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Pelvic Varicose Vein Recurrence? Pelvic Varicose Vein Recurrence?

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  #1  
Unread 12-16-2003, 02:58 PM
Pelvic Varicose Vein Recurrence?

I had a TAH/BSO at the end of March this year for Pelvic Congestion. Before the op as well as terrible bleeding I had the most awful back pain. It got worse as the day went on and used to work its way down my legs. After the op I was told that the pain was caused by pelvic congestion and that the blood vessels in my pelvic region were massive. I was also told that now that I had had 'everything' removed the rest of the blood vessels would have nowhere to go and would wither away. Well..... I have the pain back - just like it was before. I really dont know what to do about it becos there is no point me seeing a gynae doc as it cant be on anything connected with them. I suspect I have the varicose veins on my bladder and bowels now.

Has anyone else had this and can anyone offer any advice?
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  #2  
Unread 12-18-2003, 06:34 AM
Pelvic Varicose Vein Recurrence?

(((Wendy))),
I'm sorry to hear your still experiencing pain & problems I wish I had some personal experiences to share but I dont....hopefully someone with someone who has dealt with Pelvic Congestion will come along shortly & share In the meantime, I found some info that might be of some help to you:

Pelvic Congestion Syndrome: <Quick Reference>
Reviewed by Dr. Steven Elias

  Quote:
Pelvic congestion syndrome is caused by a disorder in the veins servicing the pelvic organs. It is similar to varicose veins in the legs: leakage occurs in the valves in the veins that assist in blood flow toward the heart. Blood then flows backward and pools in the veins. This additional pressure causes the veins to stretch and bulge, causing pain and discomfort. The uterus, ovaries, and vulva may all be affected by it.

Detailed Description:
Pelvic congestion syndrome is difficult to diagnose. Many women suffering from it have also been treated for varicose veins in their legs without experiencing pain relief. These leg treatments may not have been successful because the pelvic vein problems were not recognized. Women who have a tipped uterus or have had two or more pregnancies are at a higher risk for pelvic congestion syndrome.

Symptoms include:
  • Pain during and after sexual intercourse, lasting up to 24 hours
  • Tender ovaries
  • Backache
  • Pain during periods
  • Irritable bladder
  • Abnormal menstrual bleeding
  • Vaginal discharge
Pelvic congestion syndrome is diagnosed after a thorough pelvic exam, possibly including a pelvic ultrasound or venography.

http://www.veins1.com/care/condition...?bulletinid=14
*Treatment Options:

UAE

  Quote:
Sclerotherapy is a procedure used to collapse the veins.

Detailed Description:

Sclerotherapy is usually used for smaller varicose veins and spider veins. In the procedure, the skin over the area of the veins is stretched taut and a tiny needle is used to inject the vein with saline solution (salt water) that irritates the lining of the vein. In response, the vein collapses and is reabsorbed. The surface veins are not longer visible, and most patients experience symptom relief. A physician may also use ultrasound-guided sclerotherapy to treat deeper veins that might otherwise require surgical removal.
Doctors perform sclerotherapy for spider veins on an outpatient basis and does not require anesthesia. Afterward, your surgeon will wrap the area in compression bandages or will have you wear a hose. The injection area will be tender for two to three days, and the bruises will fade in about a month. Darker pigmentation may occur and can last for as long as a year.
Complications can include the formation of blood clots in the superficial veins, local infections, and scarring. Another complication is development of mats of red or purple blood vessels, which may disappear on their own or require more injections or laser treatment.
http://www.veins1.com/care/procedure20.cfm/14
Pelvic Congestion Syndrome~websites

Gynecologic Embolotherapy for Uterine Fibroids and Pelvic Congestion~website

Symptoms & diagnosis of pelvic congestion syndrome

Dr. Mark Perloe explains current thoughts on pelvic congestion

Good Luck w/everything ((Wendy)) Pls keep us posted & let us know how your doing....((((hugs))))
  #3  
Unread 12-18-2003, 08:43 AM
Pelvic Varicose Vein Recurrence?

I am so sorry you are still having pain despite the surgery

One thing that I did that was very helpful was to have a conscious pelvic pain mapping done. It helped identify exactly where the pain was coming from... sometimes it is not always obvious to the surgeons when they are operating what exactly is painful... so the pain mapping can help identify the source. I had mine done in 1999 and it was very helpful in telling my doc where the pain was coming from at the time. I had quite a bit of relief after that surgery... unfortunately I am having more pain again
...and the parts that were so painful in 1999 are no longer "inside me" so it's a new story I guess.

Last spring I underwent a pelvic venogram done by an interventional radiologist... she was checking for the varicose veins as mentioned in the articles SHeri posted. She couldn't find anything unusual when she checked the ovarian veins.... she didn't check anything else.

I hope you find an answer.

