is the best way for me right now.
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  #12  
Unread 11-03-2003, 04:51 AM
Update on Dr appt! need ALOT of support from my sisters right now!

Good for you Kim!!!

I am so happy to hear your doing the classes too!

I also take mine online. There is NO WAY I could go to work and then be at a class on time either. Plus I really never know how I am going to feel from day to day or hour to hour sometimes. I am sure you can relate to that. Also, nightime is my hardest time of the day as far as getting very tired, falling to sleep sitting up and body aches.

This will make my 4th online class so far and this is just how it has to be right now and I accept that. At least I am TAKING classes again, so it really does not matter how you get that degree as long as you dont give up and you go after it!! I am very proud of you sweetie!!

Good luck and thanks again for all of your help!! HUGS!
  #13  
Unread 12-24-2003, 09:41 PM
your post from 11/02/03

I am so sorry you have been through so much. Just hang in there. It sounds like you have a faboulous caring doctor. That is so important when you have any auto immune disorder. Please don't lose hope I was diagnosed with Lupus in 1989 and became symptom free in 1996. Recently it reared its ugly head! Hear is the good news, this disorder is so treatable. Mine plays havoc on on joints and lungs, recently I was having some fibro problems. I was on prednisone for 14 months and have been off for 6 months. That drug is awful. If you are diagnosed with any of the disorders that you mentioned ask your doc about alternatives other that steroids. For a quick fix sometimes it is neccessary. It is a good guy/bad guy drug. I am on Immuran (immune suppressent) and Plaquinil. I have been symptom free and had normal blood tests for the last 4 months, Except for the fatigue from the bleeding fibroids. The joint pain is subsiding. I am scheduled for a hysterectomy 1-16-04 and under close care by all my doctors. Like I said before a good doctor is everything and of course faith. Please let us all know your diagnosis and know that you are in my prayers.
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  #14  
Unread 12-24-2003, 10:27 PM
Update on Dr appt! need ALOT of support from my sisters right now!

I have no advice for you, but wanted to send you a and will be thinking of you.
  #15  
Unread 12-26-2003, 05:50 PM
Pam

Hello Pam,

I am praying for you. You may find this funny, but I find that you have a lot of strength. You have come through things before and I can tell that you are going to stand tall again. I ask have your tried to change your diet a bit? When I have bad pains it is usually because I am eating too much sugar. I was diagnosed with Hypoglycemia, after being tested for Lupus. MS, diabetes, etc. My doctor thought of Hypoglycemia because his wife has it. He said it is not diagnosed ofter. Mine was found through a 8 hour fast. Body aches, flu feeling, indigestion, etc. Well it is not all that simple to maintain, lots of protein, little or no sugar, etc. I hated meat and love colas Just a thought. You will stand strong again
  #16  
Unread 12-28-2003, 01:01 AM
Update on Dr appt! need ALOT of support from my sisters right now!

I have personal knowledge of lupus, RA and thyroid conditions but in four different family members, so you have had a very unfair deal.

This extreme fatigue, I wonder about your iron levels. My sister has had RA for 16 years and has had several treatments including gold, penicillimine, steroids, surgery and now chemo. She was also under rheumatolgist who suspectd lupus as if is the great mimic of many other diseases. She needed blood transfusions to overcome her anemia and fatigue and once this was dealt with her body began to respond to the treatment for her joint inflammations.

My husband's aunt has/had lupus for 10 years, including the classic butterfly facial mask. She could not tolerate any egg product and many other dairy products gave her instant diarrhoea. She learned to avoid these foods, had injections of B12 Vitamin and is now in her early 70 s enjoying excellent health.

My mother had over-active thyroid and my in-laws on husband's side all have under active thyroids and are on daily medication for life.

One sister-in-law has CMT which her thyroid condition masked for a long time but she has been diagnosed now officially and can claim state help for assistance with changing her steps and washing facilities to cope with her weakening leg and arm function.

