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Unread 02-09-2004, 05:35 PM
Back again!

Hi , I used to come all the time when I had my Hysterectomy a couple of years ago. Well, im back.
I went for my routine check up the other day and the dr. found a complex ovarian mass on my remaining ovarie. He sent me for a CA 125. No results yet that I know of. I have to have another sonogram in the hospital on the 27th. I guess they have better imaging.
I dont remember the numbers but he said its the size of an Orange. I can feel it and my pants feel differently. Im so nervous. I have no health history, i was adopted. Im making it up as we go. lol. Thats what i tell my girls.
Anyways my question is this, From what i have read the blood test does not really tell them if there is cancer? How do they find out? Is it only when they operate that they know for sure? Is it normal to have pain with these ? It hurts but not really bad. Just enough to irritate me all day long!
Thanks for any input you all might have.
With Love
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Unread 02-09-2004, 08:23 PM
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Hi Shelby,

Boy can I relate to the nervous waiting for results period. It will be 2 years in April that I had my hysterectomy and was diagnosed with ovarian cancer.

I truly believe that my doctor knew that this big tumor inside of me was cancerous but he would not committ until he got a good look inside.

Hopefully you are seeing an oncologist/gynocologist. They are the experts. If you are not, please make an appointment with one for another opinion.

Keep in touch.

Unread 02-09-2004, 10:27 PM
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Hi, Shelby.

In general, they won't know anything definitively until they get inside. If your mass is filled with fluid it is unlikely to be cancerous, as it is likely a cyst. If it is solid, it could be cancerous, but they may not know what it is until they get inside. In my situation, I had ascites fluid in my abdomen, which is why I was pretty sure what my diagnosis would be, and why they confirmed that that was their suspicion, too.

In terms of not having a health history, I wouldn't worry too much about that. The risk of inherited ovarian cancer is only 10%, so it's not the same risk level as breast cancer or other inherited cancers.

So sorry for the wait. I could say, "Don't worry," but I know that I would worry, and worry is completely reasonable. If it gets to be too much, start taking long walks. They really help get your focus out of the worry and back to more positive things.

And yes, the blood test may or may not tell you anything. Some people with my diagnosis have CA125 levels of 4,000. Mine was only 161. And I met a girl whose CA125 was 8, yet she had Stage 3 ovarian cancer. If the number is abnormally high, it may give your doctors some suspicion. But a number of things can elevate a CA125 number.

Please keep us posted on how the sonogram comes out, and what the next steps will be. s!
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Unread 02-10-2004, 10:35 AM
Back again!

Thanks girls.
Its going to be a long two weeks. I probably wont hear what the results are from my blood work untill then. Now i just have to control the panic attacks.
When my gyn did the sonogram he became very serious and quiet . That doesnt make matters any better.
Talk to you all soon.
Love Shelby

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