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Unread 12-23-2003, 02:49 PM
surgery #3

I am about to undergo surgery number 3(actually #4 if you count the D&C and endometrial ablation). In March of 03 I had a TAH and LSO for endometriosis, adenomyosis, fibroids, and a very painful, never ending period. In July of 03 I had an RSO and lysis of adhesions. I was pain free for about 3 weeks and since early September I have had lower right quadrant pain very similar to the pain I had before the July surgery. I have had a CT scan and a colonoscopy which both came back negative. I've met with the surgeon who promises he can correct the problem. I guess I'm just a litttle aprehensive... I've done my homework and researched adhesions on the web. If this next surgery does not reduce/eliminate the pain I am going to need to find creative ways to manage the pain! Any thoughts or suggestions?

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Unread 12-23-2003, 03:28 PM
surgery #3

Dear Monica,

I am sorry you are continuing to have pain problems It's a bummer I know.

I have had pelvic pain for 13 + years. I have had 8 laps for endo, 2 c-sections, the TAH last year (RSO in 1999).... and I am still having pain problems. I have alot of muscle problems now around my pelvis from all the years of internal pain.

Most of the surgeries I had did not help my pain much... it wasn't until I had a conscious pain mapping done that I did find some relief... the pain mapping showed where the pelvic pain was coming from and then my Gyn was able to operate and be successful... up until that point he was pretty much assuming that the endo he could see was the problem but it turned out not to be the case... That surgery was in 1999 and it helped quite a bit at that time.

Since the TAH I have had continuing/worsening pain problems. I have my left ovary remaining and after the TAH I went off the pill for the first time in many many years so some of the docs I have seen think it is still endo pain. I have alot of myofascial trigger points in my abdominal wall and pelvic floor which I have had treated multiple times with no luck. I have also tried treatment for neuropathic pain in the form of nerve blocks which was not helpful long term (it helped alot for a couple hours though so it was useful). I eventually ended up at the Mayo in Scottsdale and am scheduled for surgery in Feb... a presacral neurectomy and possible endo surgery.

THe best thing I ever did for myself was change my attitude about the problem I realized several years ago that I could have this problem for a long time or for the rest of my life and I didn't want it to be my whole life story.... So I just started doing the best I could inspite of it and distracting myself with other things and that has really helped. Afterall, what other choice is there? I really didn't think crawling in a hole and feeling sorry for myself was a good option ... Several years ago I also sought help from a counselor who specialized in helping people cope with long term medical problems especially chronic pain... that was really helpful.

I hope you find some answers. Keep looking. Chronic pelvic pain can be very difficult to diagnose and treat. I thought it was very telling that the Gyn/Onc at Mayo that I saw recently who specializes in Cancer, Endo, and chronic pelvic pain told me that it is unlikely I will ever be completely pain free but he did think he could help me have less pain.... he also said that results can take many months to years to realize because sometimes the nervous system and brain have become so overactive that it can take a long while for them to calm down.

Unread 12-23-2003, 07:33 PM
surgery #3

Hey Monica ! Where in Wisconsin are you from ? I heard that Madison has a excellent surgeon that specializes in adhesions. Don't know his name but I'm sure someone there would know it !

By the way, I'm from Green Bay!

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