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Unread 11-25-2003, 07:58 AM

I was told by a previous doctor that if Lupron worked to help my pain (bad endometriosis) that that indicates that a hyst will help. Is this necessarily true? I took three months of lupron and had no relief whatsoever so my new doctor said it wasn't worth doing any more. We've tried pretty much all the other hormone routes and I am scheduled for my hyst Dec.16. I really want to get on with my life. This comment is kind of still bothering me though- (i.e. that if lupron didn't help, a hyst won't) . Could any one tell me if this has any truth to it? I just want to get rid of this nagging fear. Thank you so much!
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Unread 11-25-2003, 08:22 AM

I had really bad endo and my DR put me on Lupron three different times. I felt no relief and each time after I was off, it seemed that my symptoms were worse. I’m happy to say that I’m 13 weeks post-op and besides normal pain from recovery I feel no pain. What your DR said could be true, but in my case it wasn’t. Have you checked with another DR? Hope this has helped and best of luck!!!!!!
Unread 11-25-2003, 09:45 AM

My Dr. put me on 6 months of Lupron with Add-Back Therapy (the worst 6 months of my life!) after a Laparaoscopy in which I was diagnosed with Stage IV Endo and lost both my fallopian tubes. I still have my ovaries and uterus.

He did this in an attempt to keep the Endo (whatever is left) at bay. I will admit I was period free (some breakthrough, usually when I over did it) and didn't have the "Pain" associated with my period but I suffered horribly through the side effects.

I am now on Depo-Provera in a further attempt to keep me period free (hence "Pain Free"). But the side effects of this are just as bad.

The drugs were an attempt for me to not have a hyster, which is the next step.

I know the last 3 months of Lupron weren't as effective. I started to have some pain, nothing like before, but nevertheless there was some, when I would have had my period. So I knew that the Lupron wasn't working as well as we had hoped.

I am awaiting my appt for a 2nd opinion and I am accepting the fact that I am probably headed to the castle within the next few months.

I was told that the Lupron should help and if it didn't then the hyster was the next thing.

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Unread 11-25-2003, 12:13 PM

I wrote this a few days ago...just thought it might help

11-22-2003 09:39 AM

I know there have been so many pros and cons with the Lupron injections. I just wanted to share with you my results.

I went in yesterday for a followup echographie of the abdomen and pelvis. After three months of the once a month injection, it had shrunk my biggest tumor (almost 16 cm) down to 5cm!! I was so happy because that means a horizontal incision as opposed to a vertical, a smaller cut, and a bit less healing time. The medicine did exactly what it was supposed to do, for me.

I had all the side effects, some headaches, hairloss (while drying my hair- my husband wishes he could have gathered it all up and transplanted it on his head , night sweats and hot flashes. Yes, uncomfortable but nothing compared to the AWFUL periods I was experiencing every month - plus I have had no periods for three months. The "no-hormone desert" has been difficult to adjust to but my husband and children have all been very understanding (We are going through this as a family).

I go in Dec. 2nd for my TAH, I am nervous, but ready to get on the other side. Yes, there were fears with taking Lupron, but the benefits have far outweighed the consequences for me...besides, all the problems are only temporary...I get my estrogen back after surgery (I'm keeping the ovaries) Hope this helps someone. Lupron is not fun, but it sure did help me.

Keep looking up.....

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