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A few surprises A few surprises

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Unread 11-20-2003, 01:53 PM
A few surprises

Hi Flashie,

My mom had breast cancer 27 years ago and that was always my main concern, for me, about getting it also. What a shock when a year and a half ago, I was diagnosed with ovarian cancer. Unfortunately breast cancer and ovarian cancer are sister cancers and my two boys will have to watched carefully for prostate cancer which is the male version.

Keep us updated.

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Unread 11-21-2003, 10:42 AM
So here's the update:

Hi, Ladies. This has been a crazy week but it seems that those surprises I talked about are sorting themselves out. Here's what we've got:

First, my current CA125 is 7.6! Very pleased with this, of course.

Next, my glucose level is absolutely normal (in fact, it's on the low side, but of course, it was just a "random" test). So, I assume the doctor was right on in expecting that my last count was elevated as a result of the steroids. One more concern put to bed.

Finally, we've sorted out the confusion with the mammo/sonogram results. It seems that my oncologist rec'd a letter that referred only to the sonogram (and this is where they talked about a benign appearing nodule with suggested follow-up sono in 6 months). My gynecologist, on the other hand, received a different letter which referred to both the mammo and sonogram results and talked about everything normal/benign and to come back in 1 year. My gynecologist followed up with the radiology office for an explanation as to a) what was the correct review? and b) why there were two different letters?

There's no answer for "b". It was a clerical error. I was thinking that perhaps they don't get too many requests to send copies of the results to two doctors. Or maybe it was that someone just wasn't thinking. (I haven't received an explanation as to why they would have prepared two different letters.)

In respect of "a", the explanation my gyno received is that if one looked only at the sonogram results, the benign appearing nodule would have been seen. However, if one looked at the sonogram results together with the mammo results, you would see that this benign appearing nodule is, in fact, nothing to be concerned about and is quite consistent with my normal breast tissue.

She's dealt with this group for many years and said that, in her experience, they've never missed anything and if anything, they tend to be over cautious and will drive doctors and patients crazy with call-backs for more tests, etc. She said they reviewed my films again yesterday and that they are convinced (and she is comfortable with this) that everything is normal and recommended follow up for me is one year.

Now, all that being said, I told my gynecologist that I still did not have a comfort level and might look to have my films reviewed by another radiology group. My gynecologist totally understands and gave me the name of another radiologist in whom she has a lot of faith. So, I think I'll take it from there.

Thanks, everyone, for being here for me.
Unread 11-21-2003, 02:12 PM
A few surprises

Hi Maureen,

I am so happy that everything turned out good. This just goes to show us that sometimes the results given to us are not really the results at all.

Have a wonderful relaxing weekend.


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