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How long recovery from RSO/Myolysis/Left Cystectomy How long recovery from RSO/Myolysis/Left Cystectomy

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Unread 01-12-2004, 09:06 AM
How long recovery from RSO/Myolysis/Left Cystectomy

I'm about 4 days post-op from RSO/Myolysis/Left Cystectomy and still in pain. I tried going off percocet yesterday and was in agony by nightfall (I think mostly from the myolysis).

I'm wondering, has anyone had just an ovary/tube removed, or just ovary plus myolysis? How long does it take to recover? I'm getting impatient already. I have no idea if my expectations are too high.

Thanks for any insights.
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Unread 01-12-2004, 12:00 PM
How long recovery from RSO/Myolysis/Left Cystectomy

I've never underwent a Cystectomy or a Myolysis <--not sure what that is so I cant be of much help....I did however undergo an RSO at 12 weeks Post-Hyst to remove my own cyst-covered, enlarged Ovary that had become a resting place for a
large mass:-( That was done outpatient, I returned to work after a week. That surgery was fairly easy exp. compared to my Hyst, I also think because it was done via Lap it carried a shorter recovery time for me.
We are all soo very different in our recovery times, pain levels & it can be difficult to compare another's healing process. You had further *work* done than my own RSO, that can result in extended pain ect...

Listen to your body, it's usually very good in letting us know when we've overdone, when it needs rest, relief....
It also shown that we recover faster when our pain is treated properly! Denying ourselves Pain meds when we need them will only result in you having to suffer So pls, if you need them take them! I understand your frustration & just wanting to finally feel better but pls remember, you only have one chance to heal properly! I just hate to think of damaging anything that may result in further complications or a longer healing time

4 days is still very early...internal & external healing can take some time. Do you have a 2 week checkup with your Surgeon? Maybe making a detailed list of concerns you have about the time frames can help answer these...if you want answers sooner perhaps a call to his/her Nurse may be of some help?!?
Good Luck with everything My prayers will be with you that you are finally on the Road to a proper recovery & that you'll be feeling better soon...pls keep us posted on how your doing

Unread 01-12-2004, 07:22 PM
How long recovery from RSO/Myolysis/Left Cystectomy

My recovery from the RSO was very painful for me. I also had a huge haematoma removed as well. I found I was still miserable after a few days, it was a full week before I was starting to feel more comfortable. I still needed pain pills though, up until 2 weeks post op. I can't tell about returning to work, as when I was scheduled to return (3 weeks post op,) I had to have an emergency hysterectomy. So I never made it back. until 3 weeks after the hyst.

Listen to your body. If you hurt, rest, and take a pain pill. Take it easy, and drink lots of fluids. Vaccuumming is a definite no no. Your body will tell you what it needs, and that's your best judge of how to care for yourself.

Take care and pamper yourself.

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Unread 01-12-2004, 08:15 PM
How long recovery from RSO/Myolysis/Left Cystectomy

Dear Teresa,

In 1999 I was having pretty severe pelvic pain on my right side on a daily basis. Eventually I ended up seeing a pelvic pain specialist who did a pain mapping and identified my right ovary as a big source of pain as well as a large cyanotic area on the front of my uterus. 6 weeks later I had surgery to remove my right ovary and the cyanotic area (which turned out to be adenomyosis that had grown almost through the uterine wall).

After surgery I was in more pain for several weeks and I was worried it hadn't help...maybe made it worse. In the end it took a good 3-4 months before I finally noticed I was having less pain. Over the next several months the pain gradually became better. I went from about an 8 on a daily basis to about a 3.

Later I found out that when one has persistant pain for a long period of time it can make the associated nerves a little "hyper-active"... it can take a while for the nerves to calm down after the problem is removed.

I recently consulted with a doctor at Mayo about a Presacral Neurectomy for my continuing pain problem. His comment was that it may be months before I notice a difference due to the length of time I have had pain... he also said in his experience chronic pelvic pain patients never are completely free of pain which he said they think may be linked to an "imprint left in the brain".

ANyway, you are so new post-op please do not give up hope. If you had pain for a long time before surgery it may take you longer than someone who did not have long term pain to notice improvement. Try to be patient ... time should help.

I hope your recovery goes well and you notice that you are feeling better sooner rather than later.


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