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Fallopian Tube Cancer Fallopian Tube Cancer

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  #1  
Unread 03-03-2004, 04:29 PM
Fallopian Tube Cancer

In January I had a hysterectomy due to cancer originating in a fallopian tube. It had spread to the uterus and cervix. A pelvic washing revealed microscopic malignant cells. There is no way to tell what organ (s) they will attack. My oncologist was all gloom and doom. He made my survival sound slim. Tomorrow I am traveling to see a specialist. I would appreciate some feedback.
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  #2  
Unread 03-03-2004, 04:44 PM
Fallopian Tube Cancer

Different doctors have different opinions. Never, never, never let a doctor predict your future, because they just don't know. And if you don't like what you're hearing from one specialist, keep on looking until you find one willing to work with you to give it your best shot. Never give up hope!
We will all be here to offer you prayers and encouragement every step of the way.
  #3  
Unread 03-03-2004, 05:06 PM
just down the road from you

So sorry to hear your news.If you are travelling for a second opinion I hope you are heading North.to see a gynecological/ oncologist.

I was dx with endometrial ca last Feb. and travelled to Eugene at my doc's recommendation to see a gyn/onc.. Those docs are the specialists when it comes to gyn. cancers. Can you get a second opinion on your path reports, also ?

Althought my cancer was different, I sure can apprieciate your thoughts and feelings at this time.............. here at hysistersisters you are not alone. There will be some fine women along soon that may be able to offer more info than I.

In the meantime, if you have questions. please feel to Pm or e-mail (though I have been having problems with my e-mail ). Will be keeping you in my thoughts and prayers I dealt with a wonderful doc up north and would be happy to recommend her.
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  #4  
Unread 03-03-2004, 05:11 PM
Fallopian Tube Cancer

This is very rare. I do hope you will see a gynecologic oncologist as they are experts on gynecological cancer. Dr. Gloom and Doom, aka Dr. Death, needs to go and should be replaced by someone who will work WITH you and do whatever he/she can to help.
  #5  
Unread 03-03-2004, 05:28 PM
Fallopian Tube Cancer

LilyLuLu
I had cancer totally filling my left fallopian tube and in my right ovary. The tumor board and my gyn onc could not state which came first. So I classify myself as having ovarian cancer. My gyn/onc suspects that the fallopian cancer came first.

Whatever came 1st doesn't really matter. Fallopian tube cancer is treated the same way as ovarian cancer. They are embroyologically the same tissue.

You reall need to see a gynecological oncologist for a second opinion. They are the experts and can help you establish a treatment plan.

Survival is very much possible so don't let anyone tell you not. Doom and Gloom have no part in this fight. Faith and Hope do.

Good Luck. Write whenever you have a question or want to vent.



Ruth S
  #6  
Unread 03-03-2004, 06:54 PM
Fallopian Tube Cancer

s LilyLuLu

I adore you name!!
Like Ruth said: Fallopian tube cancer is the sister of ovarian cancer. And it is staged and treated the exact same way as ovarian cancer.
Was your surgery performed by a gyn oncology surgeon?
If not, I hope this is the specialist you are getting ready to see.
Don't be too alarmed by cells being found in your abdominal washings. This is just a finding that is used in staging your cancer.
Let us know what treatment you will be receiving and we will be back with tips, hugs and support.
Best wishes.

karenann
  #7  
Unread 03-03-2004, 07:55 PM
Specialist for Fallopian Tube Cancer

Thank you so much for your responses. My gynecologist performed the hysterectomy assisted by a surgeon. I will be traveling north to Eugene to see a female gynecological oncologist. Whatever she says has to be better than the first one.
  #8  
Unread 03-03-2004, 08:48 PM
Fallopian Tube Cancer

Hi, Lilylulu. When I had my hysterectomy, the doctors found I had cancer in the ovaries that spread to the fallopian tubes and what was perceived to be a separate cancer in the uterus that spread to the cervix. It was not in any surrounding organs or tissues and I was told I'd have chemo and radiation to specifically battle and kill any microscopic cancer cells that might be lurking elsewhere in my body.

Sounds like you've got a good plan in seeing a specialist. Please keep in touch and let us know how your visit goes.

Good luck and God bless.
  #9  
Unread 03-03-2004, 10:32 PM
Fallopian Tube Cancer

Hi Lilylulu,

Do not let any Dr. Doom and Gloom get hold of you. Radiation or chemo or both will take care of any loose cells floating around. As the other Sisters said, keep looking until you find a Doc that is willing to fight for you and with you.

Take care and let us know how you are doing.

Sharon
  #10  
Unread 03-08-2004, 10:00 PM
Fallopian Tube Cancer

Lilylulu:

My primary cancer was also Fallopian Tube. There is not much information available about it because it is so rare...only 2000 cases reported ever.

My gyn-onc had treated other women who had Fallopian Tube CA. He was, and still is, very optimistic for me. Mine was an early find...Stage IIc. I was treated with 6 cycles of Taxol and Carboplatin. I have had 3 follow-ups and everything has been clear. The gyn-onc will continue to follow up with me every 3 months for the first 2 years, and every 6 months after that.

I hope the new doctor has better info than Dr. Doom and Gloom!

kEEP IN TOUCH!!

S
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