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Sigmoidoscopy, ADhesions, IBS Sigmoidoscopy, ADhesions, IBS

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  #11  
Unread 01-09-2004, 03:51 PM
thank u for the info, wish it was so easy!!!

Sarah, I had biopsies after all my surguries, it was only after the last one they said "sugestive of endomitriosis" the doc's seem to have latched onto this & now have run w/it! the cysts keep forming, but the surgeon does not want to go into my belly again, too much of a mess!!! the last 2 ops they had to bring in a bowel specialist as there is so much involvement w/ scarring & adhesions. they have told me I am at risk for a kinked bowel & it is a very valid fear that I will end up w/ a colostomy. Not the end of the world but really don't want to go there!!! I am so sick of this whole thing, my family & friends have all seen the results of missing 2 estrogen pills,( the onset of insanity) & have decided I'm on drugs. Everyone has a suggestion on what I should take for the menopause. I'm sick of trying to get it thru to them the catch 22 of hrt, endo, & too low an estrogen dose. I feel like I am banging my head against a brick wall. But have to keep on keeping on! It's nice to have found this site & know there are people who truly understand, but I am sorry that others are also in this medical nightmare!!! Good luck to you! I think we all just have to live w/ pain! I don't think they really know the why or the how of it! But at least they didn't kill me, though it seems they gave it a good try!!!!!!
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  #12  
Unread 01-09-2004, 06:35 PM
Sigmoidoscopy, ADhesions, IBS

Sarah,

I have IBS - D. It was worse around my periods for years, but then it started happening more and more until I got to the point where I could get diarrhea from anything -- even something as simple as bread and water. That's when I broke down and went to a gastro to get the official diagnosis. IBS can definitely fluctuate depending on hormones, stress, so many other things. The Dicyclomine has changed my life. It's one of the very few medications my body will respond to, thank goodness. If I'm not careful, I'll still get diarrhea, but I'd say that I have an episode maybe three or four times a month versus three or four times a day. With control over diet and stress, you may very well be able to go into remission.

Best of luck,
Christy
  #13  
Unread 01-09-2004, 06:44 PM
Sigmoidoscopy, ADhesions, IBS

My doctor was all prepared to diagnose me with IBS-D last September, and the abdominal ultrasound that was supposed to help with her diagnosis was the one that found the latest lump on my right (and only) ovary. So now I am dealing with the lump, then I get to heal, then go in for a colonoscopy in March or April when I'm ready. Yuck.

...so back I go to the castle on Tuesday. Blech.
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  #14  
Unread 01-09-2004, 06:58 PM
Sigmoidoscopy, ADhesions, IBS

Dear Christy,
Thanks for the story and the info on the drug. Hopefully it will go away without too much trouble.

Today I have been having bloody mucus and diarrhea.... like about 10 times now at least. I did call the doctor's office and the nurse told me that the test probably "p***d off my colon" and the blood was because I had so much diarrhea. (The blood didn't start until late morning). She said to call back Monday if it was still happening.

After reading about IBS I am a little concerned about how this doctor diagnosed it with one quick looksy.... I have only had the bad diarrhea since the day after christmas. Up until then I was quite regular (I wrote this on the chart too)... so that is basically two weeks of bad symptoms. The doctor did a manual exam and I had no pain with that and then the sigmoidoscopy. He didn't take any samples or ask for any or run any blood tests on the chance that perhaps I might have caught something ... and it doesn't sound from what I was reading that bloody mucus is normal with IBS.

The definition of IBS was 3 months duration of symptoms and everything else ruled out.... it also mentioned in the definition I read that adhesions and endo can mimic/cause IBS type diarrhea due to the excess prostaglandins.

I'm just starting to wonder if I was taken seriously. I guess I am sensitive to that when things don't make sense since I worry that doctors look at the pelvic pain history and assume I'm just nuts.

