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Just Diagnosed with PreCancer - Help! Just Diagnosed with PreCancer - Help!

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Unread 02-07-2004, 05:12 PM
Just Diagnosed with PreCancer - Help!

I was just diagnosed this week with severe hyperplasia with atypia...something I had never even heard of. My gyne says this is precancerous and is 90% sure that there is no cancer. I am scheduled for a vaginal complete hysterectomy on 2/23 but am also seeing a gynecological oncologist first to get a second opinion about an abdominal hysterectomy because he could then "handle" and visualize the lymph nodes (this is all at my gyne's suggestion). Right now I am terrified and I would appreciate any positive support/comments. Please no "downers" right now...I don't think I could take it.
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Unread 02-07-2004, 05:46 PM

I also have pre-cancer cells, found in endometrial biopsy. My gyn consulted with a gyn-oncologist before talking over the results with me. Due to family history of uterine and ovarian CA, even though my findings are pre-cancer, I am going to have LAVH BSO + rectocele repair. My gyn said that IF the pathology report comes back with CA news, THEN they could go back and get lymph nodes via laporoscope. She's been very upbeat, saying I do not have CA, although we do need to wait it out to see what the path report says. She even drew me a picture, showing how they take sections of the uterus and ovaries, and assured me, if there is any CA there, they will find it.
My castle date is a few weeks from now and while I was freaked out for a week or two after hearing all this, I am doing pretty good now. My dad was always good at staying optimistic and not dwelling on what COULD happen, so I am thinking of him a lot and thinking good thoughts.
It has been so helpful to read all these posts here at this site.......we know we are not alone, and there are so many wonderful ladies here who share everything they've been through so we can prepare for our own situation. Take heart, and know that many prayers and thoughts are with you. You can jump on this site at any hour of day or night and see there are always other people right here with you!
Hang in there, and a big HUG to you!

Unread 02-07-2004, 05:47 PM
Focus on the word pre!

It is natural to feel as you are when someone drops in that horrible C word, but at the moment your dx is not yet cancer, so you have done all the right things in following up your health care and you are very likely to have a good outcome.

Your post doesn't mention where these misbehaving cells are, cervix, uterus or endometrium but I would take a chance that you are referring to cervical cells. Your gyn is taking the right precautionary steps and putting you in the best of care.

Make a list of your immediate worries and ask your gyn so he can allay your fears and explain why and what he will be doing. Not knowing can be very stressful, but so can an overload of info that may not even apply to your case, so your specialist is the best person to ask for first, and then perhaps you can follow up on his answers if you want to learn more.

You may also need to admit your feelings about having a hyst, even though it is not a voluntary choice on your part, it is still something that you may need to talk through, ask questions so you can accept the operation in a more settled frame of mind.

A vaginal hysterectomy is still major surgery so be prepared to need up to 6 weeks off work, plan for a lot of help and support for your first 2-3 weeks at home as you will not be allowed to lift, stretch up ( laundry hanging out) carrying groceries etc.

Most of us come through of our surgeries with a new lease of life and relief from the symptoms and pain that took us on the hyst journey. I don't know if you have had ongoing symptoms of pain or bleeding for you to be relieved from, but knowing that those cells are out of your body will be a huge relief.

I am sure you will find heaps of support and encouragment on this site and probably find another sister who is having the same procedure for same diagnoses (dx) and you may find support in one another. Take good care of yourself, eat healthy, avoid stressful situations and take time out for yourself with your loved ones. Hugs, Linda
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Unread 02-07-2004, 05:53 PM
Just Diagnosed with PreCancer - Help!

Hi Smiley hello and welcome...sorry to hear that you are going through this, but know that you will find a wealth of information and support from the ladies here. You'll hear time and again that having a gyn-onc on your team is the way to go, as they are the experts. I was diagnosed with endo cancer six months ago, and a week later had my TAH/BSO - and am happy to say I feel better and better all the time. It's a scary time for you - but it's so great that that you've discovered this very, very early!!

Take care ~
Unread 02-07-2004, 06:08 PM
Just Diagnosed with PreCancer - Help!

Thanks so much to all of you. I still am kind of in the dark and trying to understand everything, but i believe the cells are in the endometrium. I know it is not the cervix and I don't see how it can be the uterus since I had a D&C with an endometrial biopsy. I had a laporoscopy for an ovarian cyst (which was non-existent) and while she was at it, my gyne did a D&C because I was having irregular periods (which I thought were a result of beginning menopause). Thanks God she did, or it never would have been discovered. Can any of you give me some of the questions I should ask the gyne/onc when I see him?
Unread 02-07-2004, 07:39 PM
Just Diagnosed with PreCancer - Help!


Sorry that you are going through this...but please know that you're not alone! There are some really helpful threads on endometrial cancer in this forum, and I don't think you'll find them a "downer." If you do have endo cancer, please know that this cancer, caught early, can be very curable.

On Feb 15, I'll be celebrating the 4th anniversary of my hysterectomy for just that thing, endometrial cancer. I was stage 1B, had exactly 5 days to get ready for the surgery (had a D&C on the 8th, and on the 10th was told by my DR that I had to have a TAHBSO, and on the 15th it happened). But I will tell you that it was one of the best things that I ever did, not only because it obviously saved my life, but because it also gave me a new outlook on life.

You'll find this site a great help. Keep us informed on your progress!

Unread 02-09-2004, 04:53 AM
Know How you feel

I know just how you feel. I had a laparoscopy/hysteroscopy for fibroids and heavy bleeding. I was in total shock when my Gyn told me I had precancerous cells in my uterus. I have to have a total abdominal hysterectomy in 9 days. I cried the first weekend but gave it all over to God. It's in His hands now. I am at peace with it all, even though me and DH were trying for a second child for the past two years with no luck (probably due to all my problems). My GYN said this was the best place to get precancerous cells because they can get it all out without spreading. I wish you the very best. Please stay in touch and keep your chin up. You will be fine. See ya on the other side.
Unread 02-09-2004, 07:10 AM
Just Diagnosed with PreCancer - Help!

Dear Ck,

I am an endometrial cancer survivor, which you know is beyond severe hyperplasia w/atypia, who has reversed cancer w/progestins not surgery.

There don't seem to be many people like myself on these boards; I worry that not all know of the option in certain cases, but I know another hystersister who has done the same thing even though she is older than I and has had children.

Yes, there are no guarantees for my future, but things are looking fab so far.

I would understand if you would go for surgery in your circumstance, but I am hoping that I help ease your fears about the dreaded, but sometimes surprisingly easily treatable cancer.

Unread 02-09-2004, 02:02 PM
Just Diagnosed with PreCancer - Help!

Hi all,
I have a question. Isn't endometrial cancer the same as uterine cancer? Don't endometrial cells come from the uterus? An endometrial biopsy contains cells taken from the uterus, right?

Unread 02-09-2004, 03:01 PM
Just Diagnosed with PreCancer - Help!

Yes Janie,

Endometrial cancer is considered uterine cancer

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