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Unread 02-21-2004, 08:10 AM
Ovarian Remant Syndrome


I like you had very bad endo - I have had 4 major surgeries in 2 1/2 years. After my hysterectomy, I still didn't feel well - my doctors sympathized with me but I think they thought I was nuts. I finally found a specialist in NY. The first thing he did was an internal and said I had a left ovary, which was a shock to me because that was removed in Dec 2000, then he took blood (to check my hormone levels), and send me for an MRI - low and behold he was right - I still had part of my left ovary. So in July 2003 another surgery to remove it, while in there he also cleaned up a lot adhesions. I was on lupron twice - both times for 6 months, the lupron helps dry up your endo which makes it easier for the doctor to get around once he is inside. I will say this - ever since my last surgery I have not had any pain - I am no longer on paid meds and feel great!! I don't do any HRT, didn't want to chance the endo coming back. But I am on zoloft for the mood swings, and panic attacks, which I was told I was having because of the drastic change in my hormone levels.

I hope your surgery goes as well as mine did.
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Unread 02-21-2004, 08:24 PM
thank you

Thank you once again to everyone out there. I just got my referal to a Generla surgeon to check out the other areas of my body that may have endo. Since my GYn Onc cant go in those areas..LOL You all have been so supportive thank you..I will keep you all inform. By the way second day into the lupron shot still feel cramping but my swelly belly I have had for almost 1 year has actually went down even where the hubby noticed. He is now feeling more postive about the lupron and the new doc.

Unread 02-23-2004, 10:14 AM
Help me my Hystersisters

I'm sorry you have suffered thru soo very much Now facing possibly another surgery...I'll pray that the Lupron will provide you with some much needed relief
I wanted to share some info & a couple interesting links I thot might be insightful to you concerning the piece of Ovary that was suggested may have been left behind:

Ovarian remnant syndrome is a rare occurrence and most surgeons would recommend managing it by laparotomy because you're dealing with extensive adhesions. But our series has shown that it can be done laparoscopically,"
Most are patients whose initial endo surgery has been very complicated. Sometimes a tiny piece of ovary is left or breaks off and reimplants somewhere else in the pelvis. The incidence is unknown because it's very rare.
In some, the remnants are large enough to produce premenopausal hormone levels, so oophorectomized patients should have hormone levels checked if ovarian remnant syndrome is suspected. Some remnants are large enough to see on a U/S, exp the ones that can produce a follicle and ovulate. The ovulation process alone can be partly responsible for the pain.
Pain can also result from adhesions that bind a remnant so that ovulation occurs in an enclosed space and is therefore painful.
These are some threads by others who have experienced ORS:

New diagnosis, Ovarian Remnant Syndrome

Ovarian Remnant

Ovarian remnant syndrome occurs when a small piece of ovary is left behind during surgical removal of the ovaries. This tissue produces hormones, and cysts may form there as well. Chronic pelvic pain may result, not only if cysts form, but also because this tissue tends to be abnormally scarred to the pelvic side wall.,00.html
Ovarian Remnant Syndrome

Good Luck with everything ((Rachelle)) I will keep you in my prayers that this will finally provide you with some permanent answers & relief to your continuing pain & problems
I do hope you will keep us posted on how things are going with the Lupron........((((((((((hugs))))))))))

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