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more ??? about CA125... (long, sorry) more ??? about CA125... (long, sorry)

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Unread 11-16-2003, 09:59 AM
more ??? about CA125... (long, sorry)

Hello everyone... I'm still in "lump limbo" and very frustrated. The ob/gyn is puzzled by my lump... isn't convinced that it only involves my right ovary. She is concerned that it may also be adhered to my bladder and/or bowel. She wants to operate and wants a bowel specialist in the OR with her when they operate. It's my only ovary left, and it will mean surgical menopause for me.

The internist I saw isn't sure what he's seeing on my abdominal and transvaginal ultrasounds either. All anyone knows is that I have a "midline-placed mass, possibly ovarian in nature, that is thick-walled, partially fluid-filled and partially solid." He ordered an air contrast barium enema, which I am having done tomorrow morning.

My reason for seeing my doctor in the first place last September was because of persistent diarrhea which goes on for a week to 10 days, then is followed by a week of constipation... which I now read can be a possible symptom of ovarian cancer. I went in for an ultrasound to see if there was a digestive reason for the diarrhea, and that's when they found the lump.

Can a CA125 come back normal and there still be ovarian cancer? Since my CA125 was 22 does that mean I absolutely don't have ovarian cancer?

Also, none of the doctors I have seen so far (my family doctor, an internist and an ob/gyn) have suggested consulting with an oncologist... should I insist? Am I allowed to do that or am I making a whole lot out of nothing?

The ob/gyn wants to go in abdominally on January 13th... that will be 6 months since they first detected the lump. I'm starting to feel like nobody is taking this seriously, on the other hand I'm wondering if I'm being overly dramatic.

Any thoughts on this? Am I overreacting?

Oh, another thing... when I do have surgery on January 13th I don't even know which message board I belong on... I've already had my hysterectomy, so I don't belong on the post-op board. If it isn't cancer, I don't belong here. I've perused through "The Road Less Travelled" and I'm concerned that there doesn't seem to be a lot of "daily chatter" there, which I found I desperately needed post-op from my hysterectomy! Any suggestions which board I belong on?

Sorry to be so long winded... you ladies are such a wonderful source of support. I'm quite sure I would have pulled out all my hair and chewed off all my nails by now if it hadn't been for this place!

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Unread 11-16-2003, 11:54 AM
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We'll welcome you here. First, if you haven't, ask for an opinion from a gynecological oncologist. If your regular doctors even suspect that this could be cancer, the gyn/onc is the doctor to do the surgery. That the CA125 is 22 is good; however, CA125 is best used after discovery of cancer to monitor progress in treating the disease, and that isn't even 100%. Stay with us and we'll help you pre-and post-surgery. Hopefully this isn't cancer but a benign mass. But do consult with a gyn/onc, with your ultrasound in hand. OK? Ellen
Unread 11-16-2003, 01:54 PM
more ??? about CA125... (long, sorry)

Ellen give good advice. Make an appointment with a gyne/onc. Insist on it. You most definitely are allowed to make that appointment.

Ruth S
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Unread 11-17-2003, 07:26 AM
more ??? about CA125... (long, sorry)


CA-125's are not perfect predictors of ovca. One of the things that can make them elevated are other pelvic conditions, especially those that cause inflamation.

IMHO if you gyn is concerned enough to want a bowel surgeon on stand-by, s/he should really send the case to a gyn onc. Even if it is not cancer, they are much more skilled at detailed pelvic surgery than your typical syn.

Unread 11-17-2003, 10:38 AM
more ??? about CA125... (long, sorry)

Hi Kate-of course you can come to Cancer Concerns with all of your concerns. Especially since you have some cancer related worries. Everyone here is very helpful and understanding. : )
As for your CA 125 question, if you happened to have a cyst that contained cancer, and if this cyst is intact, your CA 125 would not necessarily be elevated.
Take care and good luck with everything.

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