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  #1  
Unread 03-02-2004, 03:19 PM
Pelvic pain

It's been almost a year since my TAH/BSO and except for feeling tired and a little hair loss I was feeling good. Then a couple of months ago that oh so familiar pain came back. It's only gotten worse since then and I couldn't imagine why. I thought it be over for good and I could go back to normal. I am going to mr DR tomorrow so I thought I'd check in to see if anyone else has this problem. I was very surprised by the number of you that are still going through it! I was hoping for a simple solution but I have a feeling that I'm not going to get it. it's very depressing. I don't want to feel like this forever.....and I don't want you to either. Do any of you think there is any hope?
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  #2  
Unread 03-02-2004, 03:50 PM
of course there is hope,

Even if only a miniscule amount, there is always hope. Hope comes from within. If I were you, I'd call my gyn. Let him/her know exactly what you're feeling. And make an appointment with him/her. Unfortunately, I've discovered to my surprise that pelvic pain after hyst, is not unheard of. Sometimes it's the nerves misfiring, sometimes it's bowel or bladder related, sometimes it's actually a mystery.

Don't give up yet. If the pain is severe, or you feel it's very bad, go to the ER. They can often get the ball rolling, and begin the diagnosis process.

Please, take care of yourself. Rest, and drink lots of fluids.

The ladies on here have been wonderful at supporting me, and have been my sanity when my pain was at it's worst.

I'm not a doctor, and don't proclaim to be a pelvic pain expert. This is just my experience. I found Motrin 800 and my heating pad were my best friends. Your doctor can prescribe something stronger if the pain is getting bad.

Try walking, or exercise. If you're not an active person, yoga can be a way to get moving. Exercise releases endorphins which are natural painkillers. (orgasm releases them too!)

Best wishes and

Laura
  #3  
Unread 03-03-2004, 02:14 AM
Pelvic pain

hey hon - it can be so frustrating to go thru surgery and to still have significant pain. don't give up, but be methodical... it might help you emotionally to keep a pain journal. i know most women tend to minimize their problems once they finally see a doctor, but if you keep a daily journal of what going on and show it to them they will clearly understand how it is affecting your quality of life.

after my surgery i continued to have serious pain and pressure issues despite pelvic suspension/reconstruction. as it turned out it was my bladder spasming... the cause is still undetermined but i was able to find a Rx, (ditropan xl) that helped tremendously. the spasms i had sent me to the ER and the pain caused me to vomit. it felt a lot like labor pains, (if you've ever been) and bm's were unbearable.

pre-hyst i saw 3 gynos a colorectal doc and a urologist.... none of them diagnosed my prolapse and only one was sympathetic and believing that i was in extreme pain. i finally found a urogynecologist (a specialist in pelvic support issues) they are in short supply. the one i got was extremely sympathetic, she even prescribed xanax for the 6 week wait for surgery. I was so unbelievably distraught from begin dismissed by so many other doctors i couldn't even sleep, not to mention the pain.

another way to go would be to see a pain specialist, they don't necessarily treat for long term chronic issues but are very good at mapping and diagnosing a source of pain. AND they are great about prescribing you appropriate pain meds to help you maintain a good quality of life.

take care and keep the faith sister!
diane
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  #4  
Unread 03-03-2004, 04:06 PM
Pelvic pain

Cherry:

Welcome. There is hope. We give each other hope and hugs. By the way, its OK to be glad you aren't alone. None of us wishes ill on another, but its a comfort to be able to come here and benefit from the experiences of others.

Please try not to assume the worst. My motto is to prepare for anything, but hope for the best. Please let us know what the doctor says.

Hang in there!

s
  #5  
Unread 03-03-2004, 05:14 PM
Pelvic pain

Thank you for listening to me. It's comforting to know I have someone to talk to who understands. I went to mt GYN today and he thinks I have interstitial cystitis, but it could also be adhesions or something in the bowel. He's sending me for an ultrasound and barium enema (yuck!). He also talked about doing a lap and a scope in the bladder. He gave me precriptions for Elmiron and yet another pain medication. I also have arthritis in my spine so he is trying a pain med that should work for both. Lucky for me he also does pain management so hopefully it will help. He said that IC is very difficult to treat. The tests are next week and he wants me to try the meds for 2 months before we discuss surgery unless the tests show something else, so wish me luck. I really don't want surgery again!

Thanks again for listening to me!!
  #6  
Unread 03-03-2004, 06:32 PM
Pelvic pain

Dear Cherry,

yep, there are many of us still dealing with pain and other things after the hysterectomy. I just had surgery 17 months after my TAH and the doctor found cystic endometriosis imbedded in the pelvic muscle wall and cysts of endosalpingiosis (which I had never heard of before and did not have before the TAH).

Come and visit often and let us know how you are doing. I had the tests for IC also... but they were negative.

I hope they are able to figure out where the pain is coming from. I have found that the best chance for pain relief usually comes after they have made the correct diagnosis of where the problem is coming from...

Keep us posted.

Sarah
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