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Terrible surgery left Epstein Barr to deal with Terrible surgery left Epstein Barr to deal with

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Unread 12-18-2003, 11:36 AM
Terrible surgery left Epstein Barr to deal with

Hi! I am new to this, so bear with me. I had a partial hysterectomy 2.5 years ago at age 29. The doctor said it would help the prolapsed uterus. I did this and everything went well....I thought. One month later, I have sever abdominal pain, and fever. After many emergency room visits, which no one could find the problem, they do another surgery. My entire abdomen was abcessed...or STAPH infection. Needless to say, the partial hysterectomy became an almost full. I am now left with one ovary and one tube.

Since then, a couple months later I started having low grade temperature. I went back to my family doctor and was diagnosed with Epstein Barr, which is a form of mononucleosis. Today is 2.4 years later and I am still dealing with low grade temp. and achy body all the time.

Does anyone else feel this way? If so, what did your doctor do for you?

I finally had the doctor run more tests and am waiting for results. Maybe it is something simple like needing some hormones.

At age 31, I feel like I'm 80.

Lots of love!

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Unread 12-18-2003, 12:20 PM

When you say you were diagnosed...do you mean through a blood test? I'm wondering if your doctor just came to the conclusion you have this problem or if he's tested for it (some HMO's do things as cheaply as possible).

I was diagnosed with Epstien Barr virus years ago, but my problem turned out to be an infection (due to a root canal that created problems under the sinus cavity). I had the blood test that confirmed I did have the mono virus that causes Epstien Barr, but my symptoms were due to this infection. 3 years later when the infection in my face was found and treated I no longer had the low grade fever and aching.

I don't know enough about this particular problem to offer much help, but I would suggest checking into it further. If this is truly what you're dealing with then perhaps you can look into dietary help for your body and things like that. I just wouldn't take a diagnosis without in-depth help. I've learned through my nearly 40 years that you really have to be pro-active in your own health care.

I hope you find the help you need. When I've faced new problems I've headed to the bookstore or library to get as much info as I could to help me feel more control over what I'm dealing with.


Unread 12-18-2003, 02:08 PM
Funny you mention that...

Hi! Thanks for replying so soon. Yes, I went through the blood work and they confirm Epstein Barr.

Funny you mention the virus from a root canal. Last time I went in for dental work, I had x-rays and he said that I had a small infection under a tooth that had a root canal done to it. It said that I had the infection last time I was in, but I don't remember him telling me that. He referred me to a specialist, but I have never went yet because it doesn't hurt.

How did they find out that the infection was in your face?

Chandra (designlady)
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Unread 12-18-2003, 02:39 PM
Hi hun...

I had to (eventually) see an oral surgeon to find the problem from the root canal. In my case the sealant from the root canal (a normally benign substance) was pushed beyond the root (also normal in a root canal procedure). The problem was that in my case the sealant created an infection underneath the sinus area on the left side of my face. I could FEEL the pain there...and yet no one could find it on an x-ray. The oral surgeon finally took a better x-ray and found the infection. It took 2 surgeries to get everything cleaned out up there, but once it was done I was fine...no more fevers or body aches.

I also had my Epstien Barr virus confirmed through blood work, but I was told by my GP doc that a lot of people can have that confirmed through blood work and not have symptoms.

I urge you to continue to work with a doctor to find the source of your fever and aches. I'm not discounting the Epstien Barr thing, but if I went with that diagnosis I'd still be sick today. I suspect that you've got something else going on that is creating these symptoms for you. It's worth looking into hun.

Let me know if I can help in any way or answer any questions. I'm on my way out the door right now, but I'll check back in tomorrow.

Unread 02-09-2004, 12:08 PM
Fevers still continue

Hi! Well, I had the root canal a month and a half ago and still having the fever, chills, aches.

The tooth was very abscessed and they treated it with a root canal and Keflex for two weeks.

But, unfortunatley the symptoms still persist. So, this Wednesday I am returning to my internist and demanding he refers me on to someone else.

What scares me the most is that I have had these symptoms for three years. By body is progressively weakening. I am scared that if no one treats this now, it will lead to even worse things.

I do have a strong faith that God is the ultimate healer and that he is the Great Physician. Keep praying that the God reveals to the doctors whatever is going on with me.

Thanks for you prayers!
Unread 05-28-2004, 12:03 PM
Fluid in Vaginal Cuff..possible surgery

Hi! Well, I had a partial hysterectomy surgery in 2001 which turned into almost a full by the next month. My abdomen was fully absecced due to the surgery. The doctor ending up removing everything except for my left ovary.

I am thankful that I don't have to take hormone replacements. But, I have for the past three years felt sick...fevers, achy muscles, extreme fatigue, low WBC, anemia, etc.

I have always presented my to each doctor my story of the hysterectomy from hell, yet none of them would even consider that could be the problem.....until now.

I saw a Rheumatologist who listened to my concerns. She ran every test under the sun for blood and astonishingly came up with nothing. But, she also had me get a CT scan done.

And, here is what she found...1" x 1" cyst on my ovary and fluid in the vaginal cuff.

She said she thinks this is why I have been sick. She isn't sure if the fluid is blood or what. She called it "post operative abnormality".

I could cry...although I am thanking God for not anything life threatening, like cancer, leukemia, etc....I am terrified of another possible surgery.

Ladies, I have not been back to a OB/GYN, but once since the surgery.

I have been to 5 other types of doctors though.

So, now I have to find a OB/GYN that I can trust...and the rest I have to give to the Lord.

I have three small children, a loving husband, run my own website business, and am 32.

Has anyone experienced this situation? Any feedback would be so much appreciated!

Have a blessed day!
Unread 05-28-2004, 12:40 PM
Terrible surgery left Epstein Barr to deal with

I'm sorry your going through this. I am only 3 1/2 weeks post op from an LAVH but I've been complaining to my doctor about pain and heavy bleeding. He just said I was on the heavier end of "normal". Well, I pushed for further investigation because I just didn't feel normal. So, I think just to please me he ordered an ultrasound and found an orange sized haematoma above the vaginal cuff. I've had 2 more ultrasounds since then and each time the haematoma is smaller. There's a procedure where they can drain the fluid from that area. I just wonder how long your body has been storing this fluid. I would think it would have caused an infection way before now. It's amazing how we suffer through such surgeries to get better and find nothing but complications. I truely hope you get better soon!
Unread 06-01-2004, 10:01 AM
Terrible surgery left Epstein Barr to deal with

Two thoughts here:

Once you have the Epstein Barr Virus, you will always test positive for it. They are suppose to be able to tell by the blood work if it is an active infection or dorminant one. I had mono in the 6th grade and continue to test positive for EBV.

Sometimes positive EBV tests run hand in hand with Chronic Fatigue Syndrome and Fybromyalgia. Just somthing you might want to explore.

Hope all of you find answers to your continued problems!
Unread 06-01-2004, 07:48 PM
Terrible surgery left Epstein Barr to deal with

I was also diagnosed with Epstein Barr Virus in February. EBV is the virus that actually causes the mono. It does get better. Sometimes though you can still have flare ups. Some docs try to tell you once you've had initial fever and all the virus goes dormant. NOT TRUE. It can flare up. I also have Type 1 Diabetes and these things tend to feed on each other. If I get a cold or something it affects the EBV and the Diabetes.

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