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heavy bleeding heavy bleeding

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  #1  
Unread 01-08-2004, 12:16 PM
heavy bleeding

Hi there Im new to this site. Im 32 yeard old and a mother of 3. After my third child I began having heavy bleeding and long periods. When i went for my pap my doctor suggested i saw a gynecologist oncologist because he saw my cervix hard bbut he also told me to wait for the pap results. the results came back negative so I did not go see the specialist bit i did go to my promary and she suggeste di get a pelvic u/s. the reposrt came back that I have a 2cm fibroid. this month has been horrible im on my 13th day of bleeding. blood work was ordered to see if Im anaemic and they put me on Ponstel to see if the bleeding stops. My doctor would like to then try birth control before opting for anyhting else but did let me that in th elong run I will need a hyst. My mother and a few of cousins had hysterectomy. Is this genetic.

thanks


Any help will be appreciated.
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  #2  
Unread 01-08-2004, 02:00 PM
heavy bleeding

Hi Canesfan,

I also am experiencing heavy bleeding ... continuious heavy bleeding. I've tried some meds to stop the bleeding .... Premarin, Provera, they put me on estrogen ... but that gave me migrane headaches. They thought of putting me on BCP, but I have high blood pressure. But the reason for my bleeding is a large cyst on my left ovary. In fact my Gyno is referring to it as a tumor now. I have incredible pain from it and I'll be having a hysterectomy on Feb. 27 th.

I know what you're going thru with dealing with the bleeding though .... I started my period back in July and probably since then I've only had maybe 2 weeks that I wasn't on my period. It really drains you.

Good luck! Keep everyone informed here on how you're doing ... sometimes I use this place alot to read up alot and to blow off some steam when I get frustrated.

  #3  
Unread 01-08-2004, 02:57 PM
heavy bleeding

Hi Canesfanatic,
Im new here also just joined yesterday after finding this website by mistake while doing research. I was looking for an easy answer to a difficult question. I have very heavy bleeding and have my period every 2-3 weeks, its frustrating when both a Tampon and a pad cant keep me from leaking through my panties. The bllod clots are unbearable, while the pain is moderate. I was diagnosed with Fibroid Tumors and scheduled for an Endometrial Ablation, a second opion diagnosed me with Adenomyosis, and its looking like a Hysterctomy is my only option right now. I tried the Hormon Therapy and it did not work for me, my period lasted for 2 months before my Dr. decided it was not going to work. I probably dont know anymore than you do about your situation, just know that you are not alone.
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  #4  
Unread 01-08-2004, 03:21 PM
heavy bleeding

Hi, Canesfanatic,

I started bleeding heavily two years ago, and in October it reached the point where I was passing a quarter cup of clots at a time and soaking through Poise Pads (the ultra-overnight ones for incontinence) frequently. And this was while on continuos birth control with no breaks.

I have a 5 cm fibroid and did not want to have a hysterectomy, even though I am 42 and through having children. So I am having a myomectomy in a couple of weeks.

A myomectomy is sort of a lumpectomy, where they go in and remove the fibroid. It can be done hysteroscopically (through the vagina, where they cut it away with a special tool); laparoscopically, with small incisions in the abdomen where they remove it in little pieces, or an abdominal myomectomy, where they make a 4-6 inch incision (sometimes a little larger), and remove the fibroid, repair the uterus, and close you up.

My doctor told me adenomyosis was actually very hard to diagnose until they actually get in there during surgery. Even MRI's and ultrasound cannot reliably find it. If they find adeno during my surgery, I will probably need a partial hysterectomy.

Good luck in making a decision. There are lots of options to a hysterectomy, but they don't always work for everyone. I'm fortunate my doctor said I was a good candidate for myomectomy.

Of course, the two female residents he staffs both thought I should just "take it out" because I'm 42 and "done" having a family. I "don't need it anymore"!!

He quickly corrected them, and was more sympathetic about the bleeding than either of the women.

Go figure.

Sousette
  #5  
Unread 01-09-2004, 08:58 AM
heavy bleeding

thank you for your responses, this month my period lasted 13 days and I go tuesday to see if anamia had kicked in already. My primary wants to do a followup in april to see if the fibroid has grown but I think it has because I have never bled like this before. Can it be anything else besides a fibroid, my paps have been always normal.

