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Would you do it again?? Would you do it again??

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  #41  
Unread 01-13-2004, 02:11 AM
Would you do it again??

Hi my Sisters, I am awake again! I read some of the recent posts
and I truley feel the pain. My son-in-law said it best, he told my
daughter 'your mama can take some pain' I am the first to say no
I am ageing quickly with the pain, 24/7 is to much to bear. What I have read from the ladies Is its almost a coin toss, you win or lose. I studied and studied, I went in thinking this was going to be the best thing I could ever do, and I was wrong, BIG TIME!!
I think woman should REALLY know the risks that they are taking,
I know Dr barely mention the facts. A hyst can kill you, at the very
least wish you died!!!I believe my insurance comp is ready to send out flyers to make sure woman know what can happen.
There is to many woman ending up like us, what gives? Are our
Drs getting laxe?? I know I traded one set of problems, for a whole new set of problems, and these problems are life-altering.
The worst part as with the coin toss, you never know weather
you won, or lost untill the coins stops, and then its to late...
Back to sleep Linda
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  #42  
Unread 01-21-2004, 06:43 AM
Would you do it again??

Hi All!!! I am now 12 days post-op from hernias/tummy tuck.
I feel wonderful!!! I still have some pain from the 3 hernias,
my Dr said I might 'always' have that,YUKKKKKK!!!
He said this was a barter surgury, I had to give a little,
to recieve a little, totally a trade off. But I still feel that if
I have to be in pain the rest of my life, I myself, would
rather do it looking normal, NOT 9 MONTHS PREGNANT!!!
My poor husband has been here every step of the way,
bless his heart. You all know these kinds of surguries
means no sex for our poor husbands, bless their hearts!!
And most stay with us, for better or worse!! It seams I
am turning into a nut now worring about more hernias
coming back, even tho I never had any prior to my hyst
from hell!! I know my husband who never even gets a
headache could not figure out why I was taking HANDFULS
of pain meds every 3 hours sence the hyst. My Dr told
him after this last surgurie he couldn't figure out how I
was living with the pain from the hernias. He said it had
to be close to labor pains!!! I never thought having a simple
little hyst, would effect the REST of my life!! But then again
we as woman are told by our Drs prior to our hysts, how
simple a hyst is, best thing we can ever do for ourselves!!
PLEASEEEEEEEEEEEEEEE. My husband sumed it up for me.
if you can handle walking thru hell will gasoline soaked undies
on, go for a 'simple' little hyst!!!! <<<<<HUGS>>>>>>>>>
to all our sisters walking thru hell right now.
  #43  
Unread 01-21-2004, 01:55 PM
hello

hello would I gone through this again yes and no all at the same time yes for the fact that I didnt have much of a choice I was bleeding so much going throw 3 pads an hour so for the fact that I was sickof paying for pads and I was so anemic from lose of blood that yes I would do it . for the fact that my tummy is swellon and sticks out no i would not . I do admit it is wonderful going to a store and not having to always wear dark clothes I can wear white if i want not that I do but the choice is wonderful and anytime of the month .

but there where things I wish I would have known more .

I hope this answers the question ....

have a great day sarah

29yrs old tah due to bleeding that didnt stop .
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  #44  
Unread 01-21-2004, 03:56 PM
Would you do it again??

I'd do it again in a heartbeat! I've had a very smooth recovery (so far) and the pain I had pre-surgery was heck in a hand basket. The healing and pain from that has been much much easier.
  #45  
Unread 01-21-2004, 04:00 PM
Would you do it again??

I think its amazing that we as woman have managed
thru this thread, make woman that have not yet had
a hyst do more research, check other options, most
importent get 2nd and 3rd opinions!!! How many of us
just took "one" Drs advice, BIG MISTAKE!!! For a
surgury of this life altering surgury you must have at
least "2" medical opinions. Woman are being made
aware thru this, things happen and be informed, and
educated. Woman are seeing what they should be
looking for in their own bodies following the hyst.
So they never have to go thru the hell some of us
have had to endure after the hysts. Searching and
wondering, trying to find clues as to what happening,
we woman are sometimes giving answers that they
are looking for thru this website. At least they know
to ask their Drs the tough questions, they are informed!
  #46  
Unread 01-22-2004, 10:35 AM
Count me out!

I would NOT do it again in a million years knowing what I know now.

And, considering over 98,000 people DIE every year from medical mistakes in this country from so called simple procedures...I'd definately refuse...and had I had the option, try pain mgt 1st...surgery last.

The problem with, human suffering is not adequately quantified in this country. Dogs get better dignity than people when it comes to pain.

