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Unread 11-22-2003, 08:16 AM

I just want to introduce myself. My name is Tam I'm 29 years old from Fort Bragg,NC.
We have been going thru the bad Pap smear to the Biopsys (three of them) to Colpo. Yesterday my doctor called me and asked me to come see him asap and bring my husband. We were told I have Cervicl cancer and he believes it to be stage 1b.
He set me up for the 2nd dec to go to a out of town cancer treatment center. I hope to find out much more when I get there. We have been told that a hysto will be the next step but don't know much else. So many if's,but's and questions. This is all is very scary and so confusing for me right now.
I hope to read and learn from all of you alls posts.

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Unread 11-22-2003, 08:41 AM


Welcome to this wonderful website. I'm sorry about your diagnosis, but be sure that you'll find this site helpful in the days ahead. There's a really neat group of people that you'll hear from. Please know that I'll keep you in my thoughts and prayers as you move through the next steps.

Unread 11-22-2003, 09:22 AM

I was just diagnosed last week with cervical cancer. I know the exact feelings that you are going through.
We can make it through this together!!!!!!
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Unread 11-22-2003, 09:52 AM

It is a great website, but just sorry that you had to find us this way. Your Dr. is right to send you to a cancer center and be sure to see a gynecologic/oncologist, as those are the experts for anything cancer related. Pre-op and Post-op will be very helpful about the hysterectomy from our perspective and CC is always open!
Unread 11-22-2003, 10:00 AM

Hi Tam

I was diagnosed with cervical cancer stage IA. Its been almost 3 weeks since surgery and doing pretty good.

I am very glad to hear that your doc is sending you somewhere else for treatment. As some of the previos posts recommened - get a gyn/onc. I say that because I see you're from Ft Bragg. My husb was stationed there in the 80's and its best to get a doc who specialises in this type of thing.

This web site is great and packed with so much useful info plus "we" are caring people too.

My thoughts are with you.

-cervical cancer/kept ovaries
Unread 11-23-2003, 10:12 AM

Thank you all for the welcomes and good wishes. I wish you all the very best as well.
I'm not sure everything as sunk in yet and there is so much to read and sometimes seems the more I read the more questions come up.
I did read about Vaginaly done Hystos and traditional Hystos. Is it just me or does the image of a Vaginaly Hysto gives someone else the jeebies too?
I won't know what the doctors will suggest to me and really can't wait until the 2nd dec so I can get it over with but the thought of Vaginal Hysto right now sounds creepy to me.

Unread 11-23-2003, 08:24 PM

Welcome, Tam and warmest wishes for a future filled with good health.

It's great that your being referred to another facilty better able to give you the quality of care that you need now. Before you see the new doctors, suggest you write your questions down so you don't forget anything. Take notes, too. There will be a lot of information coming at you.

Keep in touch, too. We're all here for you.

God bless.
Unread 11-23-2003, 11:26 PM

I too had cervical cancer, 1B2. I don't think that doctors do vaginal hysterectomies when there is cancer because they want to look around, take samples of lymph glands, etc.

The weren't able to operate on my cancer because of the size and location. The doctor thought he wouldn't be able to get clear margins. So they killed it with radiation and Chemo.

When you see the oncologist on December 2 he'll be able to tell you which treatment plan is best for you. Both are doable, although I am sure it seems overwhelming right now.

Hang in there, you're gonna be fine. The waiting, and no knowing what's going to happen, is the worst.
Unread 11-24-2003, 05:37 PM

They will probably do the radical hysterectomy and remove some nodes. I agree. 1B is still very early.
Unread 11-25-2003, 01:39 PM

I am so cranky. I just wrote you a huge long note then accidentally hit some key that deleted it. Sigh.

OK. Two things I'd wish I'd asked my doctor to do at time of surgery are:

1. Test the tumor/cancer for estrogen receptors. This will help determine whether you should or should not take HRT in the future. You, like me, are young, and my doctor said that I still need those hormones in my body at this age. I researched the issue for six months before deciding to take them. I am doing some other testing with a nutritionist who deals with cancer patients to determine the levels of good vs. bad estrogen in my system, so I will know more in about a week. The short story is, my doctor's recommendation is based on his visual assessment that my tumor was no estrogen-receptor positive. But it was not tested. So, ask about that.

2. Test the tumor for chemotherapy sensitivity. Many hospitals do not do this. Or you might have to pay for it yourself. If a chemo does not work in the petri dish, it will never work. If a chemo does work in the petri dish, then it may or may not work. But knowing which ones won't work may save time. Many people are responsive to the initial frontline treatments that are recommended by most hospitals anyway, so if your doctor recommends against this type of testing, it's OK. It's just something I wish I had known about. Hopefully I will never have to have another surgery. But if I do, I will demand -- and pay out of my own pocket -- for this test.

So sorry that you're going to have to have surgery. The abdominal surgery is probably the one you'll have. Count on a long vertical scar (mine extends above my bellybutton) and some pain afterwards. But remember: The body has a remarkable ability to forget pain. Soon, it will all be a memory.

Most of us here have had this surgery, so as you learn more about what you're going to be doing, we can all make a lot of suggestions about what to bring to the hospital, healing, etc. You're lucky that you have a husband there to support you. But the women here can support you in a different way. :-)

Keep us posted! s!

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