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There goes the hair! There goes the hair!

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  #11  
Unread 12-31-2003, 07:18 AM
There goes the hair!

Hi Limbo,
I, too, can say, "been there" with the hair loss. It was pretty traumatic for me, too. My onc. said I could expect hair loss about 12 days following my first chemo. treatment. Sure enough, on day 13, it was falling out by the handsful. In about 4 days there was a very thin covering over my head. It was difficult for me because I didn't look "sick" until my hair came out...it was easy to forget I was dealing with an illness at least for part of the time until then. The first time I put on my wig to go out of the house, I fell apart and couldn't go. My husband just brought dinner to me. I decided that I had to "suck it up" and go on because I couldn't stay home forever! (My husband had helped select my wig early on and it is much more straight than my natural hair. However, I have been given great compliments on my "new hair style" nearly every time I go any place...Lots of people don't know it is a wig so my self esteem has sky rocketed!! And...my husband feels great since he "picked it out" for me!!) I never lost all of my hair...although it is paper thin! We just laugh at how funny my hair is every morning and my 20+ year old daughter delights in rubbing my shiny little head. I had my last chemo. on Dec. 8 and just a couple of nights ago my daughter and I discovered a little fuzzy hair beginning to grow! Yeah!!!!!!!!!!! As my dad (who went through heart surgery, a stroke, and gallbladder surgery all in 3 weeks this summer) says, "It takes just as much energy to cry as to laugh and laughing can make you feel a whole lot better" so keep your sense of humor! Take care!
NDB
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  #12  
Unread 12-31-2003, 08:52 AM
Debie

Debie, my endometrial cancer was Stage IIIC and Grade 3. I am almost done with my 28 radiation treatments and will begin chemo sometime in February.
Although the tumor was tiny (less than 1/4 inch) and was completely contained in the uterus with no wall involvement, out of the 10 lymph nodes he sampled, one of those little stinkers had the cancer cells in it. If not for that, I wouldn't have had any treatments at all.
But the lymph node is considered a spread. And we have no way of knowing where it may have gone from there, if any where. People keep asking me how my tests are going...are they working on the cancer, etc.....I tell them there is no tumor, they removed it. But the treatments are just like shooting in the dark, hoping that IF there is any left, we hit them.

Has anyone heard from Limbo? Sure would like to know how she is doing.

nancy j
  #13  
Unread 12-31-2003, 01:03 PM
There goes the hair!

Nancy,

Thank you for your reply. After reading some of these posts I began to wonder if my Dr. was doing all he should. I didn't lose any lymph nodes and as far as I know he did examine them or do some lab work with them to determine that there was no cancer involved.
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  #14  
Unread 12-31-2003, 01:28 PM
There goes the hair!

Hi Nancy

I had my port implanted this morning. Had to be at the hospital at 5:30am and it snowed here last night so I was up at 3 to check the roads. Didn't have any trouble getting there and the procedure went well. I didn't care for having my jugular vein cut into, but the port itself went in fine. They had another hard time getting an IV started so it's a good thing I have the port now. My neck and chest are pretty sore, but I can deal. No pain meds... just over the counter. And I'm keeping it iced.

Nice to hear others' stories about their hair loss experience. Mine is continuing to fall at a fast rate. I now look like those ladies you see around occasionally who have hair but you can easily see their scalp. I guess that's not bad on the 5th day of hair loss. It sure FEELS thin. I'm still feeling like it'll be nice when it's gone to be done with the itchiness and hair all over everything, but I'm still not ready for a complete shave.

As far as my stage... I had a complicated diagnosis. What was found in my uterus was confined there. But I also had endometriosis and endo cancer had devloped at those sites as well. So I'm getting chemo to kill what might be left in my abdomen. But the onc says he would characterize the stage as "early... stage 1" but obviously not your typical stage 1. I will also be getting progesterine therapy... not to treat cancer, but to prevent a recurrance of endometriosis and the possibility of a recurrance through whatever processes caused the original cancer.
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