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Can someone help with these terms,Please? Can someone help with these terms,Please?

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  #11  
Unread 12-31-2003, 06:07 AM
Can someone help with these terms,Please?

I also had complex atypical endometrial hyperplasia. I am also overweight a lot. My ultrasound came back showing I should have a D&C. I did on Sept. 30. 2003 and it came back with CAEH diagnosis. 2 doctors read the results and it said it could turn into cancer in 6-12 months. My dr. wanted to do a hysterectomy and I had it done 12-9-03 and am doing great. The lab report came back confirming the dianosis so my dr. said it was a good thing to have it all out. I am 54 and already through menopause so I am not on hormones.
Good luck with your choices. Listen to your dr. I had no symptoms that I knew of so I was shocked to learn of this. (No periods and no bleeding for 4 years!)Luckily I go for regular check ups.
Liters50
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  #12  
Unread 12-31-2003, 07:26 PM
Can someone help with these terms,Please?

Hi Debbie
I am 44, heavy and have hypothyroidism. My periods have never really been regular from the time I started at age 13. So it wasn't unusual for me to skip a month or two and sometimes even three.

This past Memorial Day weekend I had the period from hell. I was bleeding so badly and passing huge clots and I seriously considered going to the emergency room. To try and make a long story short.....I had an ultrasound and a transvaginal ultrasound that showed a thickened endometrium. I was referred to an OB/Gyn who at the end of June performed a D&C, Hysteroscopy, operative laparoscopy and an endometrial biopsy. My pathology came back as Complex Atypical Endometrial Hyperplasia. As you may know by now, Hyperplasia is simply an overgrowth of cells and tissue. But this is a breeding ground for abnormal cells to develop. Atypia means that some of the cells have already turned abnormal. It is not cancer, but it is definitely pre-cancerous. I was given the option of a hysterectomy or hormone therapy with progesterone and very close follow ups with D&Cs and biopsies. I took my results to another OB/Gyn for a second opinion. He said the options I was given were correct but that he wouldn't even recommend the hormone therapy. He said that Complex Hyperplasia in and of itself is considered a precancerous condition. With the atypical cells that makes it even worse and, in his opinion, a hysterectomy was the only way to go.

I did alot of reading on the internet and did learn that if I did not have the hyster I had a 25-30% chance of developing endometrial cancer. I thought those odds were just a little too high for me. And my OB/Gyn said that they cannot biopsy the entire endometrium. So even if the biopsy came back ok that wasn't a guarantee that there wasn't something growing somewhere else. After talking to friends and family I decided on having the TAH and had it done on October 20th.

When I got the results of the pathology from the surgery my Dr. told me that in the 4 months since having the D&C, etc., there was ALOT more hyperplasia and more atypical cells. It just makes me wonder if I had not had the TAH how long would it have taken for those cells to turn to cancer.

No one wants a hysterectomy. I sure didn't. And it's something every woman needs to decide for herself with the help of her doctor. But now I have the peace of mind knowing that it's all out and I don't have to worry about it and sweat the results every time I had a D&C.

Good luck to you and I hope everything works out for the best.

Colleen
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