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leiomyosarcoma leiomyosarcoma

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Unread 11-27-2003, 09:59 AM

Is a huge fibroid a good enough reason to have a hysterectomy? Do huge fibroids always turn out to be cancerous? My gyn. says there is slight chance it's leiomyosarcoma. I am postmenopausal (3+ years) but don't think this has shrunk at all. It was found during a routine exam in May 2003 and a CT scan confirmed a huge mass which was diagnosed as fibroid. My only symptom is frequent urination but my gyn is suggesting TAH with a vertical incision. I just had a 2nd CT scan done and the size has not changed and my minor kidney problem is still minor. If this was leiomyosarcoma, would the fibroid still be growing...not that there's much room for growth considering my uterus has been diagnosed as size of 6-7 mo. pregnancy. I am so confused...don't want the hysterectomy (gyn. says other methods won't work because of fibroid size).
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Unread 11-27-2003, 07:48 PM

Fibroids are rarely cancerous and can grow to be enormous. Supposedly they shrink with menopause but I know that doesn't always happen.
Unread 11-27-2003, 08:01 PM

Hi Noodles,

Is your gynocologist and oncologist/gynocologist??? If not, please make an appointment to see one as soon as possible if for not other reason than to put your mind at ease.

An oncologist/ gyno is an expert in the field of gynocological disorders and if there is the slightest chance that cancer may be found they are definately the ones to see.

Keep us up to date and good luck.

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Unread 11-27-2003, 08:27 PM

I did see an oncologist and he said there is a 1% chance of the fibroid being cancerous.....he also suggested total hysterectomy. But he was going by statistics not my particular symptoms. Did agree that the fibroid probably developed in my 30's and grew substantially during my perimenopause days when hormone levels are out of whack.
Unread 11-28-2003, 08:14 AM

of course the choice is always yours but please always consider that there may be the chance of cancer.

I too had fibroids for as long as I could remember. My gyno always said that they were fine, just there, and not growing much. I never had a bad pap or any complications at all and always went every year for an my checkup. All was good until all of a sudden my stomach swelled and got really hard. Unfortunately the rest is history. Did it have anything to do with the fibroids,,, who knows and who cares at this point. However, if my doc had told me that there was any possible chance that these fibrioids were cancerous I definately would have had them taken care of long long ago.

Go with your gut instinct.. It is usually right.
Keep us posted.
Unread 11-28-2003, 09:22 AM

I agree with Rosalie, go with your gut. I too had a fibroid..only one and 3 cm in size. It was one of the 1% malignant. I am so glad I had the TAH/BSO. Are you having any other symptoms from the fibroid, such as pain, heavy bleeding, or anemia?
It is worth having the surgury just for the relief of those symptoms.
Unread 11-28-2003, 10:17 AM

No, I am not having any symptoms except some frequent urination.

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