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Nerve Entrapment Nerve Entrapment

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  #1  
Unread 12-17-2003, 08:00 AM
Nerve Entrapment

Hello to everyone. Haven't written in awhile as have been awaiting an appt. with new dr. Well once again i write in frustration. Met with a pain clinic yesterday had a very thorough examination and draining ?'s. I'll try to make this short I had hyst.22months ago and have ongoing pain from first surgery. I have internal deep pain which was very evident when I was examined (alot of abd.wall etc.)I've had 2 surgeries for adhesions and have a very sore incision. I also have a terrible pain to the right side of my incision which sometimes shoots over the the groin/hip area. I can't sit/stand for long and walking is very hard. Yesterday pain dr.(neuro guy) thinks it's nerve related which I have been told before (when i was sent to plastic surgeon who injected me but didn't work). So he puts me on neurotonin (anti epiliptic meds) and the duragesic patch (which i was already on and had terrible side effects) he wants me to try 1/2 patch. He wont' see me again until i have a cat scan and mri then he'll see how the meds are working and possibly think about botox injections. Ok now are my dh and i nuts or could this problem not be fixed by surgery. We are so frustrated and are now ready to get aggressive as we have just followed along with the dr's for 22 months and have now learned we are getting no where. I am 35 yrs old and am not ready to live the rest of my life like this on meds and in pain. We are now going to meet with family dr. and my gyno who are both very supportive but i don't really think they get the whole picture. Any suggestions from anyone with similar complications would be greatly appreciated. sorry so long just having really bad day. Thanks for listening. Neener
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  #2  
Unread 12-17-2003, 08:25 AM
Nerve Entrapment

Neener (From a sister in Toronto)...

I'm sorry to hear that you are in so much pain, and frustrated to boot. I can totally understand my dear...

I was diagnosed with Nerve Entrapment / Nerve Damage approx 1 year ago - This following numerous ops due to Endo. When a doc touches my ab, I have been known to almost jump off of the table, and in fact, I almost gave one of my docs a knee right in the face!

The Neuro doc at my pain clinic also started me on Neurontin. I worked up my dose very gradually and have found that it helps me a great deal. My doc also put me on the Duragesic patch..that dose was also worked up slowly, as I too had side effects. My doc has mentioned Botox injections, but I haven't agreed to them yet. I wanted to 'exhaust' all my other options first. Since my experience with Lupron, I am quite fearful of injections...I know they are different, so perhaps in the future...

My docs and I have discussed surgery (due to a deformed vagina as well as possible Endo/ORS) But we are fearful because of the nerve damage...Further surgery could feasibly make this worse. So, I am thinking - surgery is 'my' last option...

While I do not have any suggestions...I hope that you will get the tests done that your pain doc is ordering. It is good to rule out other things as well.

I am 37 and had my hyst in 2000, so I can relate to how you are feeling. A while back I had to come to terms with the fact that I just may be in pain management for a very long time - definitely a hard pill to swallow...But it is something I had to come to terms with.

Please let us know how you make out with your tests dear sister....S
  #3  
Unread 12-17-2003, 09:40 AM
Nerve Entrapment

Hi Ladies,

I am sorry you are both having continuing pain problems.

I am 41 now... and have chronic pelvic pain since I was 28 years old. I had a TAH in 2002 and am still having pain problems... which I thought might be all abdominal wall and neuropathic but a recent visit to see the Gyns at Mayo suggested maybe not... I have laparascopic surgery scheduled for Feb 4th to check for more endo and do a Presacral Neurectomy... My local doc could do this surgery but he is worried about another laparatomy so that is why he referred me to the Mayo ... the Gyn/Onc there can do the same surgery laparascopically.

I am still not convinced I have endo pain... I have alot of myofascial trigger points in my abdominal wall and pelvic floor muscles so I have some concerns that maybe surgery will just aggravate everything instead of helping. However, I did have multiple treatments for the myofascial trigger points and nothing helped. This is similiar to how I was in 1999 and in the end it turned out that the myofascial problems were a referred result of severe visceral pain (specifically from my right ovary and uterus).. once I had that taken care of the myofascial problems improved WITHOUT treatment.

A pelvic pain specialist I saw recently suggested that my abdominal wall/pelvic floor problems were a neuropathic problem (nerve damage or maybe the nerve pathways are just worn out) from the years of internal pain. He treats these types of problems frequently and told me that he has yet to see myofascial trigger points in the abdominal wall be a stand alone problem... they are usually a result of something else. However, the treatment he gave did not help and so he referred me to a pain management specialist who did the Presacral nerve blocks which did help... but only for a couple hours.... so that is how I ended up at Mayo.