I am so sorry that DH is not giving support or comfort at this stage, so hope you have other family members or friends who can assist you and help you as you try and unravel your health issues. It's possible that DH is reflecting his own fears of his failing health as many men who criticise verbally are actually saying to their partner what they feel about themselves. ( my marriage guidance counsellor suggested this to me, he said imagine your DH is talking to a mirror instead of yourself and it can be very insightful on their feelings)

You have something very positive right now, this site and your mindset to sort this out in the best way for your future health- take this first step and congratulate yourself, you can do this, just one step at a time, one day at a day ( My maths teacher once said, how do you eat an elephant? One bite at a time!)

Hugs, Linda
  #17  
Unread 12-28-2003, 10:31 AM
Update on Dr appt! need ALOT of support from my sisters right now!

Oh ((((Pam)))) I'm so sorry you're facing dealing with yet another chronic condition The way you're feeling now (overwhelmed, enraged and discouraged) was the way I was feeling 18 months ago when I was first faced with arthritic pain. In my case, despite my doctor running a huge variety of tests, none of them came back positive... however, the symptoms (and family history) all point towards the very early stages of RA.

((((Sweetie))))) Your GP sounds like a gem and she is looking for all the answers, and that's a definate plus in your favor. Also, I know several women who are dealing with Fibro and most of them have seen meds effectively managing their symptoms, so, when there is a diagnosis, there is hope.

Hang in there, sweetie, and remember that stress is a trigger factor for all of these immune system disorder, so it's always a good idea to try and manage our stress. I know: easier said than done

We're here for you... so don't be afraid to drop in and vent anytime you feel you need to do so :friends:
  #18  
Unread 12-28-2003, 06:30 PM
Update on Dr appt! need ALOT of support from my sisters right now!

Dear Pam,
So sorry about all your troubles! Chronic pain is so very, very exhausting and discouraging!!
Like you, I am hypothyroid (recently diagnosed), and will need a daily synthroid pill for the rest of my life. I have a sister and an aunt with hypothyroidism, as well as another sister with hyperthyroidism. For twenty-five years I have struggled with chronic pain, fatigue and depression (severe postpartum depression 3 times). I was sent to a doctor of internal medicine in 1977, and he recommended psychotherapy. I did go for psychotherapy, and I think it helped me a lot, but it didn't cure me of the pain. For the past 15 years I took prozac and that helped me but didn't take away the pain. Now that I am on synthroid and effexor (an antidepressant), I feel so much better than I did when I was in my twenties (!!!), even though I am going through the "no-hormone desert."
I'm glad your doctor is a good one. I'm praying that you will soon have a name for your condition and the treatment you need. Yes, we have come a long way!! In 1977 chronic pain was often ignored. You were just expected to "live with it."
Thinking of you,
Monalees
TAH for endometrial cancer; 2nd surgery for ruptured bladder Dec/02
  #19  
Unread 12-29-2003, 08:54 PM
My thoughts and prayers

Pam-

I wish I could say something that would make you feel better. It sounds as though you are now under the care of a great doctor. Be patient, I know this is hard to do. Hopefully the test will give you the answers.

I have FMS and have had it for 6 years. I went through test after test with no findings. Finally, my obgyn sent me to a specialist in arthritis. When I was first examined I thought I was going to die. FMS has a lot of trigger points and I have problems with all trigger points but two. When they told me I had FMS, this is how I felt and how it affected me, I couldn't fall alseep, when I did fall alseep I wasn't really sound asleep, I laid in bed with my back, hips and legs in so much pain I just cried, waking up in the morning and trying to move was even worse. Six years ago I had a 2 year old and 1 year old, a full time job and a husband with a sick father. I was so depressed. But then I came across a wonderful book that really explained FMS and other chronic illiness that can be associated with FMS. It opened my eyes, however the pain was still there. I met with the specialist again tried various medications to sleep and help with pain and depression. There is hope and if you do have FMS please let me know and I will give you the name of the book and tell you the meds I am on.

Sorry this is so long but please don't think you are alone because you are not. You have to try and set your mind in positive motion, which is a lot easier said then done. I have had various medical problems also and it does take me longer to recovery because of the FMS but I do try and think of the good things in life.

I wish you the best and send you lots of hugs, prayers and if there is anything else I can do please let me know.

Marie
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