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carcinoma in-situ? carcinoma in-situ?

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Unread 02-24-2004, 08:08 PM
carcinoma in-situ?

I am new to this site and have, so far, found so much support. I was told in December that I had Carcinoma in situ of the cervix with a positive endocervical margin. The dr. recomended a hyst. I had just had a LEEP done and this was the diagnosis. I have been dealing with the abnormal paps and all the procedures that go along with that, so I guess I agree with the Dr. She said it was not cancer. But, from what I read, it is a pre-cancer stage.
My question is this, Does anyone else have this problem as a reason for their hyst? I am keeping both ovaries and am scheduled for surgery on March 5.
Thanks to all.
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Unread 02-24-2004, 09:32 PM
carcinoma in-situ?

I think there is a kind of fuzzy area around CIS. Some feel that it is cancer, others that it is dysplasia and not cancer. For that matter, some doctors feel that CINIII is just another name for cancer. What it is called depends largely on your doctor. I had high grade lesions and CINIII on my pap after nearly 2 years of perfectly normal paps. I decided to have my hyst. largely because of this, although there were other considerations. After surgery my pathology report came back microinvasive cervical cancer, although my cervix itself was cancer-free. (microinvasive means it has crossed the "basement membrane" and is above the cervix that you can see). It was not what anyone expected, I'll say that!

I had given the doc carte blanche to do what she would with my ovaries depending on their condition. I still have them since she said they looked perfect.

I'm still in the process of finding out the treatment for my cancer. However, I am very glad I had the surgery!
Unread 02-25-2004, 02:04 PM
carcinoma in-situ?

Hi Stumped,

I was diagnosed with the same thing and had my TVH on Jan 13th. At first I was concerned that it was such a drastic step- I'm 36 and wasn't totally ready to throw away the baby making parts! Turned out that it was a good thing. I'd been having paps every 3 months as they were atypical, positive for high risk HPV. It took only a little over 5 months to go from that diagnosis to CIS, and I didn't have clear margins on the biopsies, so doc strongly recommended hyst. My path report came back showing the CIS, fibroids and adenomyosis, which I didn't know I had! I'm looking at it this way- gone are the problems I would have probably had to deal with in the future, and I can get myself back in shape and know that I am healthy. I will have 3 years of follow up, first year every 3 months, second and third year every 6 months. By the way, I kept my ovaries (doc said they were perfectly healthy) and I've had no real problems since the surgery.

If you're confused, you should get a second opinion from a gyn/oncologist. They deal with this stuff all the time. I didn't need to in my case, but I had one in mind if my path came back microinvasive or w/out clear margins!

Good luck!
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Unread 02-25-2004, 05:07 PM
thank you

Thank you ladies. It is nice to know that I am not alone. I was just thinking about how the gyn and the nurses and such who have did my pap smears in the past always seemed to kind of poo poo an abnormal pap. "probably just a yeast infection," " maybe a little blood in there". But, they never really stressed the seriousness of the results of an abnormal pap. Maybe if they would just be realistic and told the whole truth of just what the stages of it is all about.
Just some thoughts.
Thank you, once again. Best wishes and good health to all.

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