Janet
  #6  
Unread 01-13-2004, 06:07 PM
heavy bleeding

My periods have always been regular; no problems. This last month my period lasted four weeks. It was HEAVY!! The Dr completed an endometrial biopsy last week. The results are that I have endometrial hyperpasia without atypical cells. I already knew that I had a fibroid and discovered that my hemoglobin has dropped from 11.8 in April to 9 in January. My options are to take prometrium for six months to see if it will help with another biopsy in six months or a hysterectomy. I can't decide what to do.

I know that you think the bleeding will never stop. Two days before my procedure, the bleeding lessened considerably so I am reluctant to do anything right now.

Good luck to you!
  #7  
Unread 01-13-2004, 08:02 PM
heavy bleeding

Hi Canesfanatic and others!

Fibroids can cause a lot of the bleeding problems that many of you are having. And adenomyosis (sort of like endometriosis, but inside the uterus) also can cause heavy bleeding and clotting.

As for whether or not it's genetic - having fibroids when your mom or other relatives did too - there does seem to be a connection. I have read that if your mom had fibroids, your chances of having them too are greater.

When I was dealing with fibroids, I found www.thefibriodplace.com to be a great resource. I learned about it from Hystersisters. I'm providing a link to a list of resources that appears at the top of this forum. If you scroll down you'll find links to other websites that have great information about fibriods and other gynecological conditions.

List of Resources

A hyst is major surgery, so it's always a good idea to get a second opinion from another gyn before making a final decision. While most ladies do very well after a hyst, some do have complications and long-term effects from the surgery. So it's important that you do your research and be very sure about your decision.

Keep us posted on how you are doing. Sending hugs your way.

Beth
  #8  
Unread 01-13-2004, 08:10 PM
heavy bleeding

Fibroids can cause major bleeding. I would go for months before I had any relief, then that lasted a couple of weeks and it began again. Of course, after my surgery they found that I had Adeno, which also caused the heavy bleeding. As far as all of this being genetic, well it seems to be in my family, my grandmother, all of her daughters, their daughters, so I guess we all have had that problem. If you decide on a hysterectomy, believe me, you will never be sorry. Good luck and let us know how it goes.
  #9  
Unread 01-13-2004, 08:50 PM
Heavy b;eeding

Dear canesfantastic,

My mother, aunt & cousin have all had hysterectomies due to fibroids. so I figured it would only be a matter of time for me. I'm 39 and have been living with endometriosis for 18 years, but I've never bled like I have since the fibroids developed last year. I only have 2, and they are small, but the bleeding and pain they cause have been excruciating.

I've struggled with the idea of a hysterectomy; I don't really want to have major surgery, but none of the hormonal treatments I've tried have worked. My doctor believes in leaving surgery as a last resort, and we've tried almost everything (except Lupron - I don't want to go there.) I'm trying one last thing (Ortho Evra patch), and if I'm not better by the end of March we will schedule a hyst for the summer. What keeps me going is the fact that my mother & aunt have both said many times that their only regret was waiting as long as they did. Both have felt so much better. My aunt is 60 and goes sea kayaking. She has a personal trainer, and she's pretty buff. I really envy her energy.

Also, it's wonderful to have this site, where you can always find empathetic listeners, and nobody has an agenda to push. Hysterectomy is not for everyone, and not to be entered into lightly. But if you have to go that way, then you'll get nothing but support here.

Leslie
  #10  
Unread 01-14-2004, 07:03 AM
heavy bleeding

I did end up having a hysterectomy due to hemorrhaging.
A very large fibroid was diagnosed before surgury, but
after pathology, adenomyosis was also found. I really think
it was the adenomyosis that was causing my heavy bleeding,
huge blood clots, and knife-like cramping. Right now, I think
the only cure for adenomyosis is a hysterectomy. With time,
I am sure the medical community will find another less invasive treatment for it. I tried many alternatives such as bio-identical
progesterone, birth control pills, provera, D&C, and finally
depo-provera injections. The only thing that helped was the depo-provera because it stopped all periods. However, one year
after going off of it, the hemorrhaging resumed.
My 83 year old mother had fibroid tumors also resulting in a
hysterectomy when she was 50. However, back then, I don't
know if the medical community knew much about adenomyosis.
I suspect that she had it also. However, my maternal aunt
never had problems nor did my own sister.
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