Sarah
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  #4  
Unread 12-19-2003, 04:08 PM
Pelvic Varicose Vein Recurrence?

thanks ladies for your support.

Everything I read points to the fact that Hysterectomy is the ultimate 'cure' if nothing else works. Huh!

I have also read that oestradiol makes the condition worse - nobody told me that prior to surgery and I had hormone implants re-done recently and now I am wondering if they have anything to do with the pain coming back

I feel like I am going down a dark tunnel with a brick wall at the end. I suppose I have to start the trips to the docs surgery again - how I hoped this was all over.

Sorry, feeling very sorry for myself.
  #5  
Unread 12-19-2003, 05:39 PM
Pelvic Varicose Vein Recurrence?

Dear Wendy,

Do consider looking into the option of a conscious pelvic pain mapping.... that way it will hopefully tell the doctor where the pain is coming from... everything I have read about the varicose veins in the pelvis suggest it is related to the ovarian and uterine veins (like the male version of the testicular variscosities)... so perhaps you have something else going on in addition to the varicose veins.

The pelvic venography is not a bad procedure and can identify varicose veins if you still have them... the doctor can even emobolize them while you are having the procedure. (It is done like a heart catherization where they make a small (very) incision in your groin and thread a cathereter through veins until they get to the ovarian veins...

I just mention this because I have multiple things going on that contribute to my pelvic pain problem. I have been told over and over again by the Gyn, pelvic pain specialists, and pain mgt doctor that when you have long term pain it has usually become multiple problems working together... that is why it becomes so complicated.

ANyway, I do hope you find an answer(s). Let us know what the doctors have to say.

Sarah
  #6  
Unread 12-19-2003, 08:46 PM
Yes, I can relate....

I posted about this exact subject back in may.
Here is a link I found helpful at the time. It explains about pelvic congestion syndrome and that hysterectomy may not be the only answer. I hope you find this helpful and get some relief. I for one still suffer with my pain and haven't broken down and looked further into this. I just can't bring myself to go through another procedure just yet.

Good luck!!

Pamela
http://www.scvir.org/members/caseclu.../sub2/sub2.htm
  #7  
Unread 12-20-2003, 04:59 PM
Pelvic Varicose Vein Recurrence?

Wow Pamela

That is such a relevation! someone actually admitting that what I feel is real and that something can be done about it. Not sure who I have to contact in England - dont know if we have Pelvic Pain Specialists. Or Radiologists who specialise in Embolization?

The pain is so similar to what I experienced before the op - the only difference is that it is not accompanied by terrible bleeding as I no longer have a womb!!!

I still need to find out if my hormone implants are making things worse as everything I have read seems to point to oestrogen exacerbating the varicose veins.

Thanks for putting a light at the end of the tunnel for me.

s
wendy
  #8  
Unread 12-20-2003, 07:12 PM
Pelvic Varicose Vein Recurrence?

Dear WEndy,

I forgot to mention that even after my right ovary was removed the right ovarian vein was still there and "apparently" in use by something as the radiologist was able to do the venography on it. The Pelvic Pain specialist I saw in 1999 commented to me that the UK was more advanced in the study of pelvic congestion than the US. I know I read several articles about it from a St. Mary's hospital in the UK but I don't recall what city it was in... sorry....Perhaps check out the International Pelvic Pain Society web page (pelvicpain.org ) for someone in the UK.

Sarah
  #9  
Unread 12-20-2003, 09:42 PM
Wendy you are so welcome.

That is exactly how I felt after I read the article. I was also a little upset at the thought that my hyst had been for nothing. Of course then I thought back to the pain I had pre hyst and realized that in spite of still being in pain the pain was definitely less than before. It is nice to see that little bit of light at the end of the tunnel and to know that you are not crazy. I know, I felt the same way. I think you have to see a radiologist for this procedure. Good luck I hope you have some relief in sight soon!!!

's
Pamela
  #10  
Unread 12-30-2003, 04:07 PM
Glad you brought it up- Pelvic Congestion

Thanks again, ladies for being here for me. It has been over a year since I posted and after joining several other support sites for chronic pain, I remembered this one. Funny how I could find absolutely nothing in the other sites on this subject matter and within the first search found your posts. I really really appreciate the information and share your frustration on the topic of reoccuring pain after a hyster. I am thinking about having a venography or seeing someone about interventional radiology. Has anyone had success with this proceedure in ridding pelvic pain? Most sites on the subject report huge successes, but I am reluctant to get my hopes up. Also, no doctor has actually recommended this for me. I am grabbing at anything because I am so tired of going to the Pain Clinic and "band-aiding the situation. I know that it is a long shot, but I have to have some hope in a "cure". Anyone...........Anyone with a success? Thanks and wishing pain free days for us all! Oh, in addition who would perform the pain mapping? I would also be interested in this proceedure, but not sure in who to approach. OBGYN or general surgeon, anesthesiologist? Thanks again,
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