Well... maybe I was and I am just overreacting to a day spent on the potty.... it is new to me and I really cannot imagine how some of you have endured stuff like this for so long

Sarah
  #15  
Unread 01-09-2004, 07:03 PM
Sigmoidoscopy, ADhesions, IBS

Dear Katie,

best of luck Tuesday. I hope the lump is nothing cancerous... just benign and annoying.

Maybe your ovary is causing the bowel problems. I am wondering about my left ovary. It has been acting up alot lately and prior to this bad diarrhea I had a quite severe flare up (Christmas Eve day).

Do let us know what happens with your surgery. I do really really hope it is only a small bump in the road for you.

Sarah
  #16  
Unread 01-09-2004, 07:13 PM
Sigmoidoscopy, ADhesions, IBS

(((Sarah))),

Bloody mucous is not a normal IBS symptom. Mucous is, but any time there is blood, you really need to have it checked out (perhaps with the exception of just a little blood when you've had a really bad day). Endo can definitely mimic IBS, and since you haven't had at least three months of consistent symptoms, I would question your diagnosis. I'm not necessarily saying anything bad is going to happen, but you have every right to question. If this happens again throughout the weekend, I would definitely give the doctor's office a call on Monday morning. Hopefully the worst is behind you.

I know how you feel about what doctors think of you. Most of my doctors have written things like "somatization disorder" or "difficult to manage" on my charts, like I'm not smart enough to get ahold of the charts and read thoroughly. I take a very active role in my treatments, and they just have to get used to that.

  #17  
Unread 01-11-2004, 12:36 PM
Hi Sarah......

Sorry you are dealing with this IBS-D as well. I have a terrible time with it and have had since my hyst in June of 2002. I never had a problem with it prior to that.
I am not saying that your Dr is wrong for giving you this diagnosis but I do think that they pin this diagnosis on anyone if they can't figure out what the EXACT cause is. It's like a generic term for "we don't really know". Just my opinion.

I was to the point that I couldnt even leave my house because even drinking water would send me to the restroom within just a few minutes.

A few months later I had surgery to remove a large mass on my ovary (and my ovary) and at the time an extreme amount of adhesions were found and removed. My Dr said it took him 2 hours to get through the adhesions.
After that surgery I had about 3-4 weeks of relief form the IBS-D and then it returned.

When I brought this up to my surgeon he said "gallbladder" when I brought it up to my gastro Dr he said "IBS" but when I brought it up to my Gyn he said that most likely it was adhesions causing it.

He explained that the bowels have an involuntary muscle contraction called peristalsis that moves food through the intestine to be excreted but in my case he thinks I have reformed adhesions on my bowels and any movement by me causes these adhesions to "pull" on the bowels and this in turn causes the bowel to go into peristalis and therefore I am constantly in the bathroom because my bowels are constantly being tugged at by the adhesions. I hope I explained that right but it made perfect sense to me.

I've seen meniton of Dicyclomine.......I've never heard of this . I take Immodium AD at least 3 times a day everyday....it helps with the muscle contractions of the colon but not enough to keep me out of the bathroom. Is this dicyclomine a prescription med?

I hope you get some relief soon and good luck with your surgery.
Dawn
  #18  
Unread 01-11-2004, 02:57 PM
Sigmoidoscopy, ADhesions, IBS

Dear Dawn,

THanks for the information on the adhesions etc. I also read a study that showed removing sigmoid adhesions helped greatly with IBS symptoms... but this is not widely held belief in the medical community apparently.

I am still having the bloody mucus but the "D" part is much better.

Many thanks again! ((HUGS))

Sarah
  #19  
Unread 01-11-2004, 08:44 PM
Sigmoidoscopy, ADhesions, IBS

Dawn,

Yes, Dicyclomine is a prescription medication. It is a generic that I believe without insurance costs around $20 for a month's supply. I am on 20 mg, 4 times a day, and it has been a life-saver for sure.

Christy
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