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Saw the Uro-Gyn Saw the Uro-Gyn

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  #1  
Unread 12-22-2003, 07:50 AM
Saw the Uro-Gyn

I saw her last Thursday, had he urodynamics test done, said i looked pretty good, had a retention of about 60cc, not too bad, I did leak, but not til after they put a pessary in me so my bladder was in it's normal position. Since I drove so far to get there she decided to do the camara up the bladder thing and lo and behold, I have IC, pretty bad from what I gather, she put me on Detrol LA for the gotta go right now, Elevil for the waking up 3 or 4 times a night and Elmiron for the IC, said it could take up to 3 months before the Elmiron is working fully, I go back and see her in March to discuss surgery for my fallen bladder as she said that she wouldn't even consider touching my bladder in the shape it is in right now with the IC, she said that with the surgery I may have a cath for awhile and with the untreated IC it would be extremely uncomortable for me, I understand that cause with every surgery I have had I have begged them to take the cath out cause it was killing me.
So, that's what I know now, at least I have a reason for the pain now, and hopefully this med will work for me.
Happy Holidays to everyone...s
Carmel
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  #2  
Unread 12-22-2003, 11:34 AM
Saw the Uro-Gyn

Oh ((Carmel))
I'm soo sorry to hear of the IC DX....There have been many advances in the treatment of many of the symptoms of IC over the yrs. The thing that appears to help sufferers the most is a lifestyle & diet modification. There are certain foods & beverages that can heighten the pain of this condition.
Pelvic & abdominal surgery seem to be the common factor in IC patients...the bladder is extremely sensitive to the handling of it that is required in most open surgeries Here are some links I've saved over time, some posted by other ((Sisters)) here who are dealing w/this disease as well

Is there a Cure for Interstitial Cystitis?

Naturopathic Treatment

What is Interstitial Cystitis?

Pain Management and IC

  Quote:
Stress Reduction Techniques, Biofeedback, and exercise may reduce the occurrence of flares by strengthening the muscles of the pelvic floor.
For some, exercise exacerbates symptoms by irritating an already tender bladder or sore abdomen.

Diet:
Many people find that eliminating acidic, spicy, and sugary foods, as well as dairy products from their diet helps to control symptoms. The Interstitial Cystitis Association (ICA) provides a list of foods that may be problematic:
  • Beverages — hard liquor, beer, wine, carbonated drinks, coffee, tea, cranberry juice
  • Carbohydrates and grains — rye and sourdough bread
  • Condiments — seasonings, mayonnaise, miso, soy sauce, salad dressings, vinegar
    Dairy products — aged cheese, sour cream, yogurt, chocolate, milk
  • Fruits — apples, apricots, avocados, bananas, cantaloupes, citrus fruits, cranberries, grapes, nectarines, peaches, pineapples, plums, pomegranates, rhubarb, strawberries, fruit juices
  • Meats and fish — aged, canned, cured, processed, or smoked meats and fish, anchovies, caviar, chicken liver, corned beef, meats containing nitrates or nitrites (e.g., ham, bacon)
  • Nuts
  • Others substances — tobacco, caffeine, diet pills, junk food, cold and allergy medication containing ephedrine or pseudoephedrine, vitamins that contain fillers (especially aspartate), tofu
  • Preservatives and additives — benzol alcohol, citric acid, monosodium glutamate, aspartame (Nutrasweet®), saccharine, artificial ingredients and colors
  • Vegetables — favabeans, lima beans, onions, tomatoes
Most IC patients have the least amount of trouble with rice, potatoes, pasta, vegetables, and chicken. Foods from the above groups that may be tolerable include the following:
http://pw1.netcom.com/~jewel3/hopeforcure.html
IC Network

IC Help

Good Luck ((Carmel)) I hope you are able to find some relief from your pain now that you know what your dealing with..pls keep us posted on how your doing....((((hugs))))
  #3  
Unread 12-22-2003, 05:40 PM
Saw the Uro-Gyn

Dear Carmel,

I am sorry about the IC diagnosis... but hopefully it explains many things and now that there is a definite diagnosis perhaps you will start to feel better with the treatment.

I have been taking the Elavil for several months now to help with my sleeping. It has helped my bladder ALOT too. I do not have IC apparently... but for some reason thought to be neuropathic in nature... when my pain gets bad my bladder starts to feel like it has to go all the time... The Elavil has really helped that. If I forget to take it I am up several times to go to the bathroom but with it I do not wake up at all. I also notice a difference during the day too.

Don't be surprised if it makes you really tired for a couple of weeks... those side affects have worn off for me and I feel pretty normal in that regards now.

Best wishes for some improvement in your symptoms.

Sarah
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