Over the years I have some to realize that sometimes there is not an answer to pelvic pain... or at least one that is obvious... I have figured out how to cope with daily pain and carry on. I have not given up on finding an answer I have just decided that I am not going to let this be my whole life story.... just a part of it. I have found distracting myself with other things is very important and helpful. I am thankful that my pain is less than what it used to be... before my right ovary was removed it was about an 8 out of 10 on most days... now it is about a 5 to 6 out of 10. Maybe the Mayo surgery will get me to a 3 out of 10.... time will tell.

The best thing I ever did for myself was learn to cope with the pelvic pain problem.... while I keep looking for an answer.

I hope you find a definate answer. That is the best outcome but not always attainable unfortunately. Many many (((hugs)))). Please keep posting.

Sarah
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  #4  
Unread 12-17-2003, 11:12 AM
Nerve Entrapment

((Neener)),
I'm so sorry your still dealing w/ongoing pain & problems I know all to well how frustrating it can be when no one seems to have any answers to a successful treatment plan to provide you w/some answers or relief Unfortunately, undergoing surgery to try to relieve the pain from Nerve damage may hold the opposite effect by increasing the pain or damamge. I suffer from extensive Adhesions<that cause me quite abit of pain & complications & Nerve damage> Several Specialists strongly advised me against any further surgery unless it was life-threatening due to the same risks. I have been seeing Pain Mgmt Specialist that help keep my pain at a liveable level. Here are some links I have on Nerve damage & entrapment. Many discuss this damage following surgery as well as some treatments to help relieve it:


Femoral nerve damage following surgery:
http://www.medhelp.org/forums/neuro<...ive/16463.html

http://www.pudendal.de/

http://neuro-www.mgh.harvard.edu/fo...ervedamage.html
http://www.gwpharm.com/news_pres_13_jun_02_int.html
http://www.perspectivesinnursing.org/v1n2/Smith.html

Nerve damage at time of hysterectomy

Pelvic Surgery or Trauma

Is nerve damage permanent?
**Taken form a Q & A forum
  Quote:
Involvement of the Femoral Nerve which supplies sensation to the thigh and controls hip flexors and quadraceps can be compressed both during pelvic surgery (by compression in a retractor blade) or in during lithotomy positioning e.g. during vaginal delivery, vaginal hysterectomy. Prognosis depends on a few factors and an EMG can give an idea of this. Given the fact that this happened last February, it sounds like there was nerve fiber loss and so recovery if it occurs takes many months for the nerve fibers to regrow to the muscles involved. I may be misunderstanding you, but it does seem like some improvement has occurred with your strength and some of the pain. Unfortunatley, at 9 months past the injury, much of the improvement that would have occurred may have already, and there may not be much more. But your neurologist would be able to tell you better. If thigh pain from nerve injury is the major problem now, at least that can be treated with a number of agents for nerve pain.
http://www.medhelp.org/forums/neuro/archive/12786.html
http://womenshealth.about.com/msubadhesions.htm

http://www.neuropathy.org/

Ilioinguinal Nerve Entrapment and Pain:

http://www.obgyn.net/cpp/cpp.asp?pa...cpp_perloe_0599
http://www.helpforpain.com/arch2000may.htm

Here are some that have relief options available in treating the pain from Nerve Damage:

http://health.discovery.com/centers...erve/nerve.html

http://www.perspectivesinnursing.org/v1n2/Smith.html

http://www.gwpharm.com/news_pres_13_jun_02_int.html

http://link.springer-ny.com/link/se...03/80210139.htm

Trigger Point Injections

Nerve Blocks

Good Luck w/everything ((Neener)) My thots & prayers will be with you that you can find some answers as well as some relief to your pain...pls keep us posted, my friend

(((((hugs)))))
  #5  
Unread 12-22-2003, 06:11 PM
Nerve Entrapment

Neener,
I am so sorry to hear that you are continuing to have problems. I know all to well the pain of living with pain. I am concerned that your doc has advised you to use 1/2 of a patch. It's my understanding that the duragesic patches should NOT be cut. I don't know how they could be cut in 1/2 as the meds are in a little pouch and if you cut the patch you will be cutting into that pouch releasing the meds. Please check with your doc about this. You can read more about this at www.duragesic.com

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