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scar revision/nerve entrapment scar revision/nerve entrapment

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  #1  
Unread 01-27-2004, 10:59 AM
scar revision/nerve entrapment

Hello again haven't written in awhile as not much had changed until last week....Dh and I attended an appt with gyno who had sent me to plastic surgeon etc. for nerve/scar pain plastic surgeon did nothing but inject me numerous times (which didn't relieve any pain) then he sent me to a specialist in a city 4 hrs away (neurologist) who put me on tons of meds and ordered ct scan and mri well once again we were starting from scratch....both dh and i were frustrated at the fact everyone agrees there is nerve problem plus internal pain but no one seems to want to do anything just keep prescribing so we asked this gyno (who we have great rapor with have been seeing him for years and wish he did original surgery) if he would go in and see if the nerve is trapped in a stitch that never dissolved and was never removed.. he surprised us and had no problem doing it and also wants to revise the scar i met with him again today and asked if he should take a peek inside since i'm going to be out anyway. He is nervous about doing a lap as he knows the history of adhesions and is worried about going in. I left it up to him and he said he could probably make an incision under belly button and check things out. I know he will probably just find adhesions and he doesn't really want to play around with them but I don't think he understands how uncomfortable i am on the insides too. His main concern is the outer scar etc. but I am trying to get through to him that inside hurts like heck too. He isn't a huge believer in adhesions causing pain so he will probably go in and do nothing anyway. Just needed to vent and ask anybody with info on scar revision to send some advice. I don't know much about this procedure not sure what to expect. Thanks for listening hope this makes sense. Neener
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  #2  
Unread 01-27-2004, 01:46 PM
scar revision/nerve entrapment

Well nothing on scar revision, but you hit a hot button with me on the adhesion issue and wanted to relay some of my personal experience with you in hopes it would help you.

My wonderful, sweet doctor once said to me that adhesions were not tied as much to pain as they were a blockage issue. And, I thought .... HUH? But didn't really call him on it at the time probably due to shock of hearing him say something so ill informed.

Maybe my case converted him out of the darkness and into the light because when I was there on Friday for my post op he told me that all he removed during the lap was adhesions (no endo was found) and he admitted that those were enough to account for the pain I had and that he was hopeful that removing the adhesions would stop the pain. GO FIGURE.

Anyway, my point is that although your doctor might have said something about adhesions not being responsible for pain or something along those lines, he might not have meant NEVER. I think it has a bit to do with location of the adhesions. I had one very large thick one that was restricting my round ligament and some that tied my ovary to a side wall. Things that were supposed to be free to move, weren't and that caused pain.

I would discuss it with your doctor and make sure you have a clear understanding about whether or not he will remove any adhesions and why or why not. We were 100% clear before my surgery that he would remove any adhesions he found. I could not have peacefully gone into surgery without that point being clear between us. My doctor said that he works for me and my preferences matter.

For your own peace of mind, contact your doctor (by phone or in person) to voice any concerns you have and make your preferences known.

Good luck and keep us posted!!!
  #3  
Unread 01-27-2004, 07:27 PM
scar revision/nerve entrapment

Neener,
I had a scar revision about two years ago. The doc reopened my incision and removed lots of scar tissue from within the incision. Not sure what he did after that, but he did a beautiful job! I've had many comments from other docs on the great job he did. They are amazed whenever I am examined that the incision looks so great.

Before the revision my scar had actually moved up to just below my belly button. It was extremely hard, discolored and knobby looking. The incision is now just above my pubic area and is barely noticeable.

Unfortunately it didn't solve my problems with pain. I do still a problem with swelling also. The incision still occassionally burns and stings. Doc said that is due to nerve damage. While I did have some damaged parts of the nerves removed, doc said that they can still continue to give off signals.

When the doc did the revision he did not do a scope. After continuing pain problems and a myriad of tests he agreed to go in and take a look. You know what he found? NOTHING! Yep, nothing. That was the most awful feeling I have ever had. On the one hand at least I knew, but on the other I still have these unexplainable problems to deal with. Surgery isn't always the answer.

I do agree with Michelle that if the doc IS going to look inside you should be clear on what he is going to do should he find anything. If he's not going to remove adhesions should he find any, why have him look and possibly create more?

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