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Chemo #2 today Chemo #2 today

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  #11  
Unread 01-02-2004, 05:26 PM
Chemo #2 today

Dear Limbo,

It's so hard getting through one chemo and having to prepare to go through it all over again! But I was always ready, because the sooner I could make it through the treatments, the sooner the cancer would be gone gone gone!

I'm so sorry for any pain you're having to go through. Most of us have already been there. The body does have a remarkable ability to forget pain, which helps. And this pain is all temporary. Your healing is nigh!

I hope your port site heals up soon and stops giving you pain. I don't have a port, but the IV sticks hurt like the dickens. I guess there's no pain-free way to get around it! :-)

We're all with you! Have fun with the hair shaving! I cried during mine. :-)
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  #12  
Unread 01-02-2004, 05:37 PM
Chemo #2 today

Limbo

Thinking about you all day hope you are resting just think 2 are behind you now.
  #13  
Unread 01-02-2004, 06:53 PM
Chemo #2 today

Wishing you the very best!! You have been such a wonderful person to share your experience with us. As I still have my chemo looming on the horizon in February, your information has been priceless to me.

May this chemo go smoothly, and be over quickly!!

nancy j.
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  #14  
Unread 01-02-2004, 06:54 PM
Chemo #2 today

Thanks everyone for the wonderful good wishes and support. A quick update... All my blood tests were normal except my wbc were slightly elevated [11.6 when 10 is high normal] I asked the nurse to numb the port site since it's so new and she agreed. She used lidocaine. Still smarted... what hurt was that she pressed really hard to get the needle in. She suggested I ask my doc for a topical numbing cream that I can use hereon out. They couldn't use it this time because I can't have creams or medicines on the site yet.

I stopped by the pharmacy on the way home to pick up my script for Zofran. I only had 2 left from the last round. The pharmacist said my insurance is declining to pay for the script because they only pay for 12 doses every 30 days. My doc's nurse had given me a heads up that might happen, but she had said they might squack about fillin the script moree than 1 time in a month. I figured this is January... no prob. WRONG! Of course by the time I got to the pharmacy it was after 5 and I had to call the on-call doc at my office. God knows if it'll get taken care of by 2pm tomorrow when I run out of Zofran. I may have to bite the bullet and pay full price to get me through the weekend. But I will be seriously if I do!

Otherwise I feel pretty good. I didn't get that metalicy taste this time. I feel better rested. They gave me a tiny bit of ativan to calm the steroid jitters and it worked perfectly. I even feel like I'll be able to sleep tonight.

Thanks again, everyone.

Limbo
  #15  
Unread 01-02-2004, 07:04 PM
Chemo #2 today

hehehehehe......my hero

Here you are fresh outta chemo, and typing away!!!
Hopefully this round will go easier than that first one. I've heard it told that it happens that way alot. We'll just pray you are one of those where it gets easier and easier each time until it is over and you are absolutely cancer free!!!!!!

Sleep well my friend,
nancy j
  #16  
Unread 01-02-2004, 07:31 PM
Chemo #2 today

tsalagi

I did ask my onc today why I didn't get radiation. He siad that recent studies have shown that chemo is more effective at treating "advanced" endometrial cancer. For years they didn't have chemo that was effective so radiation was the treatment of choice. He hasn't ruled out radiation, but he wanted to do the chemo first and see how that goes. So I may end up doing the opposite of your treatment regime. Bizarre, huh?

I also looked in my chart at the chemo room and found a surprise. Appparently my confused diagnosis is even more confusing to me now. They haven't ruled out that I actually had 2 cancers... endometrial cancer that was Stage 1A, grade 1 confined to my uterus and "cured" by the hysterectomy... and ovarian cancer, Stage 1C, [I believe also grade 1]. The note said most of the sites away from my ovaries [omentum and pelvic wall] were atypical cells, apparently not full blown cancer. Weird. I wonder why he explained it so differently to me. But that helps explain my they are treating me in this manner.

And the Zofran thing seems to be working out. My doc's nurse just called to say the pharmacy has agreed to do an emergency override and will fill my prescription with the assumption that insurance will approve the override once their **** office opens again on Monday. The nurse said if the doc re-writes the script to incluce a note for refill every 21 days it shouldn't be an issue in the future. Lets hope!
  #17  
Unread 01-02-2004, 07:49 PM
Chemo #2 today

Yep, you are right. For years radiation was the only treatment for endometrial cancer. And sometimes for endo 3 or 4, they didn't even do that!!!
I am in a Phase III clinical trial and it required radiation first and then chemo. I 'officially' don't know yet which arm of the study I will be in....#1 receives doxorubicin(adriamycin) and Cisplatin. #2 receives those two plus Taxol. But I would bet my bottom dollar that I'll be in the second one. I mean, they already have all kinds of info on the first two used in combo for endo and they will never convince me that a computer picks which one you are in!LOL

You should really ask for a copy of your pathology report. I finally got a copy of mine today. It was amazing how it made me feel more in control just having that piece of paper in my hand. Now I know exactly what they found, which side they found it on, etc. I got copies of the path report and all bloodwork they have ever done on me. It is your right as a patient to have copies of everything.

Yes, there is bound to be a way around those insurance/pharmacy rules if you can just find someone who will work with you!

Now, get some sleep and hopefully tomorrow will be even an easier Day 2 than before

nancy j
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