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Pelvic Congestion Pelvic Congestion

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Unread 12-16-2003, 03:10 PM
Pelvic congestion

Is there anyone who has had a hysterectomy for pelvic congestion and if so, did it relieve the pain? Thanks. Trish
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Unread 12-16-2003, 03:56 PM
Pelvic Congestion

Hi ((Trish)),
I did not have Pelvic Congestion syndrome so I have no personal info or advice to share but I did find some info on its symptoms, DX & treatment options I thot might be of some help until someone else comes along who can share some more personalized experiences

Pelvic Congestion Syndrome~websites...

Gynecologic Embolotherapy for Uterine Fibroids and Pelvic Congestion~website...

Pelvic Congestion Syndrome~websites...

Surgical approaches to Chronic Pelvic Pain

What is Pelvic
Congestion Syndrome?

Dr. Mark Perloe explains current thoughts on pelvic congestion

An overview of pelvic congestion

Good Luck w/everything I do hope you are able to find some answers & relief to your pain Pls keep us posted....(((hugs)))
Unread 12-16-2003, 08:34 PM
Pelvic Congestion

I knew for years that I had a "retroflexed" uterus. I have also always had very painful periods that had become even worse over the years. I went to Dr. #1 and after a thorough history and physical exam he said that there was a very high likelyhood that I had endo. Went to Dr. #2 for second opinion. He adamently diagnosed 'pelvic congestion' said that position of my uterus was extreme. Both dr.s recommended Hyst. Ultimately, I returned to Dr. #1 and decided on hyst. and, at the time of surgery severe endo was confirmed. Does this mean there was not also pelvic congestion? I don't know. However, I have not felt this good in years. And I felt good the day after surgery (well, except for the surgery pain....). I am only 4 weeks post-op, so things may change. But, right now I can not believe how much better I feel.

The web links given in Sheri's reply are pretty good.
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Unread 12-16-2003, 09:50 PM
pelvic congestion

Hi, Trish. I have not been diagnosed with pelvic congestion, but my doctor is testing me for it on Thurs. I was diagnosed in July with endo. through Lap. surgery because I had been having a lot of pain, screwie periods ect.. I am not having worse pain since the surgery(he did burn some endo. away and remove two adhesions). I am now seeing a specialist and he has done trigger point injections, which didn't work and now I am going for a Pelic Venogram. This is a type of x-ray where they inject contrasting dye through a cathader(sp?) in your groin and so they can see the blood flow in your pevis. I'm not really looking forward to it, but that is how they will determine if I have pelvic congestion. From my understanding, if I do have it they will admit me after the test and put in stints(sp?)in the veins to allow blood to flow through properly. I don't know if hysterectomy is the answer for that problem. I could be wrong, but that is how I understood it. I don't know if I was any help, but I hope I was. I would definetly get a second opinion before having the procedure. Good luck! Tina
Unread 12-17-2003, 01:41 AM
Pelvic Congestion

Pelvic congestion can also be a consequence of severe endo. Endometriosis makes its own blood supply, which can lead to the varicose veins that are characteristic of pelvic congestion. My operative report made note of "extreme vascularity (blood vessel formation) characteristic of stage IV endo". So they often go hand in hand.

Tina, good luck with your venogram; I sure hope it finally gives you some answers! For all of you, do a search for posts by "SBlumen," a hostess on the Road who has struggled with pelvic congestion and has shared her experiences.

Have you had a laparoscopy? Really only direct visualization will tell them about endometriosis implants. Adenomyosis may not even be diagnosed on laparoscopy, but physical exam, history, and sometimes MRI can diagnose it. It, too, can cause varicose veins within the uterine wall (ouch!).

I will say that my pain was improved, but I still have some. Not like before, though! Overall, I think it's been an improvement. That's not been true for everyone; this is a tricky thing to deal with. Tina, I hope you share with us how the venogram goes when you feel up to it. These are new techniques, and it would be great to know if they're able to relieve the pain and buy you some time.

Unread 12-19-2003, 10:53 PM
pelvic congestion

Audrey, thank you for your information and your concern. Yes, I have had laparoscopy surgery, in July of this year. I was diagnosed with endo. and they found and removed some adhesions as well. My pain is now worse then it was before my surgery and is everyday. On a scale from 1-10 is is about a 6, daily. I am now seeing a specialist in Rochester, who believes that some of my symptoms are from the endo., but the everyday pain isn't. He says that pain from endo. is more on a cycle or I would notice a pattern, not experience it everyday. This is why he is trying to figure out what is the cause of this pain.
I did have the venogram yesterday and let me tell you it was not a great experience. I don't want to scare anyone who may be reading this and may have to have one. Just remember that everyone is different and my have better pain tolerence or better luck with pain meds. Anyway, they give you a med.(Versed)for conscious sedation and some kind of pain med. Well, the Versed must not work on me, because I had it for my colonoscopy and it didn't work then either. I remember the whole procedure. They give you IV fluids during to help assist your kidneys with flushing out the contasting dye. They put a catheder(sp?) in you groin, along with a guide-wire and which helps guide the contrasting dye. The part that I thought was painful was the radiologist, sliding the guide wire in and out. They take several pictures of the contrast going through your veins and it lasts about 45 mins. They put a pressure bandage over the puncture point and you are supposed to be very careful for the rest of the day. It shouldn't bleed excesively and you are supposed to rest, not do any lifting or bending. You are also not supposed to drive or make any major decisions for the rest of the day because of the meds. I had some kind of reaction to the meds. I couldn't stop crying for about an hour after they were done and then as soon as I left the hospital I started vomitting. That lasted on and off until this afternoon. I feel much better now. I still have a little pain at the site of my puncture. The radiologist told me that everything seemed to look good and the blood looked like it was flowing correctly. I talked to my doctor's nurse today and she told me that the doctor looks at the pictures differently then the radiologist and I should just wait until he receives the films and can give me his own opinion. That should be by Tues. afternoon. So, we will see! Very frustrating!!! I have a feeling that the next thing that my doctor is going to do, is another Laparoscopy surgery to see for himself what is going on inside of me. He didn't do my first one. I guess only time will tell though.
I will keep you posted. Thanks for listening{reading }
Unread 12-20-2003, 11:15 AM
Pelvic Congestion

Tina, I'm so sorry you had to go through that! I have read other articles that sounded the same so I'm going to try to avoid that procedure, if possible. The DR who did my lap. 10 years ago said he'd never seen so many varicose veins and wondered how I could even walk He asked if I was in a lot of pain when congested...well, YES. But not unbearable and it comes and goes. I'm thinking hyst might be the best solution though, as I've heard embolization (sp?) doesn't necessarily cure it. Glad you are feeling better and thanks for sharing as it's nice to know what to expect, just in case. Yikes, it doesn't sound fun! Take Care, Trish
Unread 12-30-2003, 05:43 PM
Pelvic Congestion

I can tell you that I had a complete hyst 2/23/02 for pelvic pain caused by endo. Prior to that I had had 6 laps to clean out the endo and one ovary removed. Two weeks after my hyster I experienced the same pain and am still in it. I have been turned over to a Pain Management Center and do not have much hope for a cause or a cure. Much like the others I have been diagnosed with Fibromyalgia and have two theories now as to why this is happening. Either Pelvic Floor Tension Myalgia caused from the Fibro and extensive surgeries or Pelvic Congestion. I hoping to have the test done that you are getting ready to have, but wanted to tell you that based on my research the hyster for Pelvic Congestion is an old theory. I could be wrong but I thought that the congestion was caused by enlarged veins. I do not understand how removing your uterus or ovaries will releive that. I would think they could simply fix the veins and be done with it without having to harvest your body parts. I hope this helps without scaring you. Good luck and pain free days.

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