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I'm new here and I'm hoping you can help. I'm new here and I'm hoping you can help.

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  #1  
Unread 03-02-2004, 11:42 AM
I'm new here and I'm hoping you can help.

After weeks of searching for answers online I came across this site. It seems to me that you are a strong group of women that can point me in the right direction.

I actually feel almost guilty about posting here after reading some of the journeys some of you have been on. I have not yet been diagnosed with cancer nor have I been told I'll end up with a hysterectomy but I'm sure some of you can help me find my answers.

I am faithful about getting my pap every year and it's been normal for 10 years. A month ago I had a D&C and endometrial ablation for severe menstral bleeding and cramps. When I went back for my post-op visit my Dr. told me that very unexpectantly the path report said I had CIN III w/ HGSIL (and a bunch of other really big words). These cells were far in the cervical canal and that's why they weren't seen on my paps. I am getting ready to schedule my cone biopsy. Everything I read online only refers to finding abnormal cells during a pap....mine weren't found that way, how are they going to know if they removed all the abnormal cells during the cone if they don't show up on a pap?

Oh, I've got more questions.....but I'll get to those later
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  #2  
Unread 03-02-2004, 12:22 PM
I'm new here and I'm hoping you can help.

Never feel bad about coming here. A CINIII is about as close to cancer as you can get. When the doctor does the cone biospy it will be checked for clear margins, to make sure that they got it all. I think it works exactly as it would have worked had the cells been found with a pap smear.

Are you having a gyn/onc do the biospy? I suggest that you do as they are the specialists in this and know so much about what to biopsy and where.

I know this is a scary time for you but hang in there and come here with all the questions and concerns that you have. That's what we're here for!

Hugs,
Janie
  #3  
Unread 03-02-2004, 01:31 PM
I'm new here and I'm hoping you can help.

Thanks so much for your reply. Now I understand "clear margins" although I should have been able to figure that one out!

Actually I'm just having my ob/gyn do the cone. I trust him completly....he's actually a friend of mine. I'm sure if they don't get it all then he'll refer me to the Oncologist.

I actually have an appt. with him Monday to sign the consent papers and give me a chance to ask some questions. I have so many but I'm an impatient soul so I've been searching in the meantime.

I'm still confused by the whole location of the cells. From what I've read abnormal cells that are deep in the cervical canal are actually considered cancer but my path report said "no evidence of carcinoma"
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  #4  
Unread 03-02-2004, 07:03 PM
I'm new here and I'm hoping you can help.

not sure if this info will help or not. but here goes...
i'm 2 weeks post-op from a radical hysterectomy for cervical cancer. my ob/gyn found abnormal cells (in my cervix and in the cervical canal) in a routine pap and did 2 biopsies on a follow-up visit. my biopsies showed adneocarcinoma (cancer in the glands and tissues of the cervix). i was scheduled for a "cone" as well and during that procedure, they found the cancer had invaded 3mm of my cervix and i still had adnormal cells in the canal. docs usually recommend another cone if it's 3mm or below, but since my case was adneocarcinoma (only 10% of cervical cancer cases), they decided that my best chances of getting it all was a hysterectomy. i was really hesitant at first, because i'm 34 and have no children, but since it was the "c" word ... i felt i had no choice. my pathology report came back totally clear in my uterus and my lymph nodes meaning that they got it all!!! the cancer was just confined to my cervix and cervical canal. i did get to keep my ovaries and so far, i'm recovering quickly and (thanks to vicodin) painlessly. ; )
i wish you the best of luck. if you have any more questions. feel free to ask.
you'll be in my thoughts.
j


ps--my ob/gyn did the cone procedure, but a cancer specialist did my hyst.
  #5  
Unread 03-02-2004, 07:17 PM
I'm new here and I'm hoping you can help.

Thanks J, it's nice to know someone is "there". I just wish I could skip all the biopsies and just have the hyster done. I'm 33 but I've already had a tubal and an ablation. My doc said he plans on removing an inch and a half of my cervix to biopsy....geez, why can't he just take it all while he's at it! I hate waiting.

I'm glad the hyster worked for you, that's great news! Two weeks post-op huh? Feeling OK?
  #6  
Unread 03-03-2004, 01:42 PM
I'm new here and I'm hoping you can help.

People do skip the cones and go straight to the hysterectomy with CIN III. Your doctor probably just wants to see what it is and hopefully spare you the possible major surgery. The cone will biopsy and hopefully remove all of the bad cells. I would mention that you would just prefer a hysterectomy. I would also go to a gyn oncologist for another opinion.
  #7  
Unread 03-03-2004, 02:03 PM
I'm new here and I'm hoping you can help.

Jonesy,
I am so glad to hear that your results were all good and that you are recovering so well! That is wonderful news!

CJ, it's not a matter of trust or friendship with your doctor. I feel the same way about my gyn. I've known him 20 years and I too consider him a friend. It was he who sent me to the gyn/onc, 'just to be sure'. He said even after 25 years as an ob/gyn, he can't tell by appearance if he's dealing with cervical cancer, a fibroid, or something else. He said to me "if there is ANY chance of cancer, no matter how slim, then I want you to see a cancer specialist because he knows exactly what he's looking at and how to treat it". He made the appointment for me to see a gyn/onc despite 30 years of negative pap smears, negative sonograms and negative blood tests. He did that before I got my last pap smear results the same month that I was diagnosed. Those results showed a CINIII. My gyn/onc called immediately and made sure that I was keeping my appointment with the gyn/onc that happened to be the next day. It's a matter of experience, that's all. Gyn/oncs know exactly what they are looking at, exactly what needs to be removed and exactly what treatments should follow. A regular ob/gyn just doesn't have the same experience and expertise because it's not their field. It's not what they do all day everyday, like a gyn/onc. So I have to agree with AndyDenise, go a gyn/onc for a second opinion. I'd go to him/her for the cone too, if I were you. If you are contemplating a hysterectomy you really, really, really, need to have a gyn/onc do it. They know what glands to remove for testing in addition to knowing what they are looking at when they do the surgery. They are much better at recognizing cancer than a regular gyn. And much better at knowing exactly what treatment you should have. It's their job, mon!

Hugs,
Janie
  #8  
Unread 03-03-2004, 05:30 PM
I'm new here and I'm hoping you can help.

cj--
i'm feeling better everyday--thanks for asking. for me, the waiting was really the worst part. i had imagined the whole experience being so much worse. just try and focus on what's really important -- being cancer free! i hope you don't have to wait too long for your hyst.
good luck with everything.
jen
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