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how many of us have or have had chronic pelvic pain post hysterectomy how many of us have or have had chronic pelvic pain post hysterectomy

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Unread 03-01-2004, 09:51 AM
how many of us have or have had chronic pelvic pain post hysterectomy

Me too <sigh> I had my Hyst over 4 years ago for Fibroids, pain, heavy bleeding & Adenomyosis. Thinking if I had nothing left there would be nothing in there to hurt! How very wrong I was

From the time I woke up from my TAH the pain has been unreal. I underwent a RSO for complications from Adhesions at 12 weeks Post. I had been suffering a worsening right-sided pain. When the tests revealed a mass the Lap was scheduled. Thinking the pain was coming from the Ovary I consented to it's removal. It didn't help. Several weeks later I was admitted thru the ER for emergency surgery for total Bowel Obstructions that had completely obstructed my bowels & Intestines in 2 places. That surgery resulted in further complications & a 2 week hospital stay. I have consulted with several Specialists & Surgeons in my search for some answers & relief. I was told over & over that undergoing any further surgery was more likely to complicate the situation further & leave me in more pain. There is no way I can handle any additional pain so I was referred to Pain Mgmt. It will be 4 yrs in July that I've been doing that, with good success may I add The pain is not 1st & foremost everyday & I can concentrate on other things in life.
The pain I experience daily is labeled as Chronic Pelvic & abdominal pain resulting from severe Adhesions & Nerve damage sustained during one of my surgeries. It is a cramping, period like pain that goes thru my back & down my legs, my right-side gets a sharp, stabbing pain several x's a day, I have deep, shooting pains in my Vaginal & rectal area, I get several UTI's, my bladder acts spasmy & doesn't quite empty, I was dx'd with a Vaginal vault Prolapse that I am terrified to undergo surgical repair for...I could go on....
I do pray that we remain of the minority of Post-Hyst results but surgery causes an upset with things. I think if we suffered Chronic pain Pre-Hyst the chances of it not subsiding with this surgery are probably greater than one who suffered no pain

Big (((Hugs)) to each of you! May you find some answers & resolve to your continuing problems & pain
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Unread 03-01-2004, 09:57 AM
how many of us have or have had chronic pelvic pain post hysterectomy

SHERI, did you have endo? (Maybe I should ask DO you have endo?!!?) I have been reading a lot of posts about endo causing more problems AFTER hysterectomy...I intend to ask some questions tomorrow.
Unread 03-01-2004, 10:08 AM
how many of us have or have had chronic pelvic pain post hysterectomy

I have pelvic pain too, from trigger points they say. Go to the pain clinic at the end of April, so we'll see what the experts have to say about it.

I don't think you'll get too many who say they don't have it here, due to the nature of the forum - those without problems just go on with their happy lives - and I say good for them - they are the lucky ones. I'm sure there are a lot of them too.

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Unread 03-01-2004, 10:24 AM
how many of us have or have had chronic pelvic pain post hysterectomy

I have had pelvic pain for 13 years.... the only time I haven't had pain over that time period are the 2nd/3rd trimesters of pregnancy. Most of my pains seems to be from endometriosis and it's complications and adenomyosis.

The TAH helped from the standpoint of getting rid of the painful periods... but I still am having trouble with endometriosis and now endosalpingiosis... hopefully this last surgery took care of most of that and I will have some relief (I hoping 50%) for a while...or maybe more.

Unread 03-01-2004, 11:25 AM
how many of us have or have had chronic pelvic pain post hysterectomy

You can count me in too. I've seen my gyn in January and was diagnosed with 3 cysts on my remaining ovary. I have a f/u ultrasound scheduled for April to see if the cysts dissolved. I have been experience on-going rigt-sided pain, along with stabbing pain every time I urinate. They will most likely send me to a urologist. I went to the ER on Thursday because of the pain and they said to f/u with my gyn. They said it was most likely from the cysts, nerve damage, adhesions and/or bladder problems.
Unread 03-02-2004, 04:52 AM
how many of us have or have had chronic pelvic pain post hysterectomy

Hello sisters!
I'm right there with you all! I had my surgery on 2-6-03. I started experiencing pelvic pain again about four months ago and went to the GYN. I am scheduled for more surgery to remove adhesions and repair a hernia on 3-09-04. I had hoped that with the hyst. I would have less adhesions, but that isn't the case with me. Big hugs for all of my sisters who are dealing with continued pain
Unread 03-07-2004, 01:04 PM
how many of us have or have had chronic pelvic pain post hysterectomy

Hi Ladies -

It's been quite a while since I've been on here. My endo has returned, in full swing. I had a short relief of it, after the SAH/BSO, and am absolutely astounded that it's back! I was under the false impression that a hysterectomy would "cure all". I am normally so studied on everything, that I am kicking myself that I did not study further on the actual endo before jumping right into the hyst.!! I would not have gone the route of Lupron, but I do think I would have tried to have them at least remove as much endo as possible and my left ovary which was total toast! My castle stay was last July, and after three months of no hormones, I was begging for them. I could not live with the contstant migraines, and my face and body flushing every 10 seconds! My clients actually felt sorry for me! I have finally done a lot of research on the endo, and am going to CA to see Dr. Cook, a renowned specialist in the removal of endo, adhesions, etc. So far, everything seems unbelievable. They are having me stay overnight, just for a laparoscopy, and a chef will make our dinner!!!! Holy cow!! And, my insurance covers it. Can you believe it? They won't cover the doc, and that will cost me somewhere around 6 - 6.5K, but I don't care. I'm deducting it from my taxes. I'll find a way to pay, no matter what.
Hugs, and I hope everyone here gets some relief, or quality of life back. This stuff is horrid.
Unread 03-07-2004, 10:48 PM
how many of us have or have had chronic pelvic pain post hysterectomy

I'm so sorry all of you are suffering! You all deserve a ton of !! I'm another one with pelvic pain. My doctor says my vagina is "loose" and when I walk it feels like a tampon that's stuck. It's uncomfortable to sit. I have a great deal of difficulty emptying my bowels and that definitely interferes with my quality of life. Right now I have cramps. My doctor recommends further surgery. Don't know when yet, but I want to make sure that this time, if at all possible, I have a very experienced urogynecologist, or someone who specializes in pelvic reconstruction. I want the same for everyone on these boards who suffers!! I wish all of you a solution to your pain!

With love and prayers,
TAH/BSO for endometrial & endocervical cancer/complications (ruptured bladder) & 2nd surgery, bilateral ureteral stents/Dec/02
HYPOTHYROID, effexor for depression
Unread 03-08-2004, 11:09 AM
how many of us have or have had chronic pelvic pain post hysterectomy

Add me to the list.

Besides all my other post-op problems, the pain I kept having has just recently been lined up perfectly (via X-ray) with THREE surgical clips that were apparently left in me. All this time, through all the CT's and MRIs (which always hurt) no one bothered to mention there were clips in me. Only when I insisted, to my new doctor, that it hurt me to stand beside the MRI machine when my child was undergoing a test did he humor me by taking an X-ray. I don't know wht will happen now but this whole process has been very frustrating.
Unread 03-08-2004, 12:42 PM
how many of us have or have had chronic pelvic pain post hysterectomy

Hmmmm, I was beginning to think this was all in my head! My TAH was September 8 and about 2 weeks ago I started having right side abdominal pain and occasional back aches. I suppose if it continues, I'm going to have to call the GYN and have her take a look. Sometimes, it's even tender to touch. I had no problems after my surgery and everything went very smoothly so this had caught me off guard.


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