Women get it doubly bad. Women are not small men and we're not 'hysterical' but we're labelled that more often than not before we even open our mouths.

As with everything surgery should be the last resort.

I think women who've reached that point - the last resort - have fewer misgivings than those who don't reguardless of the outcome.
  #47  
Unread 01-22-2004, 06:46 PM
Would you do it again??

You are 100% right, our Drs are so afraid to hand
you a asperin these days due to out goverment
hanging them out to dry!!! I never was out of pain
with the medicine they gave me, it was 24/7 pain.
They told me if I stayed in the hospital at $20.000
a week at least I would have morphine!!! And god
forbid if you doubled up on your meds for relief,
somewhere you were gonna be out of meds with
3 days to go before walgreens will refill!!!
They say pain makes you stronger, I think I should
be about ready for Mike Tyson at this point!!!!
Linda
  #48  
Unread 01-23-2004, 10:18 AM
Would you do it again??

  Quote:
Women get it doubly bad. Women are not small men and we're not 'hysterical' but we're labelled that more often than not before we even open our mouths.
Hi ((Angie)),
Unfortunately, this is soo very true I fear for the future of Chronic Pain Patients & their access to relief! It was such a huge battle to get this far & it now seems as if it is going backwards. More & more Pain Drs are being investigated to check for that *meticulous record-keeping* that is required for them to treat our pain....it's become soo bad that many are stopping their Pain Mgmt practices & performing only Pain Mgmt procedures i.e. Nerve Blocks, Trigger points, PT ect....while these things are a wonderful <for some> addition to the use of meds, alone it often just isn't enough. Here, I've seen 2 of out 5 Pain Clinic practices change totally, which either resulted from being scared of the DEA's targeting of them, or from fear they will eventually. I fully understand a Drs fear of losing their practice! They spent many yrs, $$'s towards getting their license to practice & the fear of having it taken away *yikes* For Drs supporting their families with this as their only means, what else can they choose to do??
Somewhere tho someone needs to take a more firmer of a stand & speak up for the Drs & most of all for the Chronic Pain Patients. Some 5,000 Americans take their lives each yr. due to the lack of pain relief either being refused treatment at all or because it is inadequate...those numbers rose last yr. Do they not see the correlation??
As you noted, for us as women, it is doubly hard:-( Sad but all too true & why? We are the stronger when it comes to dealing with pain & medical issues, right? We were the gender chosen to suffer some of the worst pain imaginable, we have the periods & the pain that often comes with it.
I truly believe that was done for the reason that we can better cope with the pain ;-) Yet, we are often viewed as *whiners* or made to believe its all in our head <sigh>
I hope to see a larger amount of involvement in relations to the current Pain issues & treatment of it....we are backsliding fast! If we want to have a future, well a future that is w/o pain something has to turn quickly. Our largest CP Advocate was forced into nonexistence, he made such an impact & a difference in the lives of thousands along with our rights to relief...he aided in changing laws & thinking for the better! With him gone along with a few of the Drs who were Pioneers paving the way in the treatment of intractable, chronic pain, in a way that was scrutinized beyond belief, because it wasn't the *conventional* way of doing things, are gone as are their practices. They spoke on behalf of pain patients, helped change the thinking of soo many & soo very much more....

:::Off my soapbox:::
This touches me in a way that is soo very near & dear, for me personally & from many, such as ((Adrite)) I have befriended that also suffer such severe pain.
I just cant understand this battle against the use of something that helps give someone a life back where before they had none! Something that's been dubbed as miraculous in the treatment of Chronic Pain, as a lifesaver...yet they would love to see these disappear completely in the treatment of Chronic Pain...why?~

Thanks for the great links ((Angie))...there is some awesome info out there along with ways to help make a difference in the way things are being done, ones just have to come forward & demand our rights to relief from pain! We have a Fundamental Human right to live as painfree as possible exp. when there are things available for this exact reason but some refuse to prescribe them.

I recently found that last link, for Grace, it's awesome!!

So how are you doing? I've been watching for a post from you about your progress since your last surgery...I hope it is still good!

Researching all of them & making yourself aware of the pro's & con's, the possible outcomes; good or bad, the risks ect....

This surgery can be life-altering...once done there is no turning back. So before making such a permanent decision for treatment as a Hyst is, IMO~any & all viable, less-invasive options should be exhausted first. Leave this surgery, as it does carry the most risks <as any major surgery does> for the last ditch effort at getting relief.
If the other less-invasive options fail one can always try the next one. I know after trying soo many one becomes frustrated & wants to be done with it but I think if one was more aware of the things that could happen & yes they do happen, they would be more likely to hold off undergoing other treatments first! This in no way applies for gals with life-threatening conditions who require this surgery but for the 85% who have it done for quality of life issues.
Something I have noticed over the yrs I've been coming to HS is that for the ((Sisters)) who had no choice in the decision of this surgery, if they suffered complications either Chronic or acute, they are more accepting of it, like it doesn't impact them as much as one who had this done as an elective surgery. The majority don't seem to ask the *what-ifs, why's, why-nots, constant questioning of the decision we made to have this*
The same seems to apply for ((Sisters)) who were well-educated in their choice, they weighed the risks, sought out other opinions, exhausted other options...they went into it knowing the possibilities but were at peace with that b/c they knew they had done all the could before undergoing this, they made a choice for their last option for treatment or that it was the best treatment for them....

IMO, from all I see & read, the ((Sisters)) who made this decision more hastily, or were not/did not become aware of the possible outcomes or risks seem to hold more regret, more anger & disheartenment should complications arise from this surgery. All the questioning of the decision comes into place it appears to be harder for some to come to terms with it.
I think this can be one of the most important reasons for anyone contemplating this surgery to educate themselves, ask questions, seek out other opinions for if a problem or complication arise we knew it could possibly happen & are better equipped to cope with it both physically & emotionally!
There are always 2 sides of the coin in any situation & for one to be educated they must see both sides...not only the bad or not only the good...both for a balance.
With either outcome, when shared by others, groups, however, IMO, it should be shared in such a way that doesn't create fear or sugarcoated of how great but info that provides balance of possibilities for an outcome....

It's just such a big decision & can lead to a new lease on life for many but can also lead to further complications...by providing both sides, women can make the decision based on their own dx/symptoms & options on what they feel is best for them!!

Big ((((hugs)))) to each of you who have suffered soo & also to those who's lives have been made better by this surgery
I agree, as someone posted earlier in the thread, the key is education! Knowing your options & that yes, you do have some!
  #49  
Unread 01-23-2004, 10:39 AM
Info about me and response...

I totally get that the surgery should be made available. Geez, if you have cancer you don't want to mess around with alot of trial and error before you take the option of going under the knife. That's a no brainer. Where I'm coming from for all you newere people, and for the older folks too (Sheri knows all too well) This is my plight/circumstances/existence:

I went to another GP who said, "I think you're depressed and you're difficult to treat". I said, "I know that, but this doesn't explain the bone pain, the extreme fatigue, the fact that my teeth are falling out, and the vision problems or tremors". She looked at me and said something deplorable. "Are you really in pain or is it addiction I should be worried about'?
She has my records. Is it too much to ask to rely on fact rather than pop psychology?
I've had it in more ways than one.

The neuro people say they don't know what it could be, the next step is a spinal tap. Then a kidney specialist. And an oral surgeon.

The pain from all of this has caused the following dx's TMJ, chronic pelvic pain, CRPS, Firbromyalgia, CFS, Allodynia, Unexplained blindness and tremors...oh and my teeth are breaking apart and my jawbone is worn down to nothing.

So no. I'm not OK.

And all this doctor is concerned about is one thing at a time. Well what if they're all related! UGH. I'm sick of the medical system. I'm sick of it all.
  #50  
Unread 01-23-2004, 11:25 AM
Would you do it again??

I think (((Sheri))) has hit the nail on the head. In my case, surgery was NOT a choice; I had a large complex mass, high CA-125, and when they got in, everything was "glued" to everything else with adhesions and endo. I went into surgery with no expectations; I'd lived with chronic pain from endo AND from herniated discs in my neck (work injury), so pain was pretty much a constant in my life. I did not look to the surgery to ease my pain -- although, to some degree, it did -- and perhaps that's made the subsequent adhesions and pain easier to bear; it's no more than I expected as a result anyway.

(((Angie))): I am so sorry to hear that you continue to struggle. I can completely relate; my cardiologist (who is also my boss and a good long-time friend) has referred me to a rheumy and to a new pulmonologist for ongoing problems. I think that brings the specialists up to 10 or 11; the number of prescriptions I fill to 11 or 12/month -- and the co-pays are a killer, not to mention that it's harder and harder to work in my normal job OR have the energy for anything creative (such as photography and writing -- check out my gallery here for some recent work) that might bring in some income. I still must be "mom" and "wife" too, and though my DH is incredibly patient, it wears on him too (and the stress has him continuing to smoke 1/2 pack a day, which drives me NUTS).

I'm with you -- I'm convinced (as is my cardiologist friend) that all my symptoms are related to one thing -- probably Sjogren's syndrome, but of course, it means even more testing, more expense, and more time off work...

to all of us who struggle -- whether expected or not -- on this Road we're all on!

Audrey
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