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Endo/Adhesions after Hysterectomy-Post Op 1yr Endo/Adhesions after Hysterectomy-Post Op 1yr

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  #1  
Unread 11-22-2003, 11:40 AM
Endo/Adhesions after Hysterectomy-Post Op 1yr

First I want to say thank you to all of the hystersisters for all of the advice given to me.

I am 1 year post op and still have pain in my right upper quadrant of my abdomin. I had severe endo/aden and I was not told about it until after my surgery. My Dr. put my on .625mg of Premarin but reduced it to .3mg six months later because of the burning and pain. I left my OBGYN because he said he could not help me any further and told me to take Motrin for pain. I refuse to believe that there is no hope for me and other ladies so my regular primary Dr. reduced my Premarin to .3mg every other day. Long story short I still hurt and I always hurt after I eat. I was given a sonogram for gallstones and sure enough NOTHING. I lost 15lbs in 4 days after my hysterectomy so I know I had adhesions. I was given Zantac to control my heartburn I have been experiencing and Dr. says it is reflux. I say no way as I have never had heartburn. At any rate with the help of another sister, I did my own test and stopped the Premarin for about a week but caught a cold because of the nightsweats so I went back to every other day. Even though I was off the Premarin I still had pain. So, the next trick I tried to reduce my food intake, and I mean reduce it to: Morning: Breakfast bar, Lunch: half Turkey sandwich, and Dinner: A small snack. With the reduction in food my pain was minimal. BUT HEY I AM STARVING, and I lost another 4lbs!

I go back to my old OBGYN, because my insurance reassigned him back onto my plan, in about 1.5 weeks and I want to tell him that I have endo/adhesions to my gallbladder or something which is not allowing me to eat properly.

Anyone experience this that has done something about it? I want to tell my doctor exactly what I think my problem is so I do not have to go through this another 3 years. Do I really have endo and adehesions?

Any infor would be appreciated.

Thanks!
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  #2  
Unread 11-23-2003, 06:28 AM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Oh (((((Carrie)))) I'm so sorry you've been having such a hard time since your hyst

While I've never delt with neither endo/adeno nor adhesions, I've been having a few discomforts, pains and troubles related to gastro-intestinal woes. I have IBS and I've always delt with it. However, since my hyst, the symptoms have increased dramatically. It's frustrating and confusing since, some of the symptoms being cyclic, I was convinced it was my right ovary giving me grief (I kept both ovaries).

You mention that you ruled out reflux because you've never had that before. I wanted to mention that, because of the proximity of the organs and due to the trauma of surgery, several of us have seen either new gastro-intestinal conditions develop after our surgery or have seen pre-existing conditions worsen.

Considering that your pain increases or seems to be triggered by eating, have you asked for a referral to gastro specialist? I agree that you can't go on with such pains or with starving yourself. You need relief, but this may mean doing the round of doctors and specialists to get to the root of the problem.

Oh, and another possibility would to consult an allergy specialist: your problems could be resulting from either allergies to certain foods or a sensibility to certain foods. An allergist would be able to run tests to identify the foods you may allergic to and would recommend a process to first eliminate those from your diet and then, slowly, reintegrate them.

Regarding your issues with HRT and your body is responding to them, our sister site the Hormone Jungle is filled with insightful information and you might find answers to some of your questions. And there is also a message board where you'll find others struggling with some of the same questions.

Sending lots of healing s your way and hoping that you get answers, and find relief, very soon. Please keep us posted.
  #3  
Unread 11-23-2003, 11:52 AM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Danielle,

Thanks for the info and support. I am going back to my old OBGYN next week and I am getting a new primary care physician effective January 2004.

According to my current primary care physician in regards to reflux, I guess you are suppose to hurt in the middle and more on the left side. The right side is something else. Who knows.

I do have food allergies to the following: chicken, beef, salmon, tuna, lobster, oranges, melons, and celery and I do not eat them unless someone sneaks them in potluck dishes and faisl to tell me or if my food like pork ribs touch the chicken on the grill, and finally if my husband eat the above foods and kisses me thereafter forgetting about my allergies. Unfortunately the reaction to food is very painful and my nose runs and I ache all over for about 5 days. Doesn't that suck.

I will keep in mind about my organs being moved around and I will be asking for a referral if my old OBGYN and primary care physician cannot find anything.

Unfortunately, I think I have another long road ahead of me.

In regards to your IBS, did you have endometriosis at all. I did and everything was stuck together causing constipation for about 3 years. Once I have my surgery I lost 15lbs in 4 days. Amazing!

I will keep you posted and again thank you for the advice and support.
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  #4  
Unread 11-23-2003, 12:03 PM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Hi Carrie,
I can relate to the eating issues. I had been diagnosed with IBS previous to the hyst and the docs kept telling me the same thing after the hyst. However, I had a feeling that something else was going on, the symptoms just didn't feel the same to me. Finally after 3 years and numerous tests and more surgeries I located an Osteopathic doctor. She ran some more tests and I was diagnosed with Candida, a run down immune system and a whole host of food allergies.

Dealing with the food allergies hasn't been easy and going out to dinner can be a nightmare! But a year later I am still learning and now ask questions before eating anything that I haven't made myself. My tummy is sensitive enough without eating the foods.

Most days though it doesn't matter what I eat, if I eat too much it just sits on my like a rock and I start to swell. Once I start to swell there is no stopping it. With the swelling comes increased pain.

I am also in Pain Management. I am on the Duragesic 25mg patch, phenagran for the nausea, and Darvocet N100 for breakthru pain. I did recently start accunpuncture to try and help with my symptoms and I do hope to eventually get off the meds and maybe even be able to eat a decent meal again.

Well I didn't mean to go on and on about me. I just wanted to let you know that you are not alone my friend. Keep looking for those elusive answers. For every door that closes another one opens I've been thru many docs, some not so good and some very good. It has been a learning experience.

Do check out our Resources forum. There may be some info there that may be of interest and help to you. https://www.hystersisters.com/vb2/for...s=&forumid=159

I am sending s your way.
  #5  
Unread 11-23-2003, 12:19 PM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Kim,

I have never heard of Candida, but I will sure research it. Thanks for the info.

Boy this *****! If it is not one thing it is another.

Thanks again.
  #6  
Unread 11-23-2003, 01:41 PM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Carrie,
Candida is basically a yeast infection in your intestines. There is a special diet that you must follow which includes eliminating all sugar, flour, fruits etc. Yeast feeds on sugar and flour and fruits turn into sugar once ingested. You have to starve off the yeast. I was also put on some supplements to help kill the yeast. The diet really wasn't that bad once you learned to be creative. My main problem was that many of the foods that were allowed I was allergic too!

Please don't misunderstand, I am not saying that is what you have, just something to look into if all tests prove negative and you continue to have problems.

Regarding the reflux, I was diagnosed with gastritis after an endoscopy. Interesting thing was that I had no symptoms of upper gi problems. All my problems are located in the lower abdominal region.

Good luck! I am glad that you have an appt with your I think your problems do require further investigation. Do let us know how you're doing and how the appt goes.

  #7  
Unread 11-23-2003, 02:42 PM
Hey hun...

I'm an endo sister...I had adeno, endo and fibroids.

I'm currently dealing with pain due to (maybe) adhesions. My GI doctor thinks it's adhesions but he's still running tests.

I would strongly suggest you get a referral to a GI doctor. I too have pain when I eat and I've had to resort to a liquid diet on the days it hurts too much...like today.

I'm not in the treatment phase of dealing with this yet (I've still got to have a CT scan, endoscopy and colonoscopy done) but I've got a great GI doctor who really understands what I'm dealing with.

I think you'd get better results from a GI doctor. Your situation (except for the HRT...I have one ovary) sounds like mine.

PM me anytime if you want to chat.

Rita
  #8  
Unread 11-23-2003, 04:52 PM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Carrie, to answer your question: I never had endo nor adeno and never had adhesions. The IBS is a monster of it's own and brings with it a frustrating cycle of constipation/diarrhea, gas and bloating, burping and sharp pains in my lower right abs that tend to be cyclic (hence the thinking that it was my ovary) and, as I mentionned, it's been worse since my hyst.

One other thing I wanted to mention is that where allergies are concerned, the trauma from surgery might result in upsetting our immune system. For those of us who already have a temperamental immune system, that might mean more woes and new allergies to contend with.

I'm not saying that your problems are necessarily caused by GI issues or allergies: I'm not a doctor and am only recounting my own experience. In fact, I think that, for a lot of us, our problems might be caused by a number of different issues. That's why it's important to find a good PCP who will help us to get to the root of the problems by referring us to the right specialists. I know: easier said than done
  #9  
Unread 11-23-2003, 09:22 PM
Endo/Adhesions after Hysterectomy-Post Op 1yr

Danielle,

I only ask about the endometriosis because both endo and candida sound very similar. The only difference that I can think of between the two, for me only, would be that endo did not cause bloating for me. I was constipated for about 3 years and just simply got use to it. I just thought I was getting older. My break through came when I started to have my period for 11 days straight and then every other week. Food and drinks like caffine and alcohol cause endo to flare up and hurt a great deal.

My allergies I believe casued me to have endo and about 7 years ago I was just about on my death bed until my allergist saved me. I get monthly injections for grass, weeds, trees, dust, and mold which is an improvement from twice a week at my first visit. I actually bounced back from my surgery pretty well except for the pain that I am complaining about in my upper right quadrant which hurt from the get go. What is amazing to me is when you go to your doctor they just look at you like you are crazy. I have found out so much just logging onto hystersisters that when I go to my doctor I get oh yeah it could be that too. I don't know about you, but I went to the doctor 16 times in 16 months before my doctor would do my hysterectomy and who knows how long and trips to the doctor before that. The one thing my old OBGYN did was take out my ovaries too. Thank goodness for that.

I will not be able to see a GI until after the first of the year simply because my husband's insurance changed and I have to have a new primary care physician. I am expecting that I will be treated better simply because I am going back to my old OBGYN of 11yrs and he knows I am not a game player or a whinner.

I will keep your info in mind and I will keep you posted.

Thanks again.

PS-Did you get allergy tested? When I was tested I was in shock to find out I was allergic to food, I had know idea and I was devastated for about a week.
  #10  
Unread 11-23-2003, 09:39 PM
Hi Again

AREN'T WE ALL JUST HAVING A BLAST HERE!
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