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Can someone answer this........ Can someone answer this........

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Unread 01-08-2004, 01:31 PM
Can someone answer this........

Gosh, thanks for responding so quickly. I work 8:00 - 5:00 and try not to spend to much time on this site while at work....don't want to get in any touble. But hey, I'm in HR...what I'm I going to do? Fire myself? : ) My PC at home just doesn't compare to this one so I rarely get online at home.

I went for a PAP that came back abnormal, then had a biopsy which showed the dysplasia. Went back for the Leep, which didn't work out for my because unfortunatley there is still dysplasia on the outer edges. My first gyn said it is also deep in the canal so I probably could not have another leep. He gave me a second option, which is the cold knife biopsy (where they put you under, like yours) but said it is so deep he wasn't sure it would work.

I am married and have 3 children. As much as I love sweet babies, I have no plans to have anymore. I'm 36...just can't do it again. With that said though, I really am fearful of a hysterectomy.

I guess I just need to make time to read more on this site and do more research. And, I am going to make an appt with the Oncologist. Maybe a 3rd opinion will help me with a choice.

Keep me posted. Hope all work out well for you! (and me too!)
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Unread 01-08-2004, 01:46 PM
Can someone answer this........

I am no expert but heres my story.

I went in in Aug for a pap, it came back abnormal so they scheduled a colposcolpy for a further look-see. I was diagnosed with CIN III/CIS . The oncologist felt that on a scale of 1-4 with 4 being cancer, he felt that i was at about a 3 1/2 and wanted to further eval it so we scheduled the cold knife cone. We didnt even try the LEEP because of the high grade dysplasia and the lesion on the tip of my cervix. I am SO glad we did. It came back as Microinvasive Cervical Carcinoma.

To me, the only choice was to just get it out of me. The hysterectomy was scheduled for 12/23. Here i am today, 16 days post op and feeling great. (this minute, lol)

I just got back from my 2 week check up and he said that the uterus and cervix showed no signs of cancer.

Will write more later, just need to take a nap. It was a busy day

Til then
Unread 01-08-2004, 08:44 PM
Can someone answer this........

First I am happy to hear the results from your hysterectomy come back good and you are feeling well.

It was good for me to see your message. I am really leaning towards the cold knife cone before jumping into hysterectomy. Since I don't have any other problems, it seems to make more sense (at least to me) to avoid the more aggressive approach if possible. Maybe the cold knife cone will take care of it. Hopefully I can get in with an Oncologist w/in the next two weeks.

Take it easy and get lots of rest!
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Unread 01-08-2004, 09:10 PM
Can someone answer this........


There is so much to consider when going through this. I am happy to see that you are looking at all of your options--it's so important to be pro-active with your healthcare. I'm not sure why some docs gets annoyed when we ask to see specialists. This is our health and our futures, and I think we should have the right to talk to as many people as we need so that we can make the best decisions for ourselves. So make that appointment with the gyn/onc, if you haven't already.

The studies that are out there are interesting and varied. I've read a few articles that state that CIN3/CIS will progress to cervical cancer in approximately 1 of 7 women if left untreated. That means that it would NOT progress to cancer in 6 of 7 women. The only problem is that you don't know if you fall into the group of 6 or the group of 1. Which is why some type of treatment (be it cone, LEEP, hysterectomy, cryo) is highly recommended for women who display evidence of CIN3/CIS. It is a situation that needs to be closely monitored, even after treatment.

The cone can provide your surgeon with a bigger sample--hopefully big enough that all of the abnormal cells can be removed that way. Approximately 80% of women are considered "cured" with a cone. Even if you opt for the cone, the results could come back indicating that a hysterectomy might still be in your best interest. That is not to discourage you from the choosing the cone (it is my own opinion that all means should be exhausted before progressing to a hysterectomy, but that is only MY opinion and I'm sure many people disagree with that), but only to prepare you for that possibility. But the more information you have about what's going on, the more comfortable you will be with whatever decision you ultimately make. On the flip side, once in a great once in a while a woman has her hysterectomy done after her margins are not clear, and the pathology report comes back showing that all cells are normal. Essentially, the cells were removed with the procedure (the LEEP, by nature, does destroy some of the remaining cells right at the area where the laser cuts into the tissue). Would you feel cheated if that happened to you? Or would you feel that it was better to have gone forward just to be sure all the abnormal cells were removed? Either reaction would be totally normal, but it's something for you to think about while you are deciding what to do.

Good luck to you! Please let us know how things are going and what you decide to do!

Unread 01-08-2004, 09:15 PM
Can someone answer this........

I want to STRESS that we did the cold knife cone to see if how far it reached. When it came back positive for cancer there was no other choice for me than the hysterectomy.

The pathology reports after the cone biopsy came back with negative borders, but did show signs of cancer. I think the actual size of it was 2mmx3mm.

I was so relieved to hear that my pathology report from the hissie came back clear. I also have no regrets for the "aggressive approach" that my doc and I took. There is such a fine line between CIN III and CIS, such a very fine line between precancerous cells and microinvasive carcinoma.

My sister asked me how did i think i was going to feel after i was fully recovered. Would my pain (from prior to surgery) be minimized etc. She looked at me like i was nuts when i told her i had NO pain prior to surgery. My periods were normal (like clockwork) and everything worked the way it was supposed to. So to go from "looking and feeling healthy" to suddenly being diagnosed with cancer was a shock.


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