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Re -thinking and Re- thinking Re -thinking and Re- thinking

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  #1  
Unread 01-04-2004, 05:11 PM
Re -thinking and Re- thinking

I keep re-thinking everything. I had endocervical adenocarcinoma
stage 1b1. I was told by a specialist that I did not need radiation.
However I did go for a second opinion and they said eventhough the tumor was small 1.3 cm it was deep (10 mm.). I called my original doctor to ask why the tumor board did not thinkd I needed radiation and he would not call me back. His nurse said the he would treat it aggressivly if he thought it needed it. However he felt I did not need radiation. The big university doctor said he would . I was torn - Does anyone know how deep is deep and why one doctor would say no to radiation and one would say yes. I keep re-thinking it over and over.
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  #2  
Unread 01-04-2004, 07:38 PM
Re -thinking and Re- thinking

Hi Katie,

Just like everyones case is different, every set of doctors seems to have a different set of theories.

This is a tough decision that only you can make and be comfortable with. For me, I would want to make sure that every tiny microscopic bit of cancer was killed and non lurking behind. So, if it were me I would go the chemo route and did.

Why not get a third opinion being that you have two conflicting ones.

Keep us up to date.

Rosalie
  #3  
Unread 01-04-2004, 09:35 PM
Re -thinking and Re- thinking

I was told all I needed was the hyst. But there are times, that I imagine that I am in a hut, and there is healing smoke coming from a fire. I breath in the healing white smoke and out comes the "black impuities". I have never felt the need for anything else.
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  #4  
Unread 01-05-2004, 07:33 AM
Re -thinking and Re- thinking

My own reaction--and this is me, not a medical opinion, is that if I had to choose between the two opinions, I'd go the cautious route and take the treatments. Or, I'd get a third opinion.

Blessings on your decision!!
Marlene
  #5  
Unread 01-05-2004, 07:54 AM
Re -thinking and Re- thinking

Katie,

The link below contains a treatment summary. It seems that one question raised is whether your hyst included a lymph node dissection. The link suggests that radiation is not needed when the lymph nodes have been removed, but radiation or chemo radiation is recomended otherwise.

http://www.cancer.gov/cancerinfo/pdq/adulttreatment

On the link scroll down to "c" and hit either the patient or medical professional link for cervical cancer

Dorrie
  #6  
Unread 01-05-2004, 10:01 AM
Similar Problem

Hello Katie

I am experiencing a similar problem, i.e., different onc. and different opinion.

I am going back to see rad/onc on Wednesday. Will let you know what I'm told. Although circumstances are a little different. I had TAH/BSO - had cancer in 50% of uterus and it had filtered down to endocervical glands. Herein lies the dispute. Some say yes to rad and some feel not necessary. Hope it's resolved on Wednesday.

Get all the opinions you need and feel comfortable with. It's your body and your well-being so don't be shy or don't let the doctors make you feel that you don't need more opinions. Keep strong and keep asking questions. I'm fast learning it's the only way. Talk to you all soon.
  #7  
Unread 01-05-2004, 10:21 AM
Re -thinking and Re- thinking

Hi Katie,

I understand your concerns. Do you know if there were any lymph nodes tested? I would want another opinion or at least a very good explaination from the Dr. why he did not think I needed radiation. I can't imagine why he did not talk to you himself.

Do you have a written report from the 2nd Dr.? Make an appointment with the first Dr. and take the report from the 2nd and ask him to explain his stand. Cancer is nothing to fool around with. If you have doubts and need questions answered, he should meet with you and answer them. Bottom line.

Good luck,
Sharon
  #8  
Unread 01-05-2004, 10:41 AM
Re -thinking and Re- thinking

28 nodes were removed all tested negative. My 1st doctor who is a specialist said no to radiation because it was small and there was no lymph node involvement. However the 2nd doctor who is also a specialist said yes I needed radiation and he gave me a report and information on why I needed it. So I went through it and now I am facing some mild dysplasia vaginally maybe it is because of radiaiton. Any way thank you for responding. I did have the treatment and I must not look back.

Thanks all
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