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Radiation Scheduled Radiation Scheduled

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  #1  
Unread 11-14-2003, 06:21 PM
Radiation Scheduled

I cannot even begin to thank all of you for your messages containing your experiences about your whole abdomen radiation treatments.

I received the dreaded call this afternoon that my pretreatment simulation, labwork, etc...will be Tuesday morning at 9:45 a.m. It seems that the reality hit when I had a definite date.

As a result of your help, I have been able to look at this in a realistic way. Well, as realistic as I get anyway!LOL
You might not remember that I am the one who will be traveling 200 mile round trip everyday for my treatments. Hubby has already planned out and taken care of my worry concerning nausea on our trips. Thank god for Tupperware cookie canisters!LOLOL
We are now working on the potential 'potty' problems I might experience in transit. We live in rural Ozarks, so potty stops are few and far between on some stretches of the highway.

We are stocking up tomorrow on potatoes, white bread, jello, popsicles, frozen yogurts, lean meats, pastas, etc.

I am also going tomorrow at 11 to have my haircut into a wispy pixie cut. Quite a switch from the gal that had over three foot of hair at one time This will make my traveling, showering, etc...so much easier during the rad. treatments. And then before chemo starts, I'll have it cut again.

Anyway, all that to say this..........you are each and every one so precious to me. I thank you for sharing your lives with me.
And I hope that someday, in some way, I will be able to help someone here.

Nancy J.
endo ca IIIC Grade 3
RAH 10-27-03
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  #2  
Unread 11-14-2003, 06:38 PM
Radiation Scheduled

Dear Nancy,
I know for me the potty problems were my greatest fear. My radiologist told me that Imodium would probably keep things under control and she was right. In the beginning I would take one if I had an apppintment or knew I would be away from the john for awhile.This was way before I had any symptoms. Urgnecy didn't start until about thel last two weeks and two Imodium fixed things until the next day. Then I would take two as a precaution. BTW Target's brand of Imodium is just the same and much cheaper.
My final treatment was yesterday and I noticed that things are better already
Remember , You can do this.
Hugs,
Jean
  #3  
Unread 11-14-2003, 06:58 PM
Radiation Scheduled

Just a short note, Nancy, to let you know that our hearts are with you on your journey. You're well prepared; keep your sense of humor. I'm sure that the radiation techs you'll be "working" with
will be wonderful (they helped me so much... I really felt I cared for). All will be well.

God bless.
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  #4  
Unread 11-16-2003, 06:02 AM
Radiation Scheduled

Nancy -

1. I messaged you about radiation before noticing you would also be having chemo, sorry!

2. I also traveled about an hour each way for my radiation. I usually didn't eat in the morning (I went really early so my husband could get to work afterwards) and on the way back would eat plain almonds (lots of energy!) I was able to make it home before needing to "go" even when my diarhia was at its worst. Maybe also took immodium in the a.m. but can't remember anymore. the routine is doable, although really exhausting!

3. I have a friend who stayed over "in town" alternate nights, so she could cut down on some of the traveling. Maybe you can find somewhere closer for occasional stays?

4. Please be assured that you will be in our thoughts and prayers!!

Esther
  #5  
Unread 11-16-2003, 06:34 AM
Radiation Scheduled

's Nancy.
May that radiation and chemo do its work.

Ruth S
  #6  
Unread 11-16-2003, 08:51 PM
Wondering again

Seems I'm always wondering about something!ha!

Now I am trying to imagine just what exactly this radiation simulation is?

I have already been told to have a full bladder when doing each of my treatments......wonder if it is suppose to be full for the simulation?
Anybody here that has gone through that and knows?

Course, as nervous as I'll be.....that ol' bladder will probably be full constantly!!LOLOL

nancy j
  #7  
Unread 11-17-2003, 12:14 AM
Hi Nancy

The simulation is the longest radiation appointment but you don't get any radiaton. The appointment is to set up everything for radiation. They map out just where the beams will be aimed. They also tattoe you. For me it was 4 tiny marks, like small freckles. Two on the front of my stomach and one on each side. Those are the targets for beams. The worst part of the simulation was not being able to move for so long. It seemed long but probably wasn't more than 30 minutes.

You won't have potty problems until the 12 to 15th treatment. I had diarhhea but it wasn't after any radiation appointments but later at night, after dinner and overnight. Lomotil worked well, when Immodium failed.

Email me if you have any other questions.
Janie
  #8  
Unread 11-17-2003, 11:02 AM
Radiation Scheduled

Ahhhhhh, the simulation.... This is one of those situations where you have to keep your sense of humor. It's long, but not too difficult. There's a lot of laying down on a metal board (that hurt after a while) during which time you're told not to move (they'll move you), you're marked and tattooed (don't wear pretty undies, they'll be ruined from the ink). In my case, the techs were both men plus my doctor (male), and everyone was hovering around me, pushing me up, down, side to side; taking pictures (yes, but not of my face). Feeling like I'd lost all dignity? Well, I still have my dignity but I suppose decorum is all gone. And you know what? If this is the price I have to pay for good health and recovery from cancer, then I'm willing to pay it. End of story. They can take pictures of me any time, any way they want. (So it's not awful but it's not the most fun I ever had either.)

Also, I was never told to have a full bladder. I'm sure that every case is different.

Good luck to you, sweetie. Let us know how you're doing. Feel free to PM me if you'd like and God bless.
  #9  
Unread 11-17-2003, 12:58 PM
Maureenie

What a great description of the simulation appointment! I had forgotten all those indignities. I was so scared that I hardly noticed what they were doing. I do remember that my feet were bound together so that I wouldn't move them, after a while some of the muscles in my legs began to shake. It became rather uncomfortable, but I made it through.

I was never told to have a full bladder either but some women believe it helps to protect the bladder and avoid bladder damage and later problems. I figured it couldn't hurt, so I tried to have some water in my bladder for each radiation treatment. I didn't avoid all bladder problems, but the ones I had were short term, a couple of weeks, and I have been fine since. Having a full bladder for simulation would be a very BAD idea!
  #10  
Unread 11-17-2003, 01:47 PM
Radiation Scheduled

Hi Nancy - just to say that we'll all be thinking of you when you start your radiation tomorrow and hope it blasts all those bad cells away. Be extra kind to yourself - God Bless and huge hugs Debs
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