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5th Annual Ovarian Cancer Survivor's Course 5th Annual Ovarian Cancer Survivor's Course

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  #11  
Unread 12-15-2003, 05:46 AM
5th Annual Ovarian Cancer Survivor's Course

Hi, Audrey--

I'm sorry to hear about your problem paps. I hope that your biopsy results at the end of the month are benign and that your paps return to normal in short order.

I appreciate you suggestions for ways to attend the SGO Conference without incurring the $350 registration fee. To be honest, I don't think I want to put more time and effort into finding a way around paying the general registration. While the $350 would certainly not put me in the poorhouse, I think I was most disappointed with the fact that neither the invitation nor registration materials stated what the cost to survivors would be, and that I received so much conflicting information from the SGO and GCF representatives to whom I spoke.

I certainly think the SGO has a right to charge cancer survivors whatever they choose to attend their annual meeting, but I think they should make this obvious upfront and not have survivors spinning a lot of wheels (making travel reservations, etc.) only to find out much later that there is a substantial registration fee. It would be easy for the SGO to include a category on their registration materials that indicates the cost to survivors. Although I don't want to spend more time trying to find ways to avoid the cost of the conference, I do intend spend some time writing to the SGO President describing my recent experiences and expressing my disappointment with the entire process. Perhaps doing so will result in the SGO making a change to their informational materials in the future, so that other survivors will know at the outset what type of costs are associated with attending the conference.

I also found it quite interesting in looking at the SGO's Financial Report online that at least for last year, the SGO received 66% of its revenue from the Annual Meeting and Postgraduate Courses held during the Meeting, while only 51% of their expenditures related to the Annual Meeting and related courses. The report states that the SGO's "positive margin" of $328,895 was better than expected and resulted at least in part from "a successful Annual Meeting." It would appear to me that if any survivors attended who were required to pay hundreds of dollars like they're telling me I have to pay, that part of the SGO's positive financial margin was generated off the backs of cancer survivors. That makes me think that they might at least want to consider waiving or substantially reducing the general registration for gynecologic cancer survivors interested in attending.

Take care,

MoeKay
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  #12  
Unread 12-16-2003, 02:07 PM
5th Annual Ovarian Cancer Survivor's Course

I was getting a little confused reading the posts back and forth, But today, in the mail, for the very first time ever, I received an invitation to the 2004 5th Annual Ovarian Cancer Survivor's Course.

It is a FREE course for all ovarian cancer survivors, friends, family members, and others who are interested in hearing from the leading experts in ovarian research from around the country.

How I wish I lived closer. The half day schedule seems to be jammed pack with wonderful speakers and topics.

However, on the registration card there is a section for those that cannot attend but would like a transcript sent of the course. I will be requesting that.

After receiving this, I guess it is official, I AM A SURVIVOR!

Rosalie
  #13  
Unread 12-16-2003, 03:10 PM
5th Annual Ovarian Cancer Survivor's Course

Hi Rosalie

Yeap, that is the conference mentioned above. Or a tiny part of the SGO conference.
Here is a link to last year's survivor day conference. In case you are interested.

http://www.wcn.org/gcf/whatsnew/default.htm

oxoxox karenann
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  #14  
Unread 12-16-2003, 03:47 PM
5th Annual Ovarian Cancer Survivor's Course

Yes, Rosalie--

I didn't mean to confuse anyone with my posts above. My messages above all relate to the SGO's 35th Annual Meeting, of which the ovarian cancer survivor's course is but one small part. When I called, the representatives at SGO and GCF kept trying to send me materials for the ovarian cancer course, and I kept repeating that I was not an ovarian cancer survivor. I tried to explain that I was an endometrial cancer survivor and that I was interested in the entire SGO conference, which does have sessions on endometrial cancer, not the free course designed only for ovarian cancer survivors.

Take care,

MoeKay
  #15  
Unread 12-17-2003, 02:12 PM
5th Annual Ovarian Cancer Survivor's Course

I was so pleased to get the invite and would love to go. I'm not sure how feasible a SanDiego trip would be this February. I
am however, looking forward to meeting you ladies in September of 2004. My brother even moved back to DC and if he stays put long enough, I'd have a free place to stay!!
s
  #16  
Unread 12-17-2003, 03:36 PM
5th Annual Ovarian Cancer Survivor's Course

Mary;.... can I stay there also LOL... Just pick me up on your way down from Rochester....

Rosalie
  #17  
Unread 12-18-2003, 08:15 PM
5th Annual Ovarian Cancer Survivor's Course

Rosalie, that sound like a good plan to me! (But that might be difficult as I will probably fly). Last year I flew Southwest for $80 round trip.
  #18  
Unread 12-18-2003, 08:24 PM
5th Annual Ovarian Cancer Survivor's Course

I too got an invitation to the survivors course. I would love to go but it is too far to go for one day. I see my gyne/onc is a presenter and panel member, I'll be sure to ask him about it when I see him in Feb. Also I'm glad there is internet access to the material presented.

I am planning on D.C. in Sept if at all possible.

Ruth S
  #19  
Unread 12-19-2003, 02:24 PM
5th Annual Ovarian Cancer Survivor's Course

If it's free, maybe I will drive down to see Kareann and Jeff again! (Karen -- I was so sad that Jeff didn't call when he got to So Cal. I never heard from him, but hope he had fun here.)

I'm working all day on the 7th. Haven't checked the link yet, but if it's on any other day, I might be able to come.

If not, I hope that Karenann can provide us with a brain dump (like she and I both did after the OCNA conference).